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  • Recent Activity

    1. - cristiana replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Cartilage and rib pain.

    2. - bold-95 replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Cartilage and rib pain.

    3. - bold-95 posted a topic in Introduce Yourself / Share Stuff
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      I hate to cook!

    4. - Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Frustrated

    5. - Mrs Wolfe replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Cartilage and rib pain.


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  • Posts

    • cristiana
      Luke warm bath (deep) with a handful of Epsom salts, and bath for about 20 minutes.  Be careful getting out of the bathtub, the magnesium (Epsom salts) can make you feel a bit woozy.  I've suffered from costochondritis, might be what you have?  I find rest very helpful, and avoid any foods that bloat you as this can put added pressure on the ribcage.
    • bold-95
      Are you saying that celiac causes you rib pain?  Or that your ribs are fragile due to being celiac?  Or that the vitamins you take act as an analgesic, and that OTC pain-relievers do not work for you?  I don't understand the connection.
    • bold-95
      I am so discouraged!  I would rather not eat... or even eat junk (with the expected result)... than cook!  I have been gluten-free (hah) since 2016.  But my husband eats tons of bread, biscuits, cake, muffins... you name it.  Everything on the SCD that's illegal, he eats.  And buys it and brings it home, many times in trying to please me!  Please don't suggest we have a heart-to-heart talk;  been there, done that.  He truly is unable to change.  ONE reason is that culturally, we are opposites.  Another reason is that he is in his 80's and isn't about to do something he doesn't want to.  If I don't cook for him, his nutrition would be less than poor. My mental state is going from bad to worse.  He is also declining mentally (memory, reasoning) and physically, and that makes me want to cry all the time; that, or be angry. My celiac symptoms are not completely resolved, just somewhat better. I have just read the book re SCD, wish I could try that diet (cause it promises a cure) but the learning/implementing curve is more than I can handle if I have to cook the way they say is necessary. I live in an area with poor medical help; I tried the (only) dietitian listed in my area who is celiac knowledge certified, but she doesn't accept my insurance.  I'm on my own. I am hypothyroid, and on HRT.  Cannot tolerate Buspirone; anti-depressives are ineffective due to gene mutations (I've been tested). Can anyone help?  Or not....
    • Jmartes71
      Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don't get sick.Im 54 years old, my right eye feels as if pressure ( seeing eye specialist) saw dermatologist and had skin graph was told ulcers but since I was disregarded of my celiac disease and it was previous doctor who sent me to dermatologist, its now " undetermined ".I pushed for the first and second ANA panel and negative. I had my 5th colonoscopy July 9 this year and colon looks great, BECAUSE IM gluten-free for 31 YEARS.Waiting on biopsy.My only celiac proof on medical was 2014 that i physically have, i don't have original. How do I get my new doctor to understand the severity of pain Im dealing with, daily flare ups.Exhausted and allergic to everything. Menopause has intensified, i feel but then again I had my 3rd covid in March 2023 and I can't bounce back.Pain down left leg always in the bathroom when I barely eat.Its affecting my life and frustrated with doctors not knowing.To be far my new doctor is having me see two specialist but how do I get him to understand its my false negative celiac disease????
    • Mrs Wolfe
      Thank you.  I’ll be sure to look into those. 
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