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Desperate for help

Celiac4762

By Celiac4762
in Coping with Celiac Disease

Recommended Posts

starcaster2358 Rookie
starcaster2358
Posted

Hello

I understand what you are going thru. My son almost died from going 27 years without figuring out it was gluten and then corn causing all the illness. I brought him to Drs, none of them figured out gluten intolerance. Oh they told us he had everything else. Then as time went on, he found out he has issues with corn. Corn has identical genetic make-up as gluten.  Corn is sneaky and everywhere. Contact the manufactures, ask them if there is a chance of contamination or corn ingredient in their products. My son gets neurological problems when gluten/cornized. Anxiety, obsessive thoughts, can not think. He had to be taken out of school and homeschooled. He just found out the digestive enzymes he was taking contain an enzyme that is grown on barley. Enzymedic basic. 

My suggestions for you are, seriously go find another place to live. You need your mind and health to continue school. If you don't and continue living where you are, school will suffer. In your spare time, find out all you can about gluten and what other foods act like gluten in the body. Like I said, corn has the same genetic make up as gluten, some people can not eat rice either. This is something that is doable, it is just becoming very aware of what goes in the mouth.

Please find another place to live. You don't need to deal with those jerks, you have enough going on with school and health. There might be other people in your school that are celiac or gluten sensitive. Find them, post notes up, start a newsletter about gluten free lifestyle. I bet there are many people that would welcome that newsletter.  You don't need to do this alone!  

You are the most important person in your life, you deserve to feel good and be respected! Stay away from those that don't respect you. Search out those that will.  Eating out is something that can be done, find those places that will work with you. Ask to have burgers or meat cooked on aluminum foil. Fresh veggies, fruits all gluten free. Again, research restaurants in your area willing to work with you. Even call the manager and talk to them.

All the best to you!  Hang in there.   

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Celiac4762 Apprentice
Celiac4762
Posted
  • Author
4 hours ago, TexasJen said:

I'm so sorry. Nursing school is rigorous enough on top of all this stress.  And, kudos to you for cooking regularly even in school.  I've been through a lot of school and I never managed that.  I can see how it feels hopeless to try and change your roommate's behavior - almost like an insurmountable hurdle!

After reading all of these followup posts, I was doing some more thinking. One idea  is posting an add for a gluten free roommate next semester. The more I talk to people the more people I meet that are gluten free. Maybe there is someone out there like you. And one thing I know about medical people is that they are not embarrassed to discuss medical problems (even the ones they should be embarrassed to discuss :) )  Put the word out there in your class - find out if there are people doing something similar - maybe they are gluten-free for health or mood or diabetes. And look for people that are low carb, Whole 30, Ketogenic or similar - those folks don't eat gluten either - they just don't call themselves "gluten free".  Maybe you don't have to be trapped in your current situation. 

I eat a lot of eggs and beans which are cheap ways to get protein without meat.

Also, (and I know this might be controversial) but there is a study out there, that says that celiac patients that get neurotic about avoiding gluten and focus on only eating certified etc  have a worse quality of life (and no improvement in control of their celiac) compared to people who are not as neurotic and eat gluten free foods (but don't only eat certified). That may be a whole separate post - but it's worth considering. I'm one of the neurotic types but I'm thinking about how to be not so crazy! :) 

I wish you the best!

You make a good point about being neurotic. I'm slowly getting better. I guess time will tell. But thank you for the insight.

 

As far as roommates go, that's a good idea. I've definitely been thinking about that. But these guys are my best friends and the process of getting a new roommate this late in my schooling might be hard. Although, I will keep my eye out for the opportunity. 

