New Celiac Mom

[Marcindy3]

My ten yr old daughter was dx approx 2 weeks ago w/ Celiac via blood test & biopsy. She wouldn't stop vomiting. She was in two different hospitals & it was a pretty trying time. Once we came home, we decided we'd all go gluten free. She did great for one week & then the vomiting began again. Back to the dr & they said no dairy but lactose free would be ok. Well apparently lactose free isn't ok because the vomiting has continued. This morning she vomited up even Popsicles. She's kept dry toast down for 2 hours now. Every minute I'm holding my breath praying she's not running to vomit. She can't keep any anti-nausea meds down. Any suggestions? I'm feeling very overwhelmed. 

[cjmm2002]

I have no answers, but I wanted to let you know that I am thinking about your daughter and you.

 

[Centime]

Did you replace your open jars of peanut butter? jelly?  Anything that might have residual crumbs?  Are you using the same old toaster? Did you buy a new colander for pasta? All things you don't always think about, but she might have been accidentally eating gluten.  I'm sorry for the diagnosis, my daughter was diagnosed at 10 as well, so I know how hard it is.

[MissyBB]

I'm sorry you are going through this. It must be so hard. Is it possible she is getting cross contaminated at home? if you are using old bowls, plastic bowls, cups, anything that was used when you all consume gluten it sometimes sticks in the small scratches etc of cookware or mixing bowls. Also, wooden spoons, the cutting board, toaster etc.

Could you hit the dollar store and purchase a few basic supplies to ONLY use for the family for gluten-free prep and see if her symptoms disappear? If it works you will know she is getting cross-contaminated. Also, is she sharing anything at school?

[Marcindy3]

Thank you all so much. She ended up being admitted to the hospital again d/t celiac & gastroparesis plus she was dehydrated. She still vomits daily but it's less frequent. We're just praying for the day when she doesn't at all. The whole house has went gluten free & we've gotten rid of everything. The Dr said she will continue to vomit for awhile. Did not seem concerned about this. We're just praying it will end soon. 

[frieze]

is she on a PPI?