Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shooting pains in joints/fatigue


mandyinsd

Recommended Posts

mandyinsd Rookie

Hello 
As some of you may have read in my previous post, I was recently diagnosed with celiacs on Monday after the results of the stomach biopsy came back. I started going gluten free on Tuesday. Starting on Friday and then extremely worse last night I began getting shooting pains in my joints, arms and legs. To the point it would jolt me out of sleep. Then today I was extremely achy all over, light headed and had joint pain. Now tonight I fell asleep and again woken up with shooting  pains in my joints and my hands and feet are tingling. I also have random sharp pains directly above my belly button and extreme fatigue.  Has anyone experienced this?  I plan to call my doctor in the morning but I can't sleep from the pain. So I'm searching for answers. 
Thank you in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Ok first I am going to say I had major tingling, and pains that sometimes felt like fire and needles in joints, arms, back, legs, hand and feet moved around in waves. Strenuous activity, heat, or sunlight seemed to make it worse.  We learned for me a major part of this was Magnesium deficiency, I would suggest a magnesium glycinate in a chealted form from a supplement (Doctors best brand in powdered form in a drink or pill) on this twice daily. You can try a magnesium Citrate if you want but these are harsher on the stomach. Now for immediate relief try taking a hot Epsom salt soak in a bath, this will help a lot.  I might also suggest talking to a dietician or doctor to confirm as you might have other issues also that need to be addressed like B vitamins, Iron, D and E.

Took a few weeks for my body to regulate it and it seemed to spike back up for my first few months gluten-free when I got glutened by accident. 

Ariel90 Rookie

Yup me too all day cramps and pain all over in my back and legs I know exactly what you mean. It keeps me up most night can only get like a few hours of sleep docs don't know whats wrong.

 

Maybe you'll get some help? Good luck

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

    2. - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

    3. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    4. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,241
    • Most Online (within 30 mins)
      7,748

    TwinJan
    Newest Member
    TwinJan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This article may be helpful:  
    • Kirita
      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.