Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Allergic To Wheat


Aightball

Recommended Posts

Aightball Apprentice

I hope this is the right forum for this :).

I was thinking back to my allergy testing in January...I am not allergic to wheat, but the allergy doc suggested avoid wheat/gluten to see how I feel. If I'm not allergic to it, do I still need to avoid it? Guess I'm just looking for something more go have in the diet, but while I feel great on this diet, wondering if I really need to avoid soemthing I'm not allergic to?

-Kel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



seeking-wholeness Explorer

Kel,

When doctors say you're not "allergic" to wheat, they mean that you do not have an IgE-mediated reaction to it (like hives or anaphylaxis). However, celiac disease is mediated by IgA and IgG, NOT IgE. If you make anti-gliadin IgA and/or IgG antibodies, you MUST avoid gluten in all its forms to remain healthy, even though you are not classically "allergic."

I hope this clears up any confusion, and I'm sorry it's probably not what you wanted to hear!

  • 3 months later...
celiac3270 Collaborator

Even if you're not allergic to wheat, wheat is a form of gluten, and therefore, you need to avoid it. "gluten-free" means "wheat-free, rye-free, malt-free, barley-free, etc." It is just a broad term referring to all these. You must avoid wheat....although you do not have an allergy to it, you do have a sort of intolerance to it.

Guest gillian502

I'm not allergic to wheat either, but eating gluten almost killed me. I know it's weird, but you can have celiac disease and still, like me, have no food allergies whatsoever.

flagbabyds Collaborator

celiac disease is an intolerance to gluten, NOT an allergy, You can not outgrow it, you have it for life! If you feel great on the diet YES stay on it because you probably have celiac disease not just an allergy to wheat

bonnieo Rookie

Sarah,

Above you say that anyone who produces IgA and IgG anti-gliadin antibodies needs to avoid gluten to be healthy. I wonder if you could help me understand this further. My son's blood tests show he is producing both of these (as well as IgG to casein). But the doctor has advised me to remove only milk (in all its forms) from his diet. I'm wondering why he hasn't recommended removing gluten.

Thanks,

JO

Guest gillian502

Also I know that if a person produces only Igg antibodies, there is a chance they have another, different illness going on, not always celiac disease. But IgA and Ttg usually mean Celiac.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mark Newbie

IgA and IgG anti-gliadin test could be false positive sometimes, especially when there is another illness going on (as Gillian has already mentioned). But it tells you there IS something wrong about gliadin, and I would rather support Sarah over your doc.

MARK

gluten-free/CF since September 03

bob Newbie

I too am sticking reluctantly to a gluten-free diet having been diagnosed with celiac disease by an endosocopy. I have had 2 follow-up endoscopies and my gut hasn't grown back (refractory sprue?). My doctor doesn't want to know any more, I get the feeling he doesn't believe I'm totally gluten free, but I know I am.

Strange thing is, I am pleased to say I feel absolutely fine. My adverse symptoms didn't go away by going gluten-free. but by eating little and often, avoiding excess alcohol, stress and taking plenty of exercise.

Everyone says how dangerous (eg Cancer, Osteoporosis) it is to carry on eating gluten when you've been diagnosed as celiac disease. I have read the science and I respect that.

But I would be interested out of curiosity to see the stats. Is there a PROVED correlation between, say, deaths by Cancer of the Oesophagus and celiac disease, in the same way as there is between Lung Cancer and smoking?

Bob

tarnalberry Community Regular

This article in the American Journal of Managed Care Open Original Shared Link certainly implies that it is well-researched causation with lymphoma.

This article in a Polish journal Open Original Shared Link certainly implies there is a well-researched link with impared fertility.

This article in the European Journal of Gastroenterologic Hepatology Open Original Shared Link investigates the relationship to malabsorption.

You can find a lot of other research on Open Original Shared Link.

bob Newbie

Tiffany, thanks for that.

Best regards, Bob

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.