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Can Anyone Help Me Diagnose What I've Got?

Womble

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Womble Newbie
Womble
Posted

Dear All

 

I don't know if I have celiac disease, gluten intolerance (is it the same as wheat intolerance?), or just irritable bowel syndrome, but all I know is that I feel worse and worse after eating.  I'm at the stage now that I can hardly have a meal without getting at least mild stomach cramps afterwards.  That's my worst problem, but I have many of the other symptoms too, which apparently are typical  of people with these intolerances, e.g. bloating (this is also a big problem for me - I often have to burp repeatedly after meals), alternating between constipation and diarrhea, having to make stools often, mucus in the stool and skin problems.  Regarding the latter,  I don't know if I have ecezma or psoarosis but I get itchy skin and I have to moisturise quite a lot.  Before I moisturised so much, the problem was worse and sometimes I used to bleed.

 

My problems have been getting worse recently since I have been eating more wheat-based products, especially bread.  I have always eaten quite a lot of cereals and pasta anyway.  My friend thought that it could be wheat intolerance, but I'm not sure and a bit bamboozled by all the stuff on the web.

 

I have been eating a high-fibre diet for quite a long time because until my friend made his suggestion I thought I had IBS.  Wheat intolerance may explain why my health never seems to get better (in fact, if anything, it gets worse) despite this diet.

 

I live in China and I have to say that getting help with these types of issues from doctors is easier said than done.  That's why I joined this forum and am posting this message.

 

Thank you for any help in determing if I'm on the right track in my thinking above and your suggestions about self-diagnosis and diet - I'm in pain!

 

Best

 

 

Womble

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kareng Grand Master
kareng
Posted

Here is an explanation, from a reliable source:

Open Original Shared Link

Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Hello Womble,

 

The only diagnosis I've received so far is wheat intolerance as my Celiac panel appears normal.

 

If you can't get Celiac blood tests where you are I recommend cutting out wheat and gluten and dairy-milk as a test.

 

Good luck.

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  • Recent Activity

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      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    2. Ello
      - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
    3. trents
      - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Small Bowel Resection 12 inches

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to...
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      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response.
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      Small Bowel Resection 12 inches

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    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Small Bowel Resection 12 inches

      By Ello · Posted

      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      Small Bowel Resection 12 inches

      By trents · Posted

      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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