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Specialists curiosity on Cyrex test?

noffwheat

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noffwheat Newbie
noffwheat
Posted

Hi. After waiting several years after taking a Cyrex 3 test (outside of a doctor) I saw a gastroenterologist today to review my test and they said nothing specifically about my specific test results  . , is this normal? The doctor does want to do an endoscopy but I was assuming they would go into detail about the results . Are these markers so new that my doctor wouldn't know what they mean ?

Transglutaminase -2 IgG. 1.63  , ( normal= (.3-1.6)

Gluteomorphin +prodynorphin IgG 1.37  , (normal=(.3-1.2)

Wheat Germ Agglutinin IgG , equivocal 1.20*  (normal =( .4-1.3)

Thanks for your help, ideally I would have gone to the doctors when I first had the idea of taking the test. I've stopped eating gluten several times and when I start consuming after stopping it's noticeable(Pressure around eyes, loss of smell, brain fog , less motivation) 

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kareng Grand Master
kareng
Posted

A medical doctor won't care about alternative and unproven testing.  I hope he remembered to tell you that you need to be eating gluten for  an extended period before any medical Celiac testing.

Jmg Mentor
Jmg
Posted

The fact he's willing to do the endo suggests he's treating your concerns seriously. As Karen says, don't remove gluten in advance of the procedure, it could lead to a false negative. Even if you aren't diagnosed with celiac at he end of this it sounds like you may want to give he gluten-free diet a proper try, but only once testing is complete!

best of luck

noffwheat Newbie
noffwheat
Posted
  • Author

Thanks for the input. The doctor did not mention the need to be consuming gluten for three months , maybe because I told him I had started again in Dec 2016( increased is more accurate) . I was aware of that beforehand .

Unfortunately I have taken multiple breaks after the Cyrex test so if there was damage it could hAve healed. As I was told but did not do, if anyone is questioning gluten it's easier to go to the doctor first and get the tests. 

Jmg Mentor
Jmg
Posted
14 hours ago, noffwheat said:

As I was told but did not do, if anyone is questioning gluten it's easier to go to the doctor first and get the tests. 

Loads of us fall into exactly this trap, don't think your the only one!

its a double whammy unfortunately as not only can the tests be compromised, it's more unpleasant to go back onto gluten after cutting it out than it is to stay on it in the first instance.

that said, now your back on track and can hopefully get the diagnostic process sorted, even if your negative celiac you can always then cut gluten, I did and it made the world of difference. Just because you don't test positive doesn't mean it's not a problem for you.

 

best of luck ?

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