Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Doctor Hadn't Even Heard Of Leaky Gut!

Dancer

Recommended Posts

Dancer Rookie
Dancer
Posted

Why do I feel like my reality just gets invalidated over and over again. I wish these doctors would expand their thinking/knowledge base into the 21st century. It's so hard to work with. So I play the docile patient and go to the rheumatologist for no good reason in case I need some support from the system in case I get really sick. I know that they can't do anything for me except to stress my stressed system with more drugs.

I feel like I just screamed into a vacuum and no-one can hear me. Am I just imagining all of this or is it really happening.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

That's frustrating.  I am often glad that I have my own brain.   I always like to get to the root of the problem, but discovered years back that most doctors don't.  I hope you can really work away at the roots of your problems, but mostly that you GET BETTER.

 

Diana

Dancer Rookie
Dancer
Posted
  • Author

That's frustrating.  I am often glad that I have my own brain.   I always like to get to the root of the problem, but discovered years back that most doctors don't.  I hope you can really work away at the roots of your problems, but mostly that you GET BETTER.

 

Diana

Thank you Diana. That's what I'm trying to do.

Ksee Rookie
Ksee
Posted

Your doctor hasn't heard of leaky gut? That's bologna! It may be he/she doesn't believe it has been proven within certain guidelines but you can't be in medicine today and not have heard of it. To a certain extent the gut is designed to leak, it's one way nutrients get from inside the gut to the rest of the body. Inflammation of the gut allows larger particles and unhealthy other stuff to cross between cells in the same way as fluids, bacteria and toxins. Malabsorption is a wide group of diseases that must be understood before getting any medical degree.

What you have is a passive aggressive doctor telling you to pay no attention to the man behind the curtain pulling the levers and strings. Listen to the Great and Powerful, the All Knowing RheumOztologist blowing smoke up whatever you might have handy.

Sorry to be blunt but I call BS on that.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,428
    • Most Online (within 30 mins)
      7,748
    Nancy lang adler
    Newest Member
    Nancy lang adler
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Major Glutening

      By knitty kitty · Posted

      So sorry to hear you are going through this!   What OTC med did you take?  
    • knitty kitty
      Struggling to get into a good pattern

      By knitty kitty · Posted

      Yep,yep,yep, called it from experience.  I've lived through SIBO and Candida myself.  I get a different sorts of reactions to dairy, high sugar consumption, and gluten.  I react to Casein, the protein in dairy.   Try the AIP diet.  Dr. Sarah Ballantyne designed it and is a Celiac herself.  Her book, the Paleo Approach, has been most helpful.
    • knitty kitty
      Gluten Allergy

      By knitty kitty · Posted

      Yes, I know.   Without sufficient Folate, Cobalamine, and Pyridoxine, the body can't get rid of high homocysteine levels.  High homocysteine levels make one restless, interferes with sleep and resembles ADHD symptoms.  High homocysteine levels occur in Celiac Disease.  Chronic high histamine levels lead to high homocysteine levels. Impact of supplementation with vitamins B6 , B12 , and/or folic acid on the reduction of homocysteine levels in patients with mild cognitive impairment: A systematic review https://pubmed.ncbi.nlm.nih.gov/34058062/ Homocysteine, Pyridoxine, Folate and Vitamin B12 Levels in Children with Attention Deficit Hyperactivity Disorder https://pubmed.ncbi.nlm.nih.gov/30267523/ Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/ Prevalence of hyperhomocysteinemia in adult gluten-sensitive enteropathy at diagnosis: role of B12, folate, and genetics https://pubmed.ncbi.nlm.nih.gov/15952099/ Homocysteine, Vitamins B6 and Folic Acid in Experimental Models of Myocardial Infarction and Heart Failure-How Strong Is That Link? https://pubmed.ncbi.nlm.nih.gov/35454125/
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      You called it @knitty kitty.  I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold).  I saw that you mentioned before in this chain that some people on this forum also get Candida infections.  So it seems that I am possibly dealing that issue in my gut as well. I think some of the symptoms that I've been not able to understand now make a lot of sense within this context (such as why eating dairy and sugar sometimes causes me to get headaches, joint pain, chills, feel like I have the flu... if these things are making the candida infection worse by feeding the candida, and then my body responds by trying to fight it off, then I basically am fighting off an infection, which is exactly what it feels like).  The flu-like reaction that I get when I eat dairy is a distinct reaction than the one I get from getting glutened (which is also bad, but different: headache, sharp abdominal pains, gas, diarrhea). That's what made me think there was something else at play. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I'm concerned about calcium.  I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free.  However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs.  I'd like find a decent supplement for that.  Was thinking of looking into the algae based calcium supplements since they're more natural than some of the others available, but seem rather expensive.  When possible, I try supplement with food sources.  One or two Brazil nuts usually have the full RDA for selenium.  One Barbados cherry has the daily RDA for vitamin C.  I also use seaweed to help supplement iodine since I don't use iodized salt.
×
×
  • Create New...