Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pelvic Pain Girls?


glutenfree7562

Recommended Posts

glutenfree7562 Newbie

Ever since I started having problems with celiac a year ago, and since I was diagnosed 2 months ago I've had pelvic pain. Certain areas hurt to push on and I get a pain that radiates to my lower back and all down my legs. I'm only 17 and I was wondering if it could be related to my celiac or if anyone has had anything similar.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFreeMO Proficient

I have the same thing.  It's part of what led me to the celiac diagnosis.  Our intestines and female parts and bladder are all jammed packed in there.  Feels like period cramps a lot sometimes but it's just the raw and inflamed guts.  

cavernio Enthusiast

I have all sorts of weird pains, most of the time nothing bad though. I did notice, however, that the worst of them, a constant pain on my left that seemed to go along my colon or possible fallopian tube, has gone away gluten free. That pain specifically would get aggravated with breathing...rather, when I breathed in the pain would go away, but come back with the outtake of breath. Clearly my diaphragm was pushing on something or the contraction of my diaphragm itself caused some sort of neural pain (I have neuropathy from my celiac disease). Luckily, it was one of the first things to get better for me. Still took at least a month to go away though.

 

That said, I subdivide my menstrual cramps into 2 types. The first one is more dull, and comes and goes in waves, and doesn't usually get bad. The second type is sharp and feels like it will get excrutiating, and I seem to feel it in the muscles surrounding my anus (not the colon, butt muscles) and well as really, really low down on my pelvis, and of course the usual area closer to my ovaries. This sounds like endometriosis to me, but it's infrequent (1-2 times a year max) and it's definitely period related, and is well-treated with an ibuprofen and won't come back 4 hours after the ibuprofen. Never had it looked at medically.

 

I have experienced some spotting since being gluten free, and my period seems to be moving back to a 28 day cycle from a 40~ish day cycle I had for many years.

glutenfree7562 Newbie

Yeah I had an ultrasound and it came back normal I guess, and my doctor said it has nothing to do with my celiac, and prescribed me pain killers for cramps. I just don't think it's cramps, because its not the same kind of pain I usually get while on my period. I've only been gluten free for 2 months though so maybe I just need to give it more time. I just haven't really improved at all.

  • 2 weeks later...
anti-soprano Apprentice

Yeah I had an ultrasound and it came back normal I guess, and my doctor said it has nothing to do with my celiac, and prescribed me pain killers for cramps. I just don't think it's cramps, because its not the same kind of pain I usually get while on my period. I've only been gluten free for 2 months though so maybe I just need to give it more time. I just haven't really improved at all.

I have the same pain as cavernio described on my left side.  It coincides with any type of inflammation in my gut, especially C and it also flared up with a UTI.  If you suffer from C, consider probiotics, enzymes, whatever will get things moving and grooving.   I am also going for an ultrasound within the month, but I doubt they'll find anything.  It's fine when nothing else down there is aggravated.

BelleVie Enthusiast

Yes, I have had pelvic pain for years. I've been to the gyno dozens of times about it, have had ultrasounds and tests, and everything in there is normal. It only recently occurred to me that it could be due to gut inflammation.

 

I've also had really strong pain (like a muscle being pulled and pinched) in what I thought was my uterus/ovaries when I cough or sneeze for years as well, but again, it only recently occurred to me that it might be something else. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,097
    • Most Online (within 30 mins)
      7,748

    Ann Den
    Newest Member
    Ann Den
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
    • rei.b
      Hello, I am feeling frustrated. I have hEDS and lifelong digestive issues but my GI PA is very focused on my celiac panel and I just want to make sure that she should be focused on that because completely changing my diet seems to have worsened my symptoms.  Symptoms are constipation, diarrhea, and acid reflux with spicy foods and certain foods like tomatoes, bell peppers, and onions. I also don't have a gallbaldder as it was removed almost a year ago. This also exacerbated my symptoms. I did have joint pain from hEDS but that was already treated with low dose naltrexone about 4 months prior to going completely gluten free. Endoscopy was abnormal but inconclusive; basically showed some inflammation - which common with hEDS. I don't have any vitamin deficiency.   Celiac Panel Results: TTG-A <0.5 U/ML Reference Range: 0.5-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-A 72.0 U/ML Reference Range: 0.2-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 TTG-G <0.8 U/ML Reference Range: 0.8-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 DGP-G 24.0 U/ML Reference Range: 0.4-14.9 U/ML NEGATIVE: <15 POSITIVE: =>15 IgG-A-M Results: IMMUNOGLOBULIN A, QN, SERUM 165 MG/DL Reference Range: 87-352 MG/DL IMMUNOGLOBULIN M, QN, SERUM 164 MG/DL Reference Range: 26-217 MG/DL   What are your thoughts, internet? Are there any questions I should be asking the PA? Thanks!
    • Roses8721
      Help. I’m spiraling. Years of extensive symptoms:  What could this be? Years of: Mildly elevated alk and alt Fatty liver Random days of feeling like I’m coming down w flu but no fever and nobody else in house sick Intermittent diarrhea Severe abdominal distension Long history of cavities and enamel deficiency Sound sensitivity Anxiety and depression Low libido Sun skin allergy Frequent fatigue ended up seeing PCP because I looked 8 mo preg. Started gluten-free diet then celiac serology negative. SW GI Dr dx me w celiac as I had been in bed for 3 days after eating gluten after cutting. GI said not to do biopsy because it was clear what was going on and added to chart. My spiral is not seeing anywhere this is done and want to see if anyone else has dealt w this. If not celiac idk what else I will do. Family history or celiac as well as a death related to this. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.