Ennis-TX Grand Master
Ennis-TX
Posted
6 hours ago, starcaster2358 said:

Hello

I understand what you are going thru. My son almost died from going 27 years without figuring out it was gluten and then corn causing all the illness. I brought him to Drs, none of them figured out gluten intolerance. Oh they told us he had everything else. Then as time went on, he found out he has issues with corn. Corn has identical genetic make-up as gluten.  Corn is sneaky and everywhere. Contact the manufactures, ask them if there is a chance of contamination or corn ingredient in their products. My son gets neurological problems when gluten/cornized. Anxiety, obsessive thoughts, can not think. He had to be taken out of school and homeschooled. He just found out the digestive enzymes he was taking contain an enzyme that is grown on barley. Enzymedic basic. 

My suggestions for you are, seriously go find another place to live. You need your mind and health to continue school. If you don't and continue living where you are, school will suffer. In your spare time, find out all you can about gluten and what other foods act like gluten in the body. Like I said, corn has the same genetic make up as gluten, some people can not eat rice either. This is something that is doable, it is just becoming very aware of what goes in the mouth.

Please find another place to live. You don't need to deal with those jerks, you have enough going on with school and health. There might be other people in your school that are celiac or gluten sensitive. Find them, post notes up, start a newsletter about gluten free lifestyle. I bet there are many people that would welcome that newsletter.  You don't need to do this alone!  

You are the most important person in your life, you deserve to feel good and be respected! Stay away from those that don't respect you. Search out those that will.  Eating out is something that can be done, find those places that will work with you. Ask to have burgers or meat cooked on aluminum foil. Fresh veggies, fruits all gluten free. Again, research restaurants in your area willing to work with you. Even call the manager and talk to them.

All the best to you!  Hang in there.   

MOM?! Lol not really but just about I had that EXACT issues I am 27 now but it was discovered when I was 23. The corn issue I got was a allergy, but the celiac almost killed me, and I was running a bucket list before SHE suggested the celiac issue.  I was adopted so we had no idea of anything in my actual family since they did not and will not release medical records. 
My issue with medications is that most contain corn....the irony of learning the allergy medicine your on contains something your allergic to....yeah I have had to find certain brands etc to avoid that. But I personally turned to cooking and baking, and using my talents at these to make gluten and corn free baked goods and and selling at markets. So this disease and health issues act like a road map for my life guiding me where I am needed. 
Enzymes, I have to take enzymes in 2-3x the dose myself. I use Jarrow Enzymes Plus, Jarrow Bromine on protein heavy meals, and I take Super Papaya Enzymes after meals.

If you son needs any help finding good supplements to help with the nerve and neurological issues I have found my whole regime and there are some I suggest to everyone.

squirmingitch Veteran
squirmingitch
Posted

Expanding on TexasJen's thoughts about posting for new roommate(s) next summer...... people with peanut, tree nut or other food allergies, especially if they are anaphylactic to those foods, could make excellent roommates as they have their own problems with food so they can immediately identify with AND respect your need to not get cross contaminated.

starcaster2358 Rookie
starcaster2358
Posted

Thank-you Ennis_TX!  I will tell him about the supplements you use.   

nikbquik Newbie
nikbquik
Posted
On 9/25/2017 at 11:17 AM, Celiac4762 said:

Okay good point. I did not know that about ketosis. Thanks for educating me. 

What is Ketosis?

kareng Grand Master
kareng
Posted
41 minutes ago, nikbquik@gmail.com said:

What is Ketosis?

Open Original Shared Link

 

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Ennis-TX Grand Master
Ennis-TX
Posted
39 minutes ago, nikbquik@gmail.com said:

What is Ketosis?

It is a metabolic process where when you body does not have enough carbohydrates for fuel it changes gears essentially and starts using fat and protein for fuel. Kareng gave a great summary of it I was about to reply with a elaborate typed out response I just deleted. Anyway some of us work best on a ketogenic diet. I myself do since my other AI disease flare up with carbs and sugars. It is not just for dieting by the way, I am body building on a ketogenic diet, takes some work and a lot of research but seems to be working well.

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      Son's legs shaking

      By knitty kitty · Posted

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