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Worried I May Have Celiac Disease?


Adams

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Adams Newbie

Hi there, I'm already booking a doctors appointment for tomorrow regardless as I'd like to know what's up with me but I thought id ask some personal opinions on here aswell.

For the last couple of months I've been really fatigued and thought nothing of it just being tired from work etc but over the past couple of weeks I've been getting some strange symptoms. For as long as I've remembered I've always suffered from migraines, I've seen an eye specialist and I don't need glasses and no further tests was done but that was about 7/8 years ago and maybe not relevant but I thought I'd mention it.

I've been getting a numbing pain in my right leg which is also accompanied with an itching that I can't seem to relieve by itching it feels like it's under the skin. The numbing feels like my leg is going dead and it goes really weak.

My stomach is really bloated I almost look malnourished, this is all of the time. I know it's not weight gain I am 10st 13lb and 5ft 8" and have stayed at this weight for about 6 months I've lost about a stone in the past 12 months but none recently.

I have really bad wind, nothing special but it causes me quite a bit of pain.

I get an awful awful pain in the top of my back/under shoulder blades after eating/drinking , and this pain really hurts. If I manage to fall asleep with the pain I can wake up and still have it it's a real sharp pain.

I get a dull pain in my perineum "gooch", if I jump of a small wall for a example or sneeze to hard.

On Thursday I ate a ham and cheese sandwich, after I felt really sick and I'll I took a couple of ibuprofen and it helped for a few hours I came home from work and felt awful again had a little tea (pizza, potato wedges ) and was up all night spewing and dizzy. I haven't eaten properly since then, just small bits and plenty of fluid to keep me going but every time I eat it makes me feel awful and sick. My stomach churns and I can feel and hear it. I went to the toilet today and my stool was very pale and you could say slimy. It looked very organ like sorry to sound disgusting.

These symptoms may not all be related but that's all I can think of, does this sound like it could be celiac a or anything else anyone may know of? as I said I'm off to the doctors tomorrow so I should know soon enough but any reply would be greatly appreciated. Thank you


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iloathegluten Newbie

Definitely possible! Worth looking into for sure. Your symptoms sound similar to a lot of mine.

 

Other GI conditions I can think of that might fit your symptoms would be:

--small bowel bacterial overgrowth - I was just diagnosed with this. Even if you aren't Celiac, it can cause extreme sensitivity to gluten, and most people with it do better gluten free.

--gallstones/gallbladder issues

--IBD - Crohn's or Ulcerative Colitis can cause many of the same symptoms Celiac does.

--the dreaded IBS diagnosis

--food allergy/food sensitivity to one or more foods

 

The tricky thing about GI symptoms is the symptoms overlap on most of the conditions out there, so you'll have to see a doctor to determine what exactly is causing your symptoms. Definitely talk to a doctor about it and if necessary be forceful about getting tested for Celiac Disease and other GI conditions, even and ESPECIALLY if the doctor doesn't want to run the tests. My symptoms were written off as IBS throughout high school and most of college. I'd hate to see this happen to someone else!

meathead Rookie

Yeah it does sounds like you could well be celiac or sensitive to gluten. I had pretty much all the symptoms you have described before going gluten free. The best thing you could do is go to the doctor and see what they say. Most doctors don't seem to be clued in when it comes to food allergies so if they don't help you should definitely try a gluten free diet and see how you feel after a couple of weeks. Be sure and let us know. 

 

Good luck (:

Adams Newbie

Thanks for the replys, very informative and helped. Sometimes I feel a bit hypocondriac but I know there's something I can feel it. I'm at the doctors as I reply so as soon as I've been in ill update on what she said. Thank you!

Adams Newbie

I spoke to the doctor explained everything and he perscribed me with some omeprazole it says it reduces your stomach acid and he said if the problems persist to go back in 2/3 days. Does anyone know if it was celiac would omeprazole help or many any difference? All I can do is take them and see how it goes. Will keep this updated on what happens. Thanks again !!

kareng Grand Master

I spoke to the doctor explained everything and he perscribed me with some omeprazole it says it reduces your stomach acid and he said if the problems persist to go back in 2/3 days. Does anyone know if it was celiac would omeprazole help or many any difference? All I can do is take them and see how it goes. Will keep this updated on what happens. Thanks again !!

 

 

Shouldn't make any difference with Celiac disease. Supposed to help with reflux/acid indigestion symptoms.  Not sure how that helps with fatigue and your other symptoms?  If this were me, I would go back and ask for some real help.  Maybe take someone with you to help you stay on track?  Write down your questions and problems and ask what he is doing about each one.

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      In the U.S., most regular wheat breads are required to be enriched with certain B-vitamins and iron, but gluten-free breads are not required to be. Since many gluten-free products are not enriched, we usually encourage people with celiac disease to consider a multivitamin.  In the early 1900s, refined white flour replaced whole grains, and people began developing serious vitamin-deficiency diseases: Beriberi → caused by a lack of thiamin (vitamin B1) Pellagra → caused by a lack of niacin (vitamin B3) Anemia → linked to low iron and lack of folate By the 1930s–40s, these problems were common in the U.S., especially in poorer regions. Public-health officials responded by requiring wheat flour and the breads made from it to be “enriched” with thiamin, riboflavin, niacin, and iron. Folic acid was added later (1998) to prevent neural-tube birth defects. Why gluten-free bread isn’t required to be enriched? The U.S. enrichment standards were written specifically for wheat flour. Gluten-free breads use rice, tapioca, corn, sorghum, etc.—so they fall outside that rule—but they probably should be for the same reason wheat products are.
    • Scott Adams
      Keep in mind that there are drawbacks to a formal diagnosis, for example more expensive life and private health insurance, as well as possibly needing to disclose it on job applications. Normally I am in favor of the formal diagnosis process, but if you've already figured out that you can't tolerate gluten and will likely stay gluten-free anyway, I wanted to at least mention the possible negative sides of having a formal diagnosis. While I understand wanting a formal diagnosis, it sounds like she will likely remain gluten-free either way, even if she should test negative for celiac disease (Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If her symptoms go away on a gluten-free diet, it would likely signal NCGS).        
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      Thanks for this Russ, and good to see that it is fortified. I spend too much time looking for M&S gluten-free Iced Spiced Buns to have ever noticed this! That's interesting, Scott.  Have manufacturers ever said why that should be the case?  
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