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Glutened, And Furious

Patt

By Patt
in Coping with Celiac Disease

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Patt Explorer
Patt
Posted

Ok so, yesterday I visited my usual sushi restaurant. I will not be going back because the waitress is not really bright in any aspect (besides allergy knowledge) the only thing I can figure is she switched the soy sauce because I didn't try anything new.

20 minutes later I had an emergency bathroom meeting. I had the runs and it came out just like water. I didn't realize It could happen so fast

But anyway, later in the evening I had a workshop to attend and though my bf pissed me off I reacted so severely I nearly broke up with him because he cant put his phone down when I am talking to him.

My question is How long does it take a cross contamination to get out of my system?

I'm at the point where I am extremely tired of explaining my condition to everyone and I am seriously tempted to reach for that slice of pizza and show the world what its like in my shoes.

I want everyone to quit asking me and just demonstrate.

maybe then people will seriously reconsider if its worth asking me if I want that slice of cake!

 

Thoughts?

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cyclinglady Grand Master
cyclinglady
Posted

I am so sorry! I understand your frustration!

It takes me a week or more to recover from a glutening. Symptoms lessen as time goes on. Everyone is different. I can tell you that I ALWAYS talk to the manager/head chef regardless of how knowledgeable the waiter seems to be. My hubby and kid used to be embarrassed by this, but they went out last night (I stayed home in order to meet a deadline) and my husband said he grilled the manager of one of our usual haunts. He said that he notices that the risk goes down if he does that (he said it rather sheepishly, too). The kid? She's a teen and is always embarrassed by us!

I hope you feel better soon.

Patt Explorer
Patt
Posted
  • Author

Here is another question. I am in the middle of writing up some legal paperwork for my lawyer (divorce) and am supposed to meet with him sometime next week or ASAP

if it takes a full week to clear

Im guessing this weekend is probably not the best time to experiment?

cyclinglady Grand Master
cyclinglady
Posted

Are you serious? I thought you were just venting!

Go ahead, if you plan on dragging everyone into the restroom with you. You might make your point or you might just hurt yourself (hard to write a paper when you feel like crap, no pun intended! ) Better yet, spend your time educating the lame people around you. I sat my family down (Yep, even those eye-rolling relatives) and explained celiac disease and had some hand outs and a copy of my lab tests. I kid you not! I told them that they need to be supportive of me and that I am not a hypochondriac! Granted the old folks were the hardest to deal with, but guess what? Others in our family have discovered that they have it to. Makes for a nice gluten-free Thanksgiving!

Patt Explorer
Patt
Posted
  • Author

Lol. I bet. I guess im just almost over the edge.

I am not diagnosed celiac. I find this frustrating because people don't seem to believe me when I say It causes me problems. I feel like I have to prove it

Im still getting over the contamination from yesterday so I should probably wait until I know I have my head on straight.

Whats concerning me is that If I only had a bit of regular soya sauce and reacted this strongly what would a real mishap look like

cyclinglady Grand Master
cyclinglady
Posted

I understand! My husband went gluten free per the advice of my allergist and his GP. Amazingly, he got well! But he would be the first to say that I have received much more support from family and friends with an official diagnosis. We think he really has it based on his previous symptoms, reactions now to gluten and that his family has so many autoimmune disorders (Hashi's, MS, etc.). He refuses to do a gluten challenge because he knows it will make him sick. It has been 14 years since he went gluten free.

He did get a lot of eye rolling, but I have been supportive always and cooked gluten free. I guess it was because I had so many allergies and could relate. Now, folks just assume we both have celiac disease.

I encourage everyone to get tested, but that is not always possible. I wish a celiac disease diagnosis could be easier and cheaper!

JamieZer0 Newbie
JamieZer0
Posted

I can relate! I get furious first. Even a small amount will send me into a fit and then depression kicks in. Depending on the severity of my glutening I also run for the bathroom with in 15 to 30 min. Takes me atleast 72 hours to a week again depending how much gluten I ingested to get over it. I suggest no eating out ever again! Not worth it! I have learned not to care what anyone else thinks but my very close family and boyfriend. I see gluten like a demon just looking to ripe your life apart. Don't let it! You do have control over this! I try to put a face to the gluten and forgive it fast! Realize it's not you that's acting like this it's the demon gluten taking over your brain! You don't need to prove to anyone that you are indeed effected greetly by gluten. Listen to your body and focus strongly on the posotive. I know your pain and hope you can find the balance you need in life to overcome the demon I call gluten!

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Patt Explorer
Patt
Posted
  • Author

im going through a bad divorce too. not helping. I get suspicious and stop talking to everyone. I wish I had a friend who lived here who could relate, because really no one gets it

My GP (Canada) just keeps telling me my blood work doesn't show the antibodies. I've been curious about full testing but with this divorce its hard enough on all of us already. I don't need another reason to get upset.

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