Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food.. where to start?


Doublejump

Recommended Posts

Doublejump Newbie

I have been on low fod map diet for IBS now i have been diagnosed with celiac, and completely lost when it comes to what i can eat? If i stick to low fod map and add in gluten free everything im so limited. I know certain things that are a high in fodmaps affect me so i dont eat them anymore. I have diarrhea every single morning without fail no matter what i ate the day before. I constantly feel bloated, have gained weight which is ridiculous considering i am a pt and fitness instructor and exercise two three times a day 6 days a week and barely eat anything. My hair is thinning, i have joint pain , especially in my knees and i cant sit for long periods of time. My periods are all over the place. Im always tired but manage to find the energy somewhere to do classes. Im hungry all the time yet basically live on eggs chicken rice strawberries banana, and black rice crackers and certain vegetables. Nuts are out completely no matter what nut im in for days of bloat and pain. Even when i eat low fodmap and gluten free I'm still bloated immediately after which makes my life hard when i have to go put on a pair of tights and take a hard core class. What am i doing wrong?  I drink green tea mostly no coffee or alcohol. No bread. Ever. No chocolate and cant tolerate dairy wheat nuts avacado salmon and so on. The list is long. I now have a list on my fridge of what i can eat yet it still makes me feel bloated. I need more protein in my diet like before and add spinach to everything or eggs. Im sick of eggs! Any tips on food would be great . T i a 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  

Adhering primarily to a gluten free diet will probably resolve many of your other food intolerances.  Focus on fresh foods and avoid wheat, barley, rye and oats.   Here is more information about the gluten free diet:

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

It does take time to heal.  So, be patient!  Take one day at a time.  We are here to help.  

 

Ennis-TX Grand Master

OUCH, I live off of nuts, and all carbs/sugars cause me to bloat, and feel like crap. But I have UC and it causes my intestines to swell when they get sugars, dairy, etc.  I personally eat a bunch of low carb stir fry, veggie sautes with wilted greens, soups omelettes, etc. And I Focus on a ketogenic diet of just fats and protein. >.< I can not digest most meats and live off of eggs small amounts of crab and fish and massive amounts of vegan protein powders. I work out daily and am trying to put on weight lol. I find you can do all kinds of things and seasonings with sautes. I can not help you much since I live off of nuts. How are you with seeds? I like snacking on pumpkin seeds whole with shell for the fiber, and help seeds. Love throwing them in a salad with some dry seasoning and a apple cider, balsamic, or coconut vinegar and zapping it in the microwave to make a nice hot chopped salad of wilted greens. Heck I even make noodles out of eggs by slow cooking egg beaters in a pan over low heat to form a sheet then cutting it into noodles (Nordic ware microwave plates can be used for this to great effect, even makes egg tortilla)

EasterLily Explorer
On 4/16/2017 at 0:16 AM, Doublejump said:

I have been on low fod map diet for IBS now i have been diagnosed with celiac, and completely lost when it comes to what i can eat? If i stick to low fod map and add in gluten free everything im so limited. I know certain things that are a high in fodmaps affect me so i dont eat them anymore. I have diarrhea every single morning without fail no matter what i ate the day before. I constantly feel bloated, have gained weight which is ridiculous considering i am a pt and fitness instructor and exercise two three times a day 6 days a week and barely eat anything. My hair is thinning, i have joint pain , especially in my knees and i cant sit for long periods of time. My periods are all over the place. Im always tired but manage to find the energy somewhere to do classes. Im hungry all the time yet basically live on eggs chicken rice strawberries banana, and black rice crackers and certain vegetables. Nuts are out completely no matter what nut im in for days of bloat and pain. Even when i eat low fodmap and gluten free I'm still bloated immediately after which makes my life hard when i have to go put on a pair of tights and take a hard core class. What am i doing wrong?  I drink green tea mostly no coffee or alcohol. No bread. Ever. No chocolate and cant tolerate dairy wheat nuts avacado salmon and so on. The list is long. I now have a list on my fridge of what i can eat yet it still makes me feel bloated. I need more protein in my diet like before and add spinach to everything or eggs. Im sick of eggs! Any tips on food would be great . T i a 

Hello Doublejump.

I feel your pain. I have been wearing sweatpants for 5 weeks due to the bloating being so bad. Today I was able to wear a pair of stretchy jeans. I was so excited. But I ate dinner and now I need to get back into my sweats. :( I take my happy moments anywhere I can so I focus on all my good moments to avoid getting lost in the negativity that can come with this. I am on day 20 of my gluten free diet and I've had to cut out so many of my favorite foods. Even foods that are gluten free. My body just doesn't want them right now. I'm still healing. Withdraw made me even sicker but I am coming out of it thank goodness. I am eating extremely bland food for right now and eggs almost everyday. I'm sure at some point I will get sick of them, but for now I pretend they are the greatest food ever. Going gluten free has caused me some food sensitivities with foods that have never bothered me before. There is a learning curve with this and I'm still learning it. I am also still healing and will be for some time. I have good days where I feel good and I have bad days where I question my healing. I'm learning to listen to my body. It's telling me what works and what doesn't. There are a lot of knowledgeable people on this forum and I have gotten excellent advice here. Give yourself time to heal. You're not in this alone.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    2. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      3

      Help I’m cross contaminating myself,

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,909
    • Most Online (within 30 mins)
      7,748

    Hmart
    Newest Member
    Hmart
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.