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Auntie_Manda

Ridiculous Conversations

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When I was first DX'd and was telling hubbs about it. He said the same thing "You can have some It won't hurt you" I said "yes it will hurt me! It's like eating Poison Ivy" I does get the Gluten thing now. But now trying to get him to understand the Corn thing sighhhh. 

Hmm, I like that "it's like eating poison ivy!" 

 

It sure is! I think I'll be using that one to explain this to my family. 

I'm going home for a visit in a few months and am already dreading the fights that will no doubt come from my mother saying "Oh, come on, you're being ridiculous." Sigh. 

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Someone had the nerve to suggest that I eat red fife wheat - because it's got 20% more protein than the GMO wheat flours. I'm sorry - Did you say I should eat wheat? I'm Celiac!! Don't you people get it!!!!

 

Ignorance... just plain ignorance. But don't you worry - I set him straight. 

 

 

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Ah, I have to laugh at stuff like this.  If one didn't laugh they would have to cry!  My dentist had been discussing my celiac with me.  Then he started talking about which restaurant to get the best pie at.  Ha, Right?  I just don't care about where to get the best pie.  I say, people just don't understand, even if they ought to.  I didn't set him straight.  It is hard to talk with fingers in your mouth. 

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I have really bad issues with CC and its funny when people like my mom will be like: "Oh, I'll just scrape the pumpkin part off for you and I'll eat the crust part." Erm..no, they touched. Its like talking to people about food cooties. I went to Taco Bell last week and they were being super awesome about my food...then the lady goes "Well our beef has it in it..in fact all beef has gluten in it..you should stop eating beef." Lady, 10 seconds ago you did not know what gluten was...and now you are telling me which foods its in??? 

 

 

BTW taco bell ground beef does have tons and tons of gluten in it (wheat and gluten) are labeled separately on their label. 

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If you want a good laugh, along with several eye-rolling "SERIOUSLY PEOPLE???" moments... read the "Ridiculous Conversations" thread.  It's a mix of funny and clueless-stupid-human-tricks.  A good read. 

(I actually had someone try to tell me Italian Bread would be ok.  I guess because it's white.  <set sarcasm on>  If it's white it can't possibly have wheat in it, right??? <set sarcasm off>

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Thanks for putting it in the right spot Colleen. I was so aggravated this morning I wasn't thinking straight.

this is exactly what was written to me - on another forum for bodybuilding (where I was Not asking for advice on this topic, either, btw):

 

'Hi Jamie, it occurred to me that you may want to look the possibility of cooking with flour from a heritage variety of wheat called "Red Fife". This variety of wheat has a naturally occurring protein content of greater than 20% and most celiacs can tolerate it - the gluten proteins are sequenced differently from your standard GMO wheat flour. Of course, talk to your doctor first... If you need more information, just ask."

 

Like I am gonna ask for information from you?!

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Thanks for putting it in the right spot Colleen. I was so aggravated this morning I wasn't thinking straight.

this is exactly what was written to me - on another forum for bodybuilding (where I was Not asking for advice on this topic, either, btw):

 

'Hi Jamie, it occurred to me that you may want to look the possibility of cooking with flour from a heritage variety of wheat called "Red Fife". This variety of wheat has a naturally occurring protein content of greater than 20% and most celiacs can tolerate it - the gluten proteins are sequenced differently from your standard GMO wheat flour. Of course, talk to your doctor first... If you need more information, just ask."

 

Like I am gonna ask for information from you?!

 

 

That person is really confused.  We don't even eat GMO wheat.  And a gluten protein is a gluten protein.  Its dangerous how much that guy doesn't know he doesn't know!

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That person is really confused.  We don't even eat GMO wheat.  And a gluten protein is a gluten protein.  Its dangerous how much that guy doesn't know he doesn't know!

Yes - and he calls himself a healthy chef. I think this chef needs to learn a few things before he makes suggestions on what people with Celiac Disease should eat. I told him no way in hell would I eat wheat. He has not replied... idiot.

