Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

All fruit juice causing stomach issues


mcjlcr

Recommended Posts

mcjlcr Newbie

My 14 year old son has been gluten free for about 6 months after his celiac diagnoses, after almost of year.  We have fought mal-nutrition for 4 of those 6 months since he wasn't absorbing anything in his intestines.  We finally got a naturopath who gave him several liquid vitamins that seem to be making good progress.  He seems to still have little bouts which I am reading are normal as we work through things however he recently told me that any fruit juice gives him heartburn and makes him nauseous, I am wondering if that may be some of the diarrhea bouts.  I thought maybe it was fructose but he drinks soda and his fine.  Is a sensitivity part of the celiac or could this be something else?  Anyone else have children that react to fruit juice?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

First, it sounds like your  son is still dealing with a damaged small intestine.  That means he can still develop intolerances to anything, especially if he is getting any exposure to gluten.  

My kid does not have celiac disease, but she can not tolerate orange juice.  She breaks out in a rash.  Too much of a good thing.  It takes about two to four oranges to make juice (google it).  When was the last time you ate four oranges at one time?  Yuck!  It is a bit much.  But even then, the fiber will slow down the sugar hit.  Juices are often very acidic and that might be the issue too.  

Skip the juice and offer fresh fruit.  No juices are allowed in our house (nor sodas).  It is better to get get nutrition through Whole food.  We do cheat on this rule at a party and I get that your son is already deprived of so many foods.  

Is your house 100% Gluten free?  Or do you have strict kitchen safety  rules in place?  

Finally, it might be worth it for you and your son to talk to a registered dietician who knows about celiac disease.  This a tough age (mine is 15) and to have celiac disease is extra tough.  Kids like to fit in.  We have a celiac girl in the high school band.  She has glutened herself many times in an attempt to fit in.  It is a shame because it makes her anxious and it impacts her schoolwork.  

I hope this helps!  Keep advocating for your son!  He can get better!  

Oh.....did anyone else in your family test positive for celiac disease?  All first-degree relatives should be tested.  

 

mcjlcr Newbie

Thank you for the response.  Yes, I think you are correct he is still healing and having possible intolerances, and I am one impatient mama after watching the suffering for a year.  It has been difficult as he went through a period of just not eating after diagnosed and of course grumpy and tired.  When we tried to take the soda from him it did create much difficulty so I do limit it to only 2 a day, which yes is too much, but with him not eating previously I was trying to keep him happy.  We have been to a couple dieticians but when he wasn't eating it was rough. We were told at one point to feed him anything he would eat, gluten free of course .  I can get him to eat the prepackaged gluten free foods before gluten free cooking at home, he is SOOOO picky.  Our household has went gluten free (my daughter may buy snacks that are wrapped that aren't for her) and we only buy it if it says gluten free to eat even if it looks safe.

I was tested a few years ago via biopsy because I was having many issues but was told it was just irritable bowel and gerd, no celiac.  My daughter had her blood tested and was negative, the only one that hasn't is my husband.

 

Ennis-TX Grand Master

I get really bad acid reflux, and bloat with carbs, juice, and sugary things. I tend to do better just eating nuts, seeds, egg whites, veggies, and small amounts of dried fruits from GERBS allergen friendly foods like figs, dates, banana chips, and the unsweetened versions of a few others. I found limiting my fruit intake to 1-2 pieces dried or 1/4 fresh works best. As for soda I sorta just just sweetleaf drops and carbonated mineral water to treat myself to a fake soda on special occasions. Normally I just drink tea, and coffee sweetened with xylitol, stevia, or monk fruit.

If you must have some prepackaged goods, Enjoy life, and Vans make some decent processed ones. I would suggest sticking to whole foods though. See about asking what he likes and building a diet around what he will eat and try to balance it out. I can give more suggestions and recipes (Quite a few posted in the recipe section) if I know a bit more about his diet and would love to help, But as mentioned by others you should probably see about taking to a dietician to build a diet around his needs.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,998
    • Most Online (within 30 mins)
      7,748

    Wendy Jo
    Newest Member
    Wendy Jo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If this applies geographically, in the U.K., physicians will often declare a diagnosis of celiac disease based on the TTG-IGA antibody blood test alone if the score is 10x normal or greater, which your score is. There is very little chance the endoscopy/biopsy will contradict the antibody blood test. 
    • JoJo0611
      TTG IgA reference range 0.0 to 14.9 KU/L
    • trents
      What was the reference range for that test? Each lab uses different reference ranges so a raw score like that makes it difficult to comment on. But it looks like a rather large number.
    • JoJo0611
      I have had the tTG-IgA blood test my result are >250.0  I am waiting for the appointment with the gastroenterologist for endoscopy and biopsies.    what are the chances it’s not coeliacs.  waiting and not knowing is so hard. Especially the eating of gluten knowing it may be causing you more harm and coping with the symptoms. 
    • knitty kitty
      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.