Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neuro Symptoms?

Carolann444

Recommended Posts

Carolann444 Rookie
Carolann444
Posted

Is there anyone here who has neurological symptoms when eating gluten? 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Is there anyone here who has neurological symptoms when eating gluten? 

Yes. without hesitation :rolleyes:

 

Now, let's break it down. What is your issue, or how can we help?  :)

secondTUEsday Newbie
secondTUEsday
Posted

I have just started eating gluten free (today is my 5th day) and for the past year or so I have had some neurological symptoms that I didn't think anything of until I began to realize that all of my random aches/pains/tingles may have something to do with each other! For me the symptoms are tingling (head/skull, hands, feet), vision migraines, and foggy head.  

powerofpositivethinking Community Regular
powerofpositivethinking
Posted

yep I had brain fog.  I can't count how many times I said, "Physically I'm here, but I feel out of it mentally."  It was like an out of body experience feeling.  the fog has lifted going gluten-free!

Is there anyone here who has neurological symptoms when eating gluten? 

Carolann444 Rookie
Carolann444
Posted
  • Author

Yes, I can relate to all of that!   Ataxia fully describes what I go through.  I can't walk or move my arms without an extreme amount of concentration.  I'm dizzy, foggy headed, can't think straight and get confused.  Alot of times a reaction starts with tingling, either feet and legs or lips and face.  Then I notice I am dropping things and running into things.  Then it progresses to where I can't walk.  I have slurred speech and it is difficul,t if I can get anything out, for anyone to understand me.  Then my vision, my eyes cross sometimes so bad that it hurts. My husband says he can always tell when I start having a reaction from my eyes.  They look "freaky" as he calls it and they dilate. Once the reaction is full blown, all I can do is lay down and wait for it to pass.  Usually I can start to somewhat function after a couple of hours but the full effects can last for a few days.  I must be a very sensitive celiac because if I eat out and they don't cook it separately, different utensils, etc, then I will have a reaction.  Anyone else have that many symptoms?  I didn't used to get the neurological symptoms until about 1 1/2 years ago, (I have been sick for the past 6 years and just recently got diagnosed with celiac) and they did all kinds of testing in the hospital to make sure everything was okay neurological and it was.  I also get bad abdominal pains.  I have all of these same reactions when I eat dairy too, so I am now gluten and dairy free. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748
    Barrie S
    Newest Member
    Barrie S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.