Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

glutened - how to stop the Diarrhea

Christine L H

Recommended Posts

Christine L H Newbie
Christine L H
Posted

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
2 minutes ago, Christine L H said:

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

Sounds like you might have a bad stomach virus or something else.  IF this goes on for more than a couple of days, you need to get to a doctor.  

Christine L H Newbie
Christine L H
Posted
  • Author

Thanks Karen, these symptoms I am having are exactly like the first time I experienced it. I didn't know I had celiac disease then, but after a month of agony I was diagnosed via biopsy. The difference now is I eat gluten free. I ate at a pizza place that  serves gluten free pizza earlier this evening and at two in the morning I woke to a lets just say unpleasant issue. I must have got cross contaminated. No matter what I do it won't stop. Do you know of anything other than Imodium to stop the D? 

Thanks so much,

Christinr

Christine L H Newbie
Christine L H
Posted
  • Author

PS: How to you reply on this site?

Jmg Mentor
Jmg
Posted
15 minutes ago, Christine L H said:

Thanks Karen, these symptoms I am having are exactly like the first time I experienced it. I didn't know I had celiac disease then, but after a month of agony I was diagnosed via biopsy. The difference now is I eat gluten free. I ate at a pizza place that  serves gluten free pizza earlier this evening and at two in the morning I woke to a lets just say unpleasant issue. I must have got cross contaminated. No matter what I do it won't stop. Do you know of anything other than Imodium to stop the D? 

Hi Christine, 

You may want to ask this on a separate topic if you want more replies, but in the meantime how are you with dairy? Could be food poisoning and cross contamination is one possibility but there will be dairy in the gluten-free pizza and after a few years gluten-free I've only recently realised that dairy isn't just something I need to mostly avoid but I have to cut it out completely. 

14 minutes ago, Christine L H said:

PS: How to you reply on this site?

A few ways. There's a quote reply button under posts, or you can highlight the text and press the quote this popup that appears.

 

 

kareng Grand Master
kareng
Posted

I split this to its own topic.

I couldn't tell by your first post if you had this going on for days, weeks or just a few hours.

 

Sounds like some cc on that pizza.  

Ennis-TX Grand Master
Ennis-TX
Posted
1 hour ago, Christine L H said:

Hello all, I am new to this site but have had celiac spru ( disease ) for ten years now. I thought I was doing good, but I obviously am not. I am having a horrible attack right now, as bad as the first one. I also have MC. I must have got contaminated somehow. I realize now that I absolutely cannot rely on products that say gluten free anymore. I believe I am just to sensitive now. How do you stop the  relentless diarrhea? I have taken a ton of anti diarrhea pills but the beast is still roaring in my belly and out...of it. Help! Any suggestions? I can't even make it to the toilet, so I sleep next to the bathroom now to avoid accidents in bed. Can't eat or drink ANYTHING or it gets worse. Had anyone dealt with this? I feel so alone and scared it will never stop. Thanks in advance,

Christine

IF a Pizza place offers both gluten and gluten-free pizza....you have a extreme chance of CC, consider the prep area, the flour dusting, the reaching from gluten pizza to topping bins and back, the ladle used to put hte sauce on and spread it from one pizza to another, the pizza peel they use to put in and remove the pizza the cutters.....so many areas where a untrained personal can make a mistake and CC you.

Other thoughts dairy is a HUGE issue for many cealics, especially right after a gluten exposure. The tips of the villi help with the enzymes to break down dairy....damaged tips and you do not get enough of the enzyme and D, gas etc ensue. Best to avoid it for a bit again after a gluten exposure. For me it is a life time avoidance......

Thoughts for helping to firm up stool. Ground flax seed in food/beverages adds bulk and thickens up stool, coconut flour is also good for this in a baked good, or porridge, Pea Protein is high in iron and can help form up stools (NOT DEPENDS ON BRAND) I use Growing Naturals often and found the 30% DV iron in it is great. Avoid Sugars, starches, fruit, for now to keep gas down, and for god sake stay away from spices or you WILL feel the burn. Go with herb seasonings for awhile....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dellatemple Newbie
dellatemple
Posted

I use Great Plains Bentonite Clay to stop the diarrhea. Works quickly for me. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.