Familial pituitary adenoma

[Puzzler]

My mother was diagnosed with acromegaly in 1976. She became part of a research study in Boston. I am 60 and showing signs of possible pituitary adenoma. I have a history of elevated white cell counts,elevated CRP, severe spinal degeneration, now gluten sensitivity and lactose intolerance. 73 old sister hypothyroidism and possible pit adenoma. 76 year old brother just diagnosed with Celiacs and had kidney adenoma removed. I had total thyroidectomy 2014 for adenoma and also had 3mm malignant papillary thyroid cancer.  My question:  Due to chronic spinal pain, I have been seeing a pain specialist/anesthesiologist the last two months, 30 years experience and he is aggressively looking for answers. So I have had 4 doses of cortisone. 3 less than a week ago. That night did not sleep, next day could not remember what day it was, not alert. Have had a tremendous amount of anxiety/stress. Over next 4 days slowly difficult breathing, weakness, dizziness. Today sent to hospital. I have no history of alcoholism, no gallbladder (question if had acute pancreatitis then), no thyroid. As a child I had the floating/oily stool testing and cramping, painful diarrhea. That has all come back. Do you recommend that my endocrinologist order IGF-1 testing? Other tests?

[kareng]

6 hours ago, Puzzler said:

My mother was diagnosed with acromegaly in 1976. She became part of a research study in Boston. I am 60 and showing signs of possible pituitary adenoma. I have a history of elevated white cell counts,elevated CRP, severe spinal degeneration, now gluten sensitivity and lactose intolerance. 73 old sister hypothyroidism and possible pit adenoma. 76 year old brother just diagnosed with Celiacs and had kidney adenoma removed. I had total thyroidectomy 2014 for adenoma and also had 3mm malignant papillary thyroid cancer.  My question:  Due to chronic spinal pain, I have been seeing a pain specialist/anesthesiologist the last two months, 30 years experience and he is aggressively looking for answers. So I have had 4 doses of cortisone. 3 less than a week ago. That night did not sleep, next day could not remember what day it was, not alert. Have had a tremendous amount of anxiety/stress. Over next 4 days slowly difficult breathing, weakness, dizziness. Today sent to hospital. I have no history of alcoholism, no gallbladder (question if had acute pancreatitis then), no thyroid. As a child I had the floating/oily stool testing and cramping, painful diarrhea. That has all come back. Do you recommend that my endocrinologist order IGF-1 testing? Other tests?

If your brother was diagnosed with Celiac, that is enough reason for your doctor to test you.       

 

"...When an individual is diagnosed with celiac disease, the entire family learns that they must be tested for the condition, for they are now at risk. First-degree relatives (parent, child, sibling) have a 1 in 22 chance of developing celiac disease in their lifetimes;..."

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