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Yes - and he calls himself a healthy chef. I think this chef needs to learn a few things before he makes suggestions on what people with Celiac Disease should eat. I told him no way in hell would I eat wheat. He has not replied... idiot.

 

 

We have had a few people with "healthy Chef" in their names try to post here.  Probably one of them, mad because we wouldn't approve their advertisements in their posts, taking it out on Celiacs.   :ph34r:

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We have had a few people with "healthy Chef" in their names try to post here.  Probably one of them, mad because we wouldn't approve their advertisements in their posts, taking it out on Celiacs.   :ph34r:

 

Jeez!! People are really that set on giving out misinformation that makes people sick!? What is wrong with people. ::Shake my head::

This one really got to me. Because it perpetuates the ignorance. Some poor uninformed Celiac could read what he wrote, look at his handle, and think - wow I can eat wheat again. WRONG. So sad.

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People believe what they want to believe. I know a celiac who gave up coffee because it is "cross-reactive"(myth), but still insists that celiacs can eat sourdough bread (worse myth).

 

You can tell these people 'til you're blue in the face but they just won't listen. You can point them to reputable websites, but they'd rather believe the people who are lying to them so they can sell something.

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People believe what they want to believe. I know a celiac who gave up coffee because it is "cross-reactive"(myth), but still insists that celiacs can eat sourdough bread (worse myth).

 

You can tell these people 'til you're blue in the face but they just won't listen. You can point them to reputable websites, but they'd rather believe the people who are lying to them so they can sell something.

 

Sometimes I have the urge to bang my head on a brick wall because it would be less painful than the stupidity we are surrounded by. I couldn't stand being around someone like that, it would make me positively crazy. I may have been taught that if I don't have anything nice to say, not to say anything at all... but I never learned not to have "looks" and I'm sure the disdain would show clearly. I actually find myself in trouble this way a lot and have to make quick excuses and cover up with white lies. :ph34r:

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I usually point people to this website, and if they choose not to come, or to believe what they want to believe, I just let it go. In the end, we are all responsible for our own health, and while I'd like to help others I refuse to let it upset me when they ignore the truth. (I try to keep in mind all the folks who have tried to get me to quit smoking. :lol: If they can put up with the frustration of seeing me not heed their advice, I guess I can put up with them.)

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A few weeks back I was watching a newscast on a TV that had closed captioning turned on.  They mentioned celiac disease and on the closed captioning, -I swear to god I am not making this up-... said Silly Yak disease.  I was in tears I was laughing so hard.  I wish I could have gotten a screen grab of that.  What makes it even more funny to me is that my husband has taken the silly yak thing and ran with it.  He calls me his silly yak girl, and especially when I am sad about something I can't eat, he will start making yak sounds at me and stuff while hugging me.  He is such a goofball but the humor really helps when I am bummed out.

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Just yesterday in the recovery room after having my endoscopy (which confirmed Celiac) the nurse offers me juice and a snack.  I ask her if they have anything gluten free (I went gluten free a month ago after getting the positive blood test results), which they do - so she brings me gluten free cookies.  Then she kinda starts talking to me for a bit about the whole gluten thing:

 

Nurse: so what were your symptoms?

Me: I actually didn't have any symptoms  (sidenote: I'm one of the few asymptomatic Celiac people)

Nurse:  Oh!  You don't have any symptoms yet?  Do you want something else then?  We have Fig Newtons. :unsure:

Me: Uh... no thanks.  I have Celiac.  I'm going Gluten Free so that I don't end up getting symptoms... ya know, like Diabetes, Thyroid Issues, and Cancer... But thanks anyways. :angry:

Ha, ha, I was in exactly the same situation just last week.... In the recovery room after my endoscopy, where the surgeon had explained that he had seen abnormalities in the lining that he was confident suggested celiac, the nurse who assisted during the procedure said to me... "Now, pet, you sit here for a bit and I'll bring you a nice cup of tea and a biscuit! That's the best part, isn't it? " I asked in return, " is the biscuit gluten free? , she said, " what's that??"

