Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Struggle Steet


webbooo

Recommended Posts

webbooo Rookie

Hello, please excuse my rant and wing.

 

I have been Celiac for 5 months and while I have found my anxiety and mood has improved there are on occasions times when I’m really struggling with feeling weak and tied, especially in my arms and legs,  I’ve also lost a lot of weight although my stomach still looks full/fat.  The tied/weakness doesn’t happen all the time but does seem to be a lot, especially recently as well where it comes and goes.   My doctor did some blood tests a while ago and these all came back OK.  I did also see a Naturopath who suggested I eat get more carbs in my diet to help balance my sugar levels which I have tried to do.  I eat an almost full Paleo diet with healthy meals and portion sizes and I still found myself feeling rubbish and if I’m tied at work it’s hard to keep concentrated and productive.  I was originally diagnosed with Celiac disease about 4 months ago and I’m a 35 yr old male.  I don’t want to be super cautious about everything non gluten I eat and beating myself up.

 

I don’t drink alcohol, I don’t smoke,  I usually exercise but can’t with little energy and I eat a good portion of meat/fat so I’m not sure what’s going on.  I’ve done some searching which just leaves me feeling more confused but am just sick of feeling rubbish all the time, it really sucks, and this disease sucks.

 

Its also hard to find good help,  I’m thinking of going back to the doctor but I don’t think he really knows what to look for.

Has anyone else experienced these sorts of symptoms and found ways to overcome it?  I’ve tried being patient with myself but being active is hard.

 

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



smj7159 Newbie

Hi webboo

I understand your frustration. I was diagnosed the day before last Thanksgiving. Most of what I've learned is from my on research. Has your doctor said anything about you taking vitamins and supplements? They made a difference in me. Because of the damage to small intestines, we don't get what our bodies need. I was found to be deficient in iron and B12. These are needed to make new red blood cells that carry oxygen. Lack of these can be what is making you feel tired all the time. Hope this helps.

etbtbfs Rookie

Do you know whether gut dysbiosis set off Hashimoto's that whacked your thyroid? Very common. Unfortunately MDs aren't very good at diagnosis and treatment. Check out the web to see what Kent Holtorf, Mary Shomon, and Dana Trentini have to say.

smj7159 Newbie

I hadn't had any symptoms related to Hashimoto's. All thyroid levels were normal for me, but iron and B12 were very low. I had an upper GI that showed damage to small intestine followed by Celiac serology to confirm Celiac Disease. Supplements have helped me a great deal. I have more energy than I've had in years.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - pilber309 replied to pilber309's topic in Related Issues & Disorders
      13

      Burning Sensation in the small intestine

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      36

      My journey is it gluten or fiber?

    4. - knitty kitty replied to pilber309's topic in Related Issues & Disorders
      13

      Burning Sensation in the small intestine

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,885
    • Most Online (within 30 mins)
      7,748

    Dexterlaundyatgmail.com
    Newest Member
    Dexterlaundyatgmail.com
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
    • pilber309
    • knitty kitty
      You should be fine.  You may start feeling better within a few days.  Someone who is very low in thiamine may notice improvement within hours.   Did you get the NeuroMag  or another magnesium supplement?
    • xxnonamexx
      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
    • knitty kitty
      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.