Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Shooting pains in joints/fatigue


mandyinsd

Recommended Posts

mandyinsd Rookie

Hello 
As some of you may have read in my previous post, I was recently diagnosed with celiacs on Monday after the results of the stomach biopsy came back. I started going gluten free on Tuesday. Starting on Friday and then extremely worse last night I began getting shooting pains in my joints, arms and legs. To the point it would jolt me out of sleep. Then today I was extremely achy all over, light headed and had joint pain. Now tonight I fell asleep and again woken up with shooting  pains in my joints and my hands and feet are tingling. I also have random sharp pains directly above my belly button and extreme fatigue.  Has anyone experienced this?  I plan to call my doctor in the morning but I can't sleep from the pain. So I'm searching for answers. 
Thank you in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Ok first I am going to say I had major tingling, and pains that sometimes felt like fire and needles in joints, arms, back, legs, hand and feet moved around in waves. Strenuous activity, heat, or sunlight seemed to make it worse.  We learned for me a major part of this was Magnesium deficiency, I would suggest a magnesium glycinate in a chealted form from a supplement (Doctors best brand in powdered form in a drink or pill) on this twice daily. You can try a magnesium Citrate if you want but these are harsher on the stomach. Now for immediate relief try taking a hot Epsom salt soak in a bath, this will help a lot.  I might also suggest talking to a dietician or doctor to confirm as you might have other issues also that need to be addressed like B vitamins, Iron, D and E.

Took a few weeks for my body to regulate it and it seemed to spike back up for my first few months gluten-free when I got glutened by accident. 

Ariel90 Rookie

Yup me too all day cramps and pain all over in my back and legs I know exactly what you mean. It keeps me up most night can only get like a few hours of sleep docs don't know whats wrong.

 

Maybe you'll get some help? Good luck

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,330
    • Most Online (within 30 mins)
      7,748

    TamSta214
    Newest Member
    TamSta214
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      It occurs to me that this might be a good application for gluten test kits, since the test kits seem to require samples in power form and pills can easily be rendered in that form. According to this article, and it seems to be current, there are three choices when it comes to gluten test kits: https://www.verywellhealth.com/gluten-detectors-and-test-kits-comparing-the-options-4126736 While it is not an inexpensive solution, at least it shouldn't be necessary to use very often once you establish a med either is safe or not.
    • maryannlove
      Same problem in Pittsburgh.  Have Hashimato's so been taking Mylan (generic) levothyroxine for many years.  Pharmicist tried to routinely order yesterday and called to tell me it's unavailable.  That I could try to find elsewhere and have script forwarded to them.  Just spent couple of hours online researching.  What a pain for so many of us!  Using http://glutenfreedrugs.com/newlist.htm (which know is old and doubt updated) reminded me that long ago I used to take Sandoz brand.  Just went on their website and appears they no longer make (maybe why switched to Mylan).  Back to square one.  Using chart from glutenfreedrugs.com says for manufacturers I'll list afterwards "Manufacturer doesn't knowingly add gluten, however since they don't do any final testing they won't guarantee it to be gluten-free but it is very unlikely that it is contaminated with gluten."  Might be best I/we can do.  Along with Mylan, those manufacturers on chart are: Lannett (per website still make) and Neopharma (didn't find on their website).  Paloma Health's website says CERTIFIED gluten free are:  Lannet brand of levothyroxine, Nature-Thyroid, Tirosint (expensive), WP Thyroid.  Other thyroid meds that are gluten-free but not certified:  Levoxyl, Synthroid, Euthyrax, Mylan Brand (wish could get), and Armor with a caution contains sodium starch glycate which may contain gluten.  I'll submit Lannett to pharmacist.  If successfull, will share.  
    • somethinglikeolivia
      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
×
×
  • Create New...