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I have actually been very lucky with my family... Before I had my endoscopy which confirmed what I already knew, I had already been gluten free for two months - and I had to do a gluten challenge for the diagnosis... When I timidly started cooking gluten free I would at first do one thing for myself and another for everyone else, and one day my daughters asked me why I did this- I explained and they said- but mummy, you don't need to do that we also want to have the same noodles, etc WE ALSO WANT TO BE GLUTEN FREE!!! So now we are all gluten free, even my husband thinks it is great, he feels soo much better!! I think we probably all have to be tested! - my children are already booked in for a test...

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I just had to share a funny conversation that I had today.

 

I was texting my mom and talking about how I've been sick the past week or so, and she asked me, "Why don't you just come back to the U.S. where celiac will be easier to deal with?"

 

And I start to think "Hey! Maybe my mom is getting it! She's really getting this whole celiac thing and being super understanding!"

 

And then she says...

 

"And I'll make you chicken noodle soup!"

 

Fail. 

 

Lol. It made me laugh so hard. 

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I just had to share a funny conversation that I had today.

 

I was texting my mom and talking about how I've been sick the past week or so, and she asked me, "Why don't you just come back to the U.S. where celiac will be easier to deal with?"

 

And I start to think "Hey! Maybe my mom is getting it! She's really getting this whole celiac thing and being super understanding!"

 

And then she says...

 

"And I'll make you chicken noodle soup!"

 

Fail. 

 

Lol. It made me laugh so hard. 

 

She might have intended to make it with gluten-free noodles......? Probably not, lol.

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A few weeks back I was watching a newscast on a TV that had closed captioning turned on.  They mentioned celiac disease and on the closed captioning, -I swear to god I am not making this up-... said Silly Yak disease.  I was in tears I was laughing so hard.  I wish I could have gotten a screen grab of that.  What makes it even more funny to me is that my husband has taken the silly yak thing and ran with it.  He calls me his silly yak girl, and especially when I am sad about something I can't eat, he will start making yak sounds at me and stuff while hugging me.  He is such a goofball but the humor really helps when I am bummed out.

 

Silly Yaks is a term of endearment around here  :D   Welcome to the Club !!

 

Colleen

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Here's my take on it.

 

People who do not have Celiac/NCGI just don't know the ins and outs of the Disease.  I liken it to someone who has a rare disease that I haven't had any experience with.  It's not that I'm ignorant, I am just ignorant about that particular disease.  Now when you explain it fully to friends or family members and they still don't get it, then they probably just don't want to be involved and that's ok too.  

 

Colleen

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She might have intended to make it with gluten-free noodles......? Probably not, lol.

 

 

Haha, I wish, but no, I don't think so. I told her that it would make me sick, and she said, "Not if you mom makes it for you!"

Ahh….I find it more funny than anything. Though I have gotten frustrated with my mom because she hasn't really made any effort to understand. That kind of stinks. But it is what it is, I'm not losing sleep over it. 

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I posted that I made red velvet cupcakes in another thread. I took those red velvet cupcakes to my sisters Dove Chocolate Party that she was having. I knew from the get-go that there was nothing safe for me to eat there. I looked through the catalog and much of it had the wheat allergen warning. So anyway- you meet all different sorts of people at these parties. (Which I hate these types of parties - the only reason I went is because my best friend wanted to go and I haven't seen her since Friendsgiving in November) Anywho - I was offering them out to the guests and one girl whom I hadn't met before wrinkled her nose and said 'those are gluten free?' and I said 'yes' and she said with the snootiest voice ' I guess I can try one. '

 

RUDE much! Everyone else was happy to eat one or more and told me they couldn't even tell the difference. But that girl.. she just had that rude attitude. I'm over it but I did notice the social awkwardness.

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If it wouldn't have been a waste of your cake I could've thought of a better place for it to go ;) That's her problem and her social awkwardness, though. 

Someone on here mentioned the thing where people get vegan and gluten free confused... Happened to me at New Year! After the poor girl had gone to the effort of making vegan brownies too :\ 

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