continued pain, nausea, testing and oats.

[ironictruth]

So, my SIBO breath test was canceled today and rescheduled in a month. This is a test that my celiac specialist wants done. Still no concrete celiac diagnosis. Just duodenitis and some conflicting labs.  I'm frustrated because they cancelled it since I had a CT scan done with Dye apparently I'm not supposed to have that 30 days before the breathe test.

 I woke up this morning pretty nauseated and in pain. I've had a lot of worsening pain since the end of August when I got diagnosed with inflammation in the intestines. I am on a gluten-free diet currently, at least I think. I get an extreme amount of pressure in the right hand side underneath the ribs With pain in the upper mid gut. I do not have a gallbladder.  all scans of the liver and the pancreas look normal as do botH enzymes. They keep running All these crazy test looking for tumors and things that I don't have when really I think I just need to scope me again because he would have gotten worse since the end of August. Might as well go with what we know I do have Going on with me. 

 I tried to settle my stomach this morning with some glutenFreeda oatmeal. Had them before with no problem. I woke up in the middle of the night last night and probably have "Gone" 8 times since then. The first 3 were normal. It's now about 2:30 in the afternoon. Around 10 or 11 o'clock this morning they turned to D. 

 3 hours after eating the oatmeal this morning I had D and it literally looked like somebody had just taken two handfuls of oatmeal and thrown it in the toilet. I know that's too much information I'm sorry. But is that normal? Should you digest things so quickly?  I have been seeing a lot of undigested food recently.  initially I thought it was because of the ppis and acid in the stomach not breaking the food up. They put me on PPis and now we found out I don't actually have gerd. So I've been off of them now for like a week. I know some stuff like lettuce and corn is normal and I assume Oats probably too. But not to the extent that it was today. I could have just dumped a bowl of oatmeal in the toilet. Like I said I have had tHe oatmeal before or recently and didn't have a problem with it.

 I also had a CT scan done recently which showed mild contrast in the cecum and appendix but the doctor did not comment on it. I had a large amount of stool in the bowel which is really weird because I have gone 3 times that day already.

 anyone On undigested oats? How about Transit time? How about horrible pressure in the right hand rib cage? I also have a tremendous amount of pressure in my head now. That was mostly going away it is now starting to come back today. I'm getting really sick of being sick and really just hope I can get a diagnosis soon and move on with my life.

 I  mean I keep taking so much time off of work I barely have any time left now. I already had to go off the payroll back in August for a while. I was debating about going home today and ended up leaving which turned out to be a good thing.

[GFinDC]

Hi Ironic,

Some celiacs do react to oats like they do to wheat, rye and barley.  The thing to do  is stop eating oats for 2 months and see if there is an improvement.

Saying you think you are gluten-free makes me wonder what your confusion is?  Maybe you can simplify your diet so you don't have any doubt about your gluten-free status anymore.  I assume you verified your meds were gluten-free before taking them.  I don't think there are many meds in the USA that contain gluten, but it makes sense to verify since there are no rules preventing it or requiring labeling like there are for foods in the US.

If your gut is already irritated fast transit is not surprising.  Our bodies do try to get well so if they want to get rid of something irritating they have ways of doing it (with foods).

Did the doctors verify you don't have diverticulitis yet?  You need to keep them on their toes!

Recovery from celiac damage is not an overnight thing.  But it helps if you eliminate any foods that are irritating or hard to digest.  Perhaps if you write down everything you are eating, drinking, etc and put things in a "suspicious" list or an "ok for sure" list.  Then drop all the suspicious list items for a few weeks.

Nobody can troubleshoot your diet like you can.  You are the expert on what you are eating that is making you sick. If you approach it as a simple straightforward problem of eliminating possible problem foods items then you should have some success.  If it is a food problem that is.

[ironictruth]

  On 12/8/2016 at 3:02 AM, GFinDC said:

Hi Ironic,

Some celiacs do react to oats like they do to wheat, rye and barley.  The thing to do  is stop eating oats for 2 months and see if there is an improvement.

Saying you think you are gluten-free makes me wonder what your confusion is?  Maybe you can simplify your diet so you don't have any doubt about your gluten-free status anymore.  I assume you verified your meds were gluten-free before taking them.  I don't think there are many meds in the USA that contain gluten, but it makes sense to verify since there are no rules preventing it or requiring labeling like there are for foods in the US.

If your gut is already irritated fast transit is not surprising.  Our bodies do try to get well so if they want to get rid of something irritating they have ways of doing it (with foods).

Did the doctors verify you don't have diverticulitis yet?  You need to keep them on their toes!

Recovery from celiac damage is not an overnight thing.  But it helps if you eliminate any foods that are irritating or hard to digest.  Perhaps if you write down everything you are eating, drinking, etc and put things in a "suspicious" list or an "ok for sure" list.  Then drop all the suspicious list items for a few weeks.

Nobody can troubleshoot your diet like you can.  You are the expert on what you are eating that is making you sick. If you approach it as a simple straightforward problem of eliminating possible problem foods items then you should have some success.  If it is a food problem that is.

Expand Quote  

Hello, all my meds/vitamins say gluten-free on them except 2, and I looked them both up. Docs did an endo and colonoscopy, I assume they would have seen diverticulitis? 

I eat whole foods and certified gluten-free only. Except for a few things, salad dressing that contains no gluten, I had some gluten-free Trader Joes bread mix recently and I had some...ahem...a lot of M&Ms  around Halloween. 

I do not even have a concrete diagnosis yet. 

[Ennis-TX]

NOTE the seasonal blend of candies like M&Ms, Hershey, Reese that are normally gluten-free are not the seasonal ones are made in a different facility and are pretty much never on the gluten-free candy list every year.   On a side not your should probably avoid the Processed foods like breads, and dressings. Stick to whole foods and stuff from scratch, nothing preblended, and avoid spices, condiments, or anything rough that might irritate your bowls. I might suggest avoiding products with yeast or dairy in them also if you going that fast. Steamed soft veggies, wilted salads, rice porridge, baked fish/chicken (cooked covered to keep it moist and soft), boiled or poached eggs, canned pumpkin, (combinations like rice porridge and egg cooked into them or pumpkin/dates, stirred in, or a chopped salad with egg/shredded meet zapped in the microwave to  wilt with a bit of lemon juice stirred in are great combos)  are your best bets. You want to make it as easy as you can on your digestive tract, nothing hard to break down or charred cooked. Might look at taking some digestive enzymes to help you breakdown your foods and talk to a dietician about building a balanced diet.