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Steroids?

lucky28

By lucky28
in Coping with Celiac Disease

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lucky28 Explorer
lucky28
Posted

Has anyone taken steroids for either ongoing symptoms or for a glutening episode? If so, how long where you on them and how much?

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nvsmom Community Regular
nvsmom
Posted

I've taken steroids not directly for celiac disease but for conditions that could be related.

 

I was on Prednisone for about 6 months for a thymbocytopenia bleeding disorder a couple of decades ago. Can't remember the doseage.

 

i currently take cortef and florinef for adrenal/energy/hormone issues and for low (postural) blood pressure. Cortef is 20MG and florinef is 0.1MG. I have no idea how long I'll be on it, but it's been a couple of months now.... And gotta say, i feel pretty good on it.  :)

lucky28 Explorer
lucky28
Posted
  • Author

Thanks Nicole, I actually have 2 problems going on. I have been diagnosed celiac and gluten-free for 2 years. Over the last 3 months or so my stomach has gotten as bad as before diagnosis. D 5+times a day, almost late for work because of it, exhaustion etc. I just made an appt to see my gastro again, to ask for a follow up biopsy. I have been really careful about my diet and cc so it's not that. In addition, just last night I got my first "real" glutening(obvious glutening) It was a really stupid mistake, I picked up the wrong drink and ended up gulping a large swig of regular beer! I'm feeling awful today, stomach pains, nausea, severe exhaustion... I was on prednisolone for an allergic reaction and my dr friend told me that it had the added benefit of helping my celiac reaction because it suppresses immune response. I still have a refill left on the prescription so I was thinking about filling it and taking it for a week to help this glutening ( today is day one of my only vacation this year, I don't want to be doubled over the whole time!). Any thoughts?

nvsmom Community Regular
nvsmom
Posted

I don't know... i know steroid use shouldn't be done lightly, and that most need to taper off when they are done.

 

Hopefully someone else will chime in who knows more than I do.

niese Explorer
niese
Posted

My GI doc had me start budesonide 3mg I take 3 pills each morning for 1 month, 2nd month 2 pills each morning, then 3rd month 1 pill each morning. After 3rd month I am done.   It has stopped my chronic diarrhea.   The reason I am on this is because I had chronic diarrhea since April and nothing helped.  Thank God my bowels are almost back to normal now.  

lucky28 Explorer
lucky28
Posted
  • Author

Denise, thank you, good to know there may be light at the end of this tunnel! I know that I'll get over this acute glutening but it's good to hear there may be help for the constant issues too!

niese Explorer
niese
Posted

Denise, thank you, good to know there may be light at the end of this tunnel! I know that I'll get over this acute glutening but it's good to hear there may be help for the constant issues too!

I am not saying steroid is your answer, I advised to check with your doc before starting on them,  like nvsmom stated you need to taper off of them when you take steroids.  I was on prednisone which was  a pretty strong steroid from my understanding (but I could be wrong) and it did nothing for me.  This new med is still a steroid but doc said a low one.  I don't know much about meds but all I know is after 5 straight months of chronic "D" (15-20 times day) this new med is working, FINALLY!  But I strongly suggests checking with your doc before going on them again.   

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lucky28 Explorer
lucky28
Posted
  • Author

Oh, I definitely will! I already have an appt with my gastro! I just feel so crummy today, I was wracking my (foggy) brain for a quick fix. I think I'm just gonna cancel my plans for this week and hang out at home to recover. I'll take a vaca next year! Luckily I was only staying with relatives so no reservations to cancel!

niese Explorer
niese
Posted

Oh, I definitely will! I already have an appt with my gastro! I just feel so crummy today, I was wracking my (foggy) brain for a quick fix. I think I'm just gonna cancel my plans for this week and hang out at home to recover. I'll take a vaca next year! Luckily I was only staying with relatives so no reservations to cancel!

Sometimes pepto bismol helps me.  Hope you feel better soon!

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