Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm New With Questions :)


student314

Recommended Posts

student314 Rookie

I'm 19 years old and have had some weird symptoms recently. I was supposed to be a leader at a youth camp two weeks ago, but I became very ill with what everyone assumes was a stomach virus. My blood pressure was crazy and I couldn't stand or walk around for very long without almost passing out and I was suddenly unable to eat. My mouth would go bone dry and I'd gag on food. Anything besides fruit and rice made me nauseous. I was weirdly anxious during this time too--I was diagnosed with an anxiety disorder last year and it had gotten out of control the few weeks before I got sick and I was having panic attacks out of nowhere almost every day. While I was sick, I was very tense and just nervous. I was literally bed ridden for 3 days before they decided to send me back home because I wasn't getting better. It took the rest of the week, but my weakness got better. However, as I started being able to eat again, I started getting diarrhea. It's been two weeks and I have a normal appetite, but food makes me feel weird/anxious and my heart pounds or races. My diarrhea seemed better two days ago, but now it's back to weird loose stools (sorry...TMI). I had two bowls of strawberry toasters (like cinnamon toast crunch, but strawberry) this morning and the effects followed not too long after. My stomach started knotting up and my heart rate went up to 120 for a good half hour or more. These heart symptoms have been the most annoying...I have been eating a lot of whole grain and fiber to help with the stomach issues, but they didn't help and just made me nervous. The only thing I ate that didn't affect my heart rate was peach froyo with fruit. The dairy upset my stomach a couple of hours later of course, but that was it. I happened to mention to my mom that I had been having these heart rate problems and that the froyo wasn't doing it and she wondered if it had something to do with gluten since it was the only thing it didn't have that everything else I've had did. I've had upset stomach problems and everything before, but we've always chalked it up to stress (and it probably was). This just seems different somehow. I've never gotten to 100% since the stomach virus. I know there are a billion things that could cause all this, but it couldn't hurt to ask. The only thing that has come up in the past few years has been a pretty low Vitamin D level of 11 that won't get near normal despite high doses of Vitamin D, but other tests, such as thyroid, have been normal. I went to the doctor a few days ago and he said that the digestive problems would probably resolve themselves eventually, so I haven't gotten to really talk to him about the other problems and was wondering if we should pursue this theory. Sorry this is so long!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

You may have a gluten problem.  The flu could trigger celiac.  You should do some tests for Celiac and see if they will help you to discover what is wrong.  You could have some other health problem.  There must be something at the root of your problem and I hope you will find it.  The heart problems do sound disconcerting, and certainly you should find out what is causing them.

 

I think I understand you to say that you have taken vitamin D supplements without low vitamin D levels resolving?  That would show a problem with absorption in my opinion.  Do you have a normal iron level?  My Functional Medicine Nurse mentioned that low to borderline iron level can be an early indicator of mal-absorption.

 

Get Well***,

I hope you get some definitive answers soon.

D

powerofpositivethinking Community Regular

welcome!

 

Vitamin D deficiency is commonly linked with celiac, and the fact that you said you've been taking large doses but that hasn't resolved the problem is even more suspicious of malabsroption problems.  Here is a link with common celiac associated deficieicies:

Open Original Shared Link

 

If you want to get tested, you MUST be consuming gluten prior and during testing or else it could yield false results.  In fact, don't stop eating gluten until you are done ALL testing, including the endoscopy if you get one.  The first steps are simple blood tests that either your GP or GI can order.

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

Open Original Shared Link

 

Also after a bout of stomach virus, it may be useful to take probiotics to help your good gut flora get back in balance.  Since you said you've been having diarrhea, it may be a good idea to try Culturelle which has the lacto strain of probiotics which is great for diarrhea.  You can pretty much pick up this brand at any Target or pharmacy.  Here is a link to the ones I have used in the past:

Open Original Shared Link

 

anxiety can be linked to gluten.  mine has gotten so much better since going gluten free.

  • 2 weeks later...
student314 Rookie

Thank you for your responses. Yes, I have been taking large amounts of Vitamin D. It was low to start with and I was put on 50,000 iU for 12 weeks, which only brought it up from 13 (I think) to 18. Then about a year later, it had plummeted back down to 11. I was put on 50,000 iU again and then told to supplement with 2500 per day after that. I haven't been tested since. I was borderline anemic about 4 years ago, but I haven't been tested for that either. I'm starting to suspect that again though because I've been getting exhausted from exercise easily and my heart races and my hands tingle sometimes (though that could be my anxiety).

 

My digestive symptoms have improved somewhat--no more constant diarrhea--but I'm still not 100% and still have a lot of bloating and discomfort. I'm super anxious and foggy after eating. I had a voracious appetite for the past week or so and gained almost 10 lbs. back that I had lost over the summer, but cutting back a little for the past couple of days caused me to already lose 2 pounds (I usually struggle to lose weight). Something's just OFF. I can't put my finger on it. The worst part is I have to go back to university next week and I have to be able to function, not to mention be able to walk a couple miles a day. Since I haven't been able to see my doctor at home, would it be useful to find a specialist or something while I'm at school?

 

Thanks again.

AlwaysLearning Collaborator

When you return, have them test all of your vitamin levels again, not just the D and the iron. I know B12 deficiencies are also common and have some pretty horrendous symptoms (and are much easier to treat). 

I do hope you get the answers you need, and soon!

  • 4 months later...
brookevale Newbie

Student 314,

 

What ever became of your digestive issues. I have the identical thing going on. I had strep, was given antibiotics, and have had diarrhea, nausea, anxiety, no appetite for over 2 weeks. I too feel like something is off. Please let me know how things turned out. I need some hope!

 

Thanks,

Brooke

eers03 Explorer

Student 314,

 

What ever became of your digestive issues. I have the identical thing going on. I had strep, was given antibiotics, and have had diarrhea, nausea, anxiety, no appetite for over 2 weeks. I too feel like something is off. Please let me know how things turned out. I need some hope!

 

Thanks,

Brooke

Your antibiotic could absolutely be the source of your diarrhea.  If it persists you should go see your healthcare provider again.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

    3. - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    4. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

    5. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,466
    • Most Online (within 30 mins)
      7,748

    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ginger38
      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.