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Eyes feel weird after getting glutened

kellibee

By kellibee
in Coping with Celiac Disease

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kellibee Newbie
kellibee
Posted

Just wondering if anyone else's eyes feel really weird when they get glutened, as though it's really hard to look at stuff.   My vision itself is fine, but it's almost unbearable to look at things, like that weird feeling when you try on glasses with a prescription that is too strong.  Needless to say, it makes driving and getting through a day of working at a computer pretty rough.  The eye stuff happens along with my other celiac episode symptoms... bloating like I'm 6 months pregnant, brain fog, headache, awful anxiety, muscle tension, joint pain, exhaustion and an unhappy digestive system all at the same time, so I know it's related.  I have just never seen anyone else mention this particular symptom and am wondering if it happens to anyone else.   Thanks all!

 

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mgrant7209 Newbie
mgrant7209
Posted

Yep, I do. My left eye crosses while my right eye looks straight ahead. I have to cover up the left eye if I want to focus on anything. It last anywhere from 10 -60 minutes.

rockstarkate Rookie
rockstarkate
Posted

YES! This is one of my major symptoms and I didn't even realize it before I was diagnosed and went gluten free. About a week after going gluten-free, I walked outside and looked around and thought "OMG, everything is so sharp!" It was like someone had switched me from standard definition to high definition. 

The few times I have gotten glutened through cross contamination since then, I notice it the next morning when everything is blurry, especially through my left eye. I am near-sighted and have worn glasses since I was 5, and I had to go get new glasses because my eyesight improved that much.

Pegleg84 Collaborator
Pegleg84
Posted

Yup. I have bad vision as it is, but glutenings (or with me, getting into anything that bothers my gut) make my eyes go even more wonky. Aside from difficulty focusing, it feels like there's a film over my eyes: like my glasses are dirty despite having cleaned them a million times. I wouldn't say that it's hard to look at things, but definitely feel more sensitive to bright light, and it's generally harder to focus.

I don't really know what to do about it, other than rest your eyes as much as you can (which can be difficult when your job might involve staring and a screen)

rockstarkate Rookie
rockstarkate
Posted

"film over my eyes" is a great description. It makes me want to put a lot of drops in my eyes, but it doesn't actually help.

kellibee Newbie
kellibee
Posted
  • Author

Wow, so interesting to read your responses!  I'm a little relieved it's not just me. Celiac is one strange disease! 

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    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, you had both and endoscopy with biopsy and a colonoscopy. That helps me understand what you were trying to communicate. No, no! It never occurred to me that you were trying to mislead me. It's just that we get a lot of posters on the forum who are misinformed about what celiac disease is and how it is diagnosed so I need some clarification from you which you were so gracious to give.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I had both the genetic genes for celiac.  My gastroenologist advised he also took a biopsy during one of my colonoscopies and endoscopy and advised I had celiac disease, along with stomach ulcers from my esophagus stomach down to my small bowel. I was shown the ulcers on the catscan and endoscopy report.  I also had polyps in 3 places throughout my large bowel. I was on a strict diet for months following.  I am sorry if I didnt define how I was diagnosed with celiac disease.  I am sorry if you think I was misleading you. I also had to pay $150.00 for the genetic testing.
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      So, I'm a little confused here. I understand you to say that you have not been officially diagnosed with celiac disease. Is this correct?  You have had genetic testing done to check for the potential for developing celiac disease and that was positive. Is this correct? I think you meant to type "gluten sensitivity" but you typed "gluten insensitivity". Just so we are clear about the terminology, there is celiac disease and there is NCGS (Non Celiac Gluten Sensitivity). They are not the same but they have overlapping symptoms. Celiac disease causes damage to the small bowel lining but NCGS does not. NCGS is often referred to in short form as gluten sensitivity. However, people often use the terms celiac disease and gluten sensitivity interchangeably so it can be unclear which disease they are referring to. Genetic testing cannot be used to diagnose celiac disease but it can be used to establish the potential to develop active celiac disease. About 40% of the general population has one or both of  the genes that have been most strongly connected with the potential to develop active celiac disease but only about 1% of the population actually develops active celiac disease. This makes the genetic test useful for ruling out celiac disease but not for diagnosing it. A colonoscopy cannot be used to diagnose celiac disease because it doesn't permit the scope to go up into the small bowel where celiac disease does the damage. They use an endoscopy ("upper GI) for checking the small bowel lining for celiac damage.
    • barb simkin
      celiac, chocolate and alcohol

      By barb simkin · Posted

      I did nor read the chocolate pkg as it was of fered to me and I ate 2 pcs. I do know that only very dark chocolate and and a very few others are gluten free. Most alcohols contain gluten. I have several yrs of not knowing my celiac condition as docs would not do the test. After looking on the internet about my sufferings I insisted on the gene trsting which showed positive for gluten insensitivity and a biopsy on my next colonoscopy that also showed positive which could not help the damage done to my small bowel. So I very rarely have a glass of wine
    • trents
      celiac, chocolate and alcohol

      By trents · Posted

      @barb simkin, are you sure the chocolate products are gluten-free and not "manufactured on equipment that also handles wheat products and tree nuts", i.e., cross-contamination? And what kind of alcoholic beverages are we talking about? Most beers are made from gluten-containing grains. Just checking.
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