Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Has Done The "gluten Challenge" Before Being Tested?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

I did one, but only for a week before my blood tests. I was in such pain the day I went to the doctors, but my tests were negative. Since he only tested like two things im going to a different doctor, but this time I want to make sure to gluten myself right, for accurate test results.

 

So who has done the challenge?? How long were you gluten free before the challenge? How long did you do the challenge? And what were your test results? (blood,endoscopy, anything else)

 

**I know I am gluten intolerant, but I want to make sure I can totally rule out celiac before I go gluten free for the rest of my life. And I like to know exactly what would be going on inside my body if I got glutened... if that makes sense...

 

 

Thank you everyone!! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


taynichaf Contributor
taynichaf
Posted
  • Author

BTW, I'm seeing a doctor on monday, but I plan on just talking about my symptoms. I want to do the challenge for at least 6 weeks before any testing.. Im an 18 year old female.. If that mmakes a difference.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Hi taynichaf

 

I went gluten free in October 2010 to relieve my fibromyalgia pain.

The doctor back then didn't want me to do a Celiac panel test which was bad advice.

 

The pain came back during 2011.

I thought it was gluten but I later realised it was other foods

and in January 2013 I did an IgG food intolerance test to confirm this.

 

I needed to do a Celiac blood panel because when I see specialists for medical problems and surgery they didn’t take my word for it.

And regular people thought I made it all up.

 

 

This was my Gluten challenge:

 

October 2010 to November 2012            gluten free

 

November 6 to December 6 - 2012         about 4 slices of bread / daily

December and January                          2 slices daily

February                                                

2 to 6 slices daily

March                                                    4 to 6 slices daily

up to April 18                                         10 slices daily         

 

 

 

I'm in lots of fibro pain now.

 

 

 

December 6 - 2012 I did the tTG-IgA test and it was negative.

 

April 18 - 2013 I did the Celiac panel and it was negative… darn!

 

…………………………………………………………………………………

 

The Celiac Disease Center says you should be eating gluten for 12 weeks prior to the Celiac blood panel.

Open Original Shared Link

 

…………………………………………………………………………………….

 

Keep a written log of how much bread and gluten foods you are eating so that at the end of this gluten challenge you can be sure you did your best.

 

Be sure to eat a variety of gluten: white bread, brown bread, pasta.

 

 

 

You are very wise to be testing yourself now while you are young.

 

If when you are 30 or 40 and some medical problem comes along it will be important for you to know if you have Celiac or Gluten Intolerance as these are auto-immune diseases and auto-immune diseases come in groups.

 

If you test positive now, no one will be able to tell you it's all in your head.

You will be dedicated to your gluten free diet for life after this.

And you won't be wondering at 30, 40, or 50, is it the gluten?  like the rest of us who are trying to figure this out.

 

I know it's painful but you are young and if you can get a diagnosis now, positive or negative,

it will be done and over with and then you to move on with the rest of your life.

 

You are definitely doing the right thing.

I wish I had been as enlightened as you at 18 and had been tested.

 

(going off line now)

 

Marcus

taynichaf Contributor
taynichaf
Posted
  • Author

That's such a long time!! And the test was negative?! Ugh, sorryyy:(

I know this will be hard, but if I don't give myself the best possible glutening, I'll be wondering for the rest of my life. And I was scared to do the challenge before, but I understand that it's the best thing I can do right now..

thank you so much:)

ravenwoodglass Mentor
ravenwoodglass
Posted

Make sure your doctor does the newer DGP tests once you are finished with your challenge.

When you see your new doctor on Monday be sure to detail

 

 The symptoms you had before you went gluten free,

 How severe they were,

 How long you were gluten free and how strict you were.

 What symptoms resolved on the diet and did they resolve completely or just partially

 What happened when you challenged.

 

It might help to write things down.

Talk to the doctor about wanting to challenge again and retest. Do not hesitate to call the office and talk to a nurse if your symptoms get severe. Some can tough out the symptoms for the weeks they need to. Others become too severely ill to complete the challenge. Some doctors will advise you to stop the challenge if symptoms become too severe.

If you reacted to your first challenge you really know whether your body can tolerate gluten or not. I do hope you don't have too bad of a reaction, some just get milder symptoms so you may be lucky and be in that group.

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.

taynichaf Contributor
taynichaf
Posted
  • Author

I agree with ravenwoodglass, get the up to date DGP tests like in this panel that I did:

 

 

Total IgA       (a control test to make sure you have enough immunoglobulin IgA)   

Transglutaminase    IgA               (tTG-IgA)

Deaminated Gliadin  IgA              (DGP-IgA)

Deaminated Gliadin  IgG              (DGP- IgG)

 

This test should cover all the bases to detect Celiac's intestinal damage.

 

Do you have to tell the new doctor that you already did the Celiac blood test and were negative?

He might not understand about your short gluten challenge affecting the first test.

 

 

AGA - IgG and AGA - IgA are the older tests no longer used for Celiac but some people do it to detect gluten sensitivity.

You might want to include the AGA  but be sure the 4 tests in the Celiac panel listed above are on your requisition including that

total IgA test.

My doctor did an IgA test thing... and no, i don't suppose I have to tell my new doc! :)

 

Thanks guys!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    2. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      25

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    3. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    4. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,151
    • Most Online (within 30 mins)
      7,748
    Travis25
    Newest Member
    Travis25
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      Heat intolerant... Yikes

      By Scott Adams · Posted

      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.