Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recovering From A Gluten Accident

YankeeDB

By YankeeDB
in Coping with Celiac Disease

Recommended Posts

YankeeDB Contributor
YankeeDB
Posted

OK, I've been (theoretically) gluten-free for 3 months but on Easter I went to a buffet with some friends and something zapped me but good (I suspect the very delicious ham). I'm sure I've had gluten exposures before but they were mild compared to this! I've learned firsthand that after being gluten-free for a while, an accidental ingestion can be a nightmare. I had cramps and diarrhea like never before for about a day and a half.

Anyone have any suggestions on how to cope with this other than rest and strict gluten-free eating?

I did find that taking Advil helped with the cramping quite a bit.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


plantime Contributor
plantime
Posted

Lots of water and tuning out the world. I always get a sore throat with mine, so I use throat lozenges. Waiting it out takes up to a week for me, but it is all I can do. Just lots of rest!

  • 3 weeks later...
jen-schall Rookie
jen-schall
Posted

yes, lots of water (or specially made beverages to help replace electrolytes if you've been throwing up or going to the bathroom all day!) and rest up. things like gluten-free crackers (glutano makes some good ones) or pretzels (glutino, Ener-G) kind of help my nausea if I have them around to nibble - that, or gluten-free cereals like corn flakes, things that aren't sweet.

good luck!

Guest aramgard
Guest aramgard
Posted

Yes, I got zapped by a burger that was cooked on a grill where buns were cooked. Never again will I be so gullible as to assume that this was not possible. This was yesterday. This afternoon I am feeling much better. For me it takes about 24 hours and I feel much better, but it takes a couple of days to feel good. Such is the life of a Celiac. My husband took me out to lunch and regretted it after I became sick that evening. Ye Gads we need all need an intermediary to watch out for us, even after several years of gluten free.

Shirley

shirlane Newbie
shirlane
Posted

I had the misfortune of being served the wrong meal at my nephew's bar mitzvah even after going over my dietary restrictions with them! I fortunately ate only four bites before they realized their mistake, but I was ill for two days. When I asked my celiac group what I should do if confronted with a similiar situation, they suggested eating bananas because the potassium helps if you've accidentally ingested gluten. Our leader also recommended papaya seed tablets for the same reason.

Shirlane

cousinolive Newbie
cousinolive
Posted

Hi,

I hope your feeling better. I recently had a series of gluten accidents, and have been sick for several weeks as a result. I am 59 years old and I think it takes a little longer to heal. I found the thing that helped the most was to eat a very mild diet. I had broth, bananas, sweet potatoes, and applesauce I also drank lots of water. My doctor also put me on L-Glutamine, which I think really helped. I couldn

YankeeDB Contributor
YankeeDB
Posted
  • Author

Thank you all for your input!

I had another setback last Friday night. INCREDIBLE lower back pain, cramps, and diarrhea. I tried to eat to alleviate the weak feeling but that was a mistake--I ended up vomiting as my body simply did not want to deal with food, no way, no how! The worst of it is, I don't know what caused it. I'm going to get back to keeping a strict food diary--I had been slacking off, tired of the discipline of writing everything down.

It seems each time this happens, it's worse than the last time. I mentioned this to my doctor but I don't think he believed me. I wonder if there's any research that supports the notion that after being gluten-free for a while, exposure results in a severe and painful reaction.

I'm tired today, but at least not in pain any more.

I wonder again if fasting would be of benefit....

I've been using L-glutamine for a while--can't tell if it helps or not.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


murda Apprentice
murda
Posted

When I get sick from an accidental dose of gluten I am down for a few days. My doctor recommended that I get this stuff called VERATRUM ALBUM 30. I found it in my health food store. It's a vial of little tiny pills, it helps with the diarrhea, vomiting, and sweating (i get severe fevers). When I get sick I take a dose of these pills and it helps the symptoms go away quicker. Granted they are still there, this is not a cure all drug, but a I will live through this drug. My doctor made sure that I understood that just because this eases my pain some I still have the physical damage done.

I don't know if this will help, but it might be worth asking your doctors about. :rolleyes:

Besides that I try to sleep and I usually eat some chicken soup that I keep frozen for occassions such as those.

MURDA

Ashley462 Rookie
Ashley462
Posted

Hi, I'm new to the boards ;) I am 14 years old and in the last 3 weeks I have discovered that I am gluten-intolerant. My mom and I have been learning more each day(sometimes learning the hard way :blink: ) But anyways, The other day we bought Soy cookies that were labeled WHEAT-FREE and I had 4 cookies within 2 days! :o My stomach has been slightly messed up! Yesterday I read the ingredients througoughly and it had Barley AND oats!! :unsure:

I think when I eat prunes( which make you go to the bathroom) helps get gluten out of your system! Maybe you should try that sometime!

murda Apprentice
murda
Posted

Ashley462

Make sure that when you pick up food it says "gluten-free". I learned the hard way at first that wheat-free does not mean gluten-free.

Good luck with your learning. This site is the best for finding out answers to any questions you might have. I learn more and more everyday on this site, and after almost two years you would think I had it all figured out.

Everyday gets easier, and with time you have less accidents. :)

MURDA

Ashley462 Rookie
Ashley462
Posted

THanks murda!

starlight Newbie
starlight
Posted

I am so glad to find this thread today. I am 57 and was a silent ( non symptomatic) celiac until last fall. A very wise nutritionist had me test for it and Lo and Behold, Celiac and caseine positive. Anyway, I have worked to get and stay on the diet and having been feeling pretty well, certainly better. The biggest difficulty for me is that now when I unintentionally get some gluten, I get really violently ill, and each oops is worse than the one before. It's like the more pure my system becomes, the more violently it reacts if exposed. I have great difficulty eating in any restaurant, and yesterday ate a half steak from Longhorn ( that was verified gluten free after long discussions with mangement and cooks, etc.). When I woke up this morning I knew I was in very big trouble. I have been in agony all day, can only lay down and rest, reminds me of a migraine, just want the world to go away. It began to ease up about an hour ago, good thing because I needed to get up and go to the bathroom and so did my dogs. I have found it very frightening to have such strong episodes when I had none when I was not diagnosed. However, where I take this lesson to is, Thank God someone recognized it and helped me to know it, Thank God I can eat wholly healthy foods and feel pretty great, Thank God I can learn from my lessons and become ever more vigilant in protecting myself. I am so grateful for all of your voices. I have been reading for several months and it is so supportive to listen to others walking the same road. Each of you/us sends out many gifts to others in our posts. Stay well and care for yourself.

Starlight

Guest aramgard
Guest aramgard
Posted

Starlight, I am nearly 70 years old and discovered I had Celiac 3 years ago after a lifetime of problems. At first my gluten accidents were terrible. Now, they last about 2-3 days, at least with the intestinal part. Unfortunatley, I also have dermatitis herpetiformis and it takes about 3-4 days to develop. Then that part takes about 5-6 days to subside. The good news is, the accidents are now beginning to subside faster. Even the dermatitis subsides faster than before and now it subsides with only an over the counter 1% coritizone ointment instead of a steroid shot or internal steroids (which I can no longer tolerate). I think this will all get better for you, just be patient. I agree, eating out really presents a problem. Right now I only eat at El Pollo Loco, Outback and In and out and not that often. I really hate it when I have a gluten accident. I hope you can learn to adjust. It really seems to take a long time and a lot of patience. Good Luck, Shirley

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet official, the Health Director of...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
    3. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together. Our bodies can make Taurine from meats consumed. Our bodies cannot make Thiamine and must consume thiamine from food. Meat is the best source of B vitamins like Thiamine. Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

      @Jmartes71, I went to Doterra's site and had a look around. The Doterra TerraZyme supplement really jumped out at me. Since we, as Celiacs, often have digestive problems, I looked at the ingredients. The majority of the enzymes in this supplement are made using black mold, Aspergillus! Other enzymes are made by yeast Saccharomyces! Considering...
    5. Scott Adams
      - Scott Adams commented on Scott Adams's article in Additional Concerns
      2

      Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)

      Thanks for mentioning this, and here is an older article on the topic:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748
    PatientOne
    Newest Member
    PatientOne
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.