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[suz2024]

Good afternoon. I have recently been diagnosed with Grave's (hyperthyroidism) and was informed about the relationship with celiac disease, which I have many symptoms for. I will be having blood work done within the week to see if I do have celiac disease. In the interim, my mom got tested and she has Grave's and she tested positive for wheat, barley, oat food allergy years ago. My 15-mo-daughter has a few health concerns: at 2-months she was diagnosed with GERD; at 6-months it was suspected that she was not thriving on my breastmilk so we put her on formula, she broke out in hives so we switched her to Alimentum and the hives went away; at 8-months we started solids and everytime we introduced meats she would hive; by 1-year we had her tested for common food allergies and she tested negative so we started her on whole milk and back on all solids but she would continue to hive when she ate chicken so we took her off chicken & eggs. Another reaction she gets to chicken & eggs - hyperactivity. She would be up until 3-4 in the morning wide awake. So here we are at 15-months and I find out about celiac disease. She has had 4 seperate asthma episodes, and she is now on Zyrtec & Singulair. Seperately, she does have the bloated belly occassionally, and I am going to start a food diary to see if there is any correlation between gluten and her distended belly. Her ped's Dr and I discussed that if I test positive and since my mother is positive, then we are going on the assumption that she is as well and I will put her on the Gluten-free diet. Has anyone else experienced negative allergy responses yet still experienced celiac disease symptoms? Could her hyperactivity (and hives) be a result of celiac disease rather than exposure to chicken & eggs?

Thank you for your responses, help and support.

[Kasey'sMom]

Hi,

Welcome to the forum!

I did a food diary with my dd and it really helped us look at her diet more closely. She had to go to several different Dr's and it was very helpful for each Dr. to be able to examine her diet, symptoms and their relationship.

Hives, eczema/psoriasis were the very first things we noticed with my dd around age 2. After that point we started noticing her digestive issues. Although, looking back she had colic and reflux as a baby.

She also has inhalant allergies, Ige to egg and several other delyed food allergies/Igg. After she eats some foods we can make an immediate, physical connection to, like soy. When she eats soy (Igg reaction) her mouth breaks out in hives. She seems to break out from tomatos but she did not test positive for tomatos on any of the tests we've had done. This is why the diary was so helpful for us. We can tell a difference in her emotions with both gluten and her allergic triggers. My dd improved on a gluten-free diet and even more so when we discoverd that other foods were a culprit as well.

Some of us with celiac disease have allergies as well but some people don't.

What type of allergy testing did you have done, RAST?

[suz2024]

The allergist checked off a bunch of different food types on a menu type list which we brought to the lab tech. I guess I should have asked more questions. I do know that my ped's Dr wants to have her try the new ImmunoCAP test when she turns 18-months.

It is amazing how her disposition changes in reaction to chicken and eggs. The other day she had mayo and we were up for a few hours until she calmed down enough to go to sleep.

Thanks for your quick response. Suz

[Ursa Major]

Suz, ALL the symptoms your daughter has could be celiac disease related, including the asthma, I just learned from my research. I've had asthma most of my life. By the time I was four I had terrible muscle pains, by the time I was eight the awful backaches started, and so did the depression.

Don't wait for testing to be done, put her on the gluten-free diet right now and see if it makes a difference! You don't want to risk for her to develop more problems (like diabetes, for instance), and the muscle pain etc. is not something I'd wish on her, either. If she responds positively, that's all the evidence you'll really need.