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Gluten again!

celichris

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celichris Rookie
celichris
Posted

On Dec. 8 I accidentally ate gluten. I am not sure how much but I know the restaurant. I don't eat out often and actually I bought two pizza crusts and two breads there. One of those two things had gluten in them. I started out just not feeling right that night then woke up at 3 am with stomach pains and diarrhea. yay! From there is just got worse. Over the next week I have severe GERD develop to the point prilosec wouldn't even help (anybody else with that weird symptom?), exhaustion, severe anxiety, joint pain, body weakness, and a new one, muscle cramps in my legs and feet (anybody have that symptom?). Oh and I lost 7lbs in one week!

Its been two weeks and the diarrhea stopped 7 days later. The GERD subsided drastically but is lightly there. At least I can eat a low acid diet now. The muscle cramps have subsided as well. What a ride! 

Whats most frustrating is now I cannot eat corn and soy. I went gluten-free 5 years ago and when I first did I couldn't eat corn, soy and egg for about 3 years. I literally just added it back in over  a year ago. Have any of you experienced this? Also, I should say, this is my 4th major glutening this year.....First was from a medication(which then I couldn't tolerate any dairy anymore), second was from the preschool I worked at ( I no longer work there), third was totally my mistake from a cross contaminated hard cider, and then this from a certified gluten free restaurant (don't worry I won't be going back there). I rarely eat out. And now I will only go to the totally gluten free restaurant when I do. 

This is so frustrating. AND on top of this I see a new GI on Tuesday. I really hope he isn't dismissive. 

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Ennis-TX Grand Master
Ennis-TX
Posted

Glutend myself from certified gluten-free hemp protein over 2 weeks ago.....still dropping cow pie stools....worse part was it was hardly any gluten in it so it took me a week to noticed when the D hit. I did a post on it, SSSOOO know that f$#% me feeling. Anyway what I do for pizza crust is califlour foods pizza,  I get the plant based dairy free/grain free ones, but like a deep nutty flatbread/new york crust. Works you precook it 5 mins for chewy or 15ish for extra crsipty top it and finish it off to spec. I have a recipe on my blog here (check profile) for same darn good vegan cheesy garlic bread. I sell them at my bakery and are a huge hit....I just filled off the books order for a batch and shipped it to California for someone and got wonderful reviews.

celichris Rookie
celichris
Posted
  • Author

Thanks for the recommendations. Usually I make my own pizza dough out of my flour but that day I decided to try the restaurants pizza crust at home. No good. I will never do a take home or eat there again. I've only eaten there twice in a year and the first time I did not get sick. Never again. 

I'm sorry you had cross contamination issues too. People outside of the celiac community really don't understand how painful it is when we get cross contaminated or even worse, get a full dose of gluten! I never want to feel this bad again.

Ennis-TX Grand Master
Ennis-TX
Posted
28 minutes ago, celichris said:

Thanks for the recommendations. Usually I make my own pizza dough out of my flour but that day I decided to try the restaurants pizza crust at home. No good. I will never do a take home or eat there again. I've only eaten there twice in a year and the first time I did not get sick. Never again. 

I'm sorry you had cross contamination issues too. People outside of the celiac community really don't understand how painful it is when we get cross contaminated or even worse, get a full dose of gluten! I never want to feel this bad again.

Funny story that sticks with me, one of our members thought their celiac family got glutened, symptoms almost fit exactly.....it was salmonella poisoning...I let that sink in a bit. Sounds like a great way to get it across to others...salmonella for 2 weeks....that is about how bad gluten can make us feel. Of course we are all a bit different. Straight gluten from a restaurant has not happened to me since June 2016, I lost full motor control and collapsed from gluten ataxia while I uncontrollably threw up for hours so hard it had blood in it in my door way. Drifted in and out of it, heart rate monitor got me in the 30bpm range for awhile friend said I turned completely white and they had to keep checking my pulse. Regained motor control only to run to the toilet to flush out the back...then gut and nerve issues for weeks.

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