Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Condition worsened after gluten free diet


a91

Recommended Posts

a91 Newbie

I am on the 4th day of my gluten free diet and my condition worsened compared to when I was eating gluten food.

Is this a normal thing in the beginning?

Before that I was going out 1-2 times a day, it is already the third day I am going out like 4 times a day which I don't think is normal.

 

ps. I am sure that i am using gluten free food, because we make everything at home.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

It does get a bit worse as your system clears out and your antibodies come down, you will also get more sensitive and many of us went through a withdrawal stage on the levels of a opid withdrