Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shooting pains in joints/fatigue


mandyinsd

Recommended Posts

mandyinsd Rookie

Hello 
As some of you may have read in my previous post, I was recently diagnosed with celiacs on Monday after the results of the stomach biopsy came back. I started going gluten free on Tuesday. Starting on Friday and then extremely worse last night I began getting shooting pains in my joints, arms and legs. To the point it would jolt me out of sleep. Then today I was extremely achy all over, light headed and had joint pain. Now tonight I fell asleep and again woken up with shooting  pains in my joints and my hands and feet are tingling. I also have random sharp pains directly above my belly button and extreme fatigue.  Has anyone experienced this?  I plan to call my doctor in the morning but I can't sleep from the pain. So I'm searching for answers. 
Thank you in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Ok first I am going to say I had major tingling, and pains that sometimes felt like fire and needles in joints, arms, back, legs, hand and feet moved around in waves. Strenuous activity, heat, or sunlight seemed to make it worse.  We learned for me a major part of this was Magnesium deficiency, I would suggest a magnesium glycinate in a chealted form from a supplement (Doctors best brand in powdered form in a drink or pill) on this twice daily. You can try a magnesium Citrate if you want but these are harsher on the stomach. Now for immediate relief try taking a hot Epsom salt soak in a bath, this will help a lot.  I might also suggest talking to a dietician or doctor to confirm as you might have other issues also that need to be addressed like B vitamins, Iron, D and E.

Took a few weeks for my body to regulate it and it seemed to spike back up for my first few months gluten-free when I got glutened by accident. 

Ariel90 Rookie

Yup me too all day cramps and pain all over in my back and legs I know exactly what you mean. It keeps me up most night can only get like a few hours of sleep docs don't know whats wrong.

 

Maybe you'll get some help? Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    2. - RMJ replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      ttg iga high (646 mg/dl) other results are normal

    3. - kpf posted a topic in Introduce Yourself / Share Stuff
      0

      Vegetarians and vegans with celiac disease

    4. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    5. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,336
    • Most Online (within 30 mins)
      7,748

    Kathleen Groner
    Newest Member
    Kathleen Groner
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • kpf
      I think you may be correct. The way the results are printed makes it appear as though it’s the ttg iga but I think you’re right—the 646 is total iga. So this would be indicative of another issue (another autoimmune condition, infection, cancer, etc.) and my doctor would need to do further testing. Thank you for saying this! 
    • RMJ
      Are you sure that is the TTG IgA? Based on the units (mg/dL) and having an upper limit to the normal range, it looks like a total IgA result. 
    • kpf
      I am wondering if there are any vegetarians or vegans on this forum. I’ve been vegan for 15+ years and am just finding out I likely have celiac disease (blood panel done, need biopsy). My favorite foods—outside of vegetables, fruits, nuts, seeds—I will likely have to give up. Anyone else? 
    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.