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Tummy Troubles


mpflynn

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mpflynn Newbie

I know for you celiac veterans this probably will all sound silly, but I would love any guidance. I know no one else with celiac and only have knowledge in what cites like celiac.com tell me. I am far from any specialist, I live in the middle of nowhere! I so appreciate any thoughts thank you

I have been gluten free for two years now but some things have never been resolved, despite my being off of gluten.

It only happens after I eat, and it it usually high glycemic, or sugary foods such as fruit, pop. etc. I often feel very faint, and think it may be tied to a lack of electrolytes such as salt in my diet (but I'm not sure at all) I take multivitamins and magnesium with electrolytes but it doesn't seem to solve the issue. Im not for sure why, but I had a passing out episode a little over a year and a half ago and the doctors could not find anything wrong, but a bananana with all that potassium fixed it! So I eat bannas whenever I am faint, which is very often! ( despite the feeling so hyper then drunk/exhausted afterwards)I am always thirsty, I drink roughly a gallon of water a day! I am weak (muscle weakness), exhausteed often, I sleep 8-10 hours a night and it doesn't seem enough. I don't digest fruit, or dairy well maybe that has something to do with it. Yes I know I said I eat bananas because the potassium seems to help the dizzy spells but then my tummy is upset.

I truly live off kefir, that yogurt probiotic drink ( I homemake my own from milk and kefir grains) it is the only thing that helps my tummy digest what I eat! and it is the only advice my general doctor could give me! If I go too many days without kefir, I am in severe pain as if I'd eaten gluten and I become constipated and nauseous. These issues have tampered with my daily life but I've learned to cope as best I can but in the last week something strange has happened.

Almost everyday for the last 8 days, I have experienced extreme gas within an hour of eating, my stomach (especiallly small intestine region or very low abdomen) swells with gas and I have resulting diahrea roughly four times a day. I have tried changing what I eat, but the problem keeps reoccuring. It never goes away!

On a side note, I eat bananas and berries regularly and never had issues before!! but it should be mentioned that my father can hardly digest any fruit, sugar, or dairy, and it is similar with my brother. Although they do not have an issue with gluten or any signs of celiac. This fruit thing could be my issue but I read some of the forums and a lady with almost identical symptoms was told in the comments about a Candida infection and or alchohol poisining from food furmenting in the gut!!! That would explain my weakness and often "drunk" behavior that has no explination other than eating fruits/sugars.

thank you for the suggestions!


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celiac sharon Apprentice

Sure you could be sensitive to FODMAPS, but also consider getting your B vitamins checked. My B1 and B2 were unmeasurably low, and they affect you neurologically and muscle weakness. On a positive note, now, 4 1/2 years later I only supplement with a MVI and my B's are okay. Takes a long time to heal the gut.

GF Lover Rising Star

With as much of Kefir as your eating/drinking you may have a yeast infection.  The gut also needs bad bacteria as well as good.  You might be unbalanced.  I would get checked for candida.

 

You could cut back on Kefir ( alot ) and see what happens or take out the fructose or the dairy.  Only cut 1 thing at a time so you know if that particular thing is affecting you. 

 

Colleen

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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