Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative celiac test


kierra.m

Recommended Posts

kierra.m Newbie

Instead of going to my doctor I went to theranos to get a celiac blood test done. Doctors never seem to want to hear about you diagnosing yourself so I decided against going to the doctor . So my symptoms are/were being bloated after eating, stomach pain, constipation, also diahrea (my poop is always green ik tmi), bad anxiety, depression, irritability, insomnia and anger after consuming a big meal of gluten, I also have a rash on my right leg below my butt I don't think it's dh tho, I'm always thirsty (like I can't get enough water), dizzy spells (fainting and blacking out), my left side of my face tingles (could do with anxiety), my face also feels hot after consuming gluten, I have acne, hip pain and shin inflammation, back pain, and dandruff. My theranos results came back negative with everything ranging from 0-3 so it was super low. I had the celiac panal done. Well anyways I thought maybe it's wrong and went off gluten anyways. This is my 6 day gluten free and my symptoms haven't resolved at all really. My bloating has lessened a tiny bit but I still get bloated after every meal. And im constipated all the time. My poop stopped being green though. I'm not eating dairy right now either. I'm also having worse anxiety and am still depressed. If Im gluten sensitive shouldn't I be feeling better by now? I also live in a house with gluten eating people sense im only 15 but I try hard not to cross contaminate. I eat lots of veggies  (Kale and salads) and lots of nuts and beans and indulge salmon and tuna a few times a week and eat quinoa every morning for breakfast. I'm scared I'm not gluten sensitive and I don't know what to do. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
32 minutes ago, kierra.morris11@gmail.com said:

Instead of going to my doctor I went to theranos to get a celiac blood test done. Doctors never seem to want to hear about you diagnosing yourself so I decided against going to the doctor . So my symptoms are/were being bloated after eating, stomach pain, constipation, also diahrea (my poop is always green ik tmi), bad anxiety, depression, irritability, insomnia and anger after consuming a big meal of gluten, I also have a rash on my right leg below my butt I don't think it's dh tho, I'm always thirsty (like I can't get enough water), dizzy spells (fainting and blacking out), my left side of my face tingles (could do with anxiety), my face also feels hot after consuming gluten, I have acne, hip pain and shin inflammation, back pain, and dandruff. My theranos results came back negative with everything ranging from 0-3 so it was super low. I had the celiac panal done. Well anyways I thought maybe it's wrong and went off gluten anyways. This is my 6 day gluten free and my symptoms haven't resolved at all really. My bloating has lessened a tiny bit but I still get bloated after every meal. And im constipated all the time. My poop stopped being green though. I'm not eating dairy right now either. I'm also having worse anxiety and am still depressed. If Im gluten sensitive shouldn't I be feeling better by now? I also live in a house with gluten eating people sense im only 15 but I try hard not to cross contaminate. I eat lots of veggies  (Kale and salads) and lots of nuts and beans and indulge salmon and tuna a few times a week and eat quinoa every morning for breakfast. I'm scared I'm not gluten sensitive and I don't know what to do. 

It might not be Celiac, if your tests are negative.  Have you been to a doctor and been tested for diabetes or thyroid issues lately?  What are your parents doing about your issues?  Some things like acne and shin splints might be explained by age or activity, but passing out and depression need to be addressed.

SLLRunner Enthusiast

Welcome, Kierra.

You're only 15 so you need to make sure your parents are 100% aware of your medical issues so that they can advocate for you. It may or may not be celiac, but the only way to find out is to start with a full celiac blood panel, then an endoscope if necessary. However, for the tests to be accurate, you must consume gluten on a daily basis. 

Fundog Enthusiast

And as for the green stools, you said you eat a lot of kale and spinach?  A generous, daily diet of kale and spinach will be reflected in the bathroom.  You are what you eat. ;)

 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,460
    • Most Online (within 30 mins)
      7,748

    Jujuzinha
    Newest Member
    Jujuzinha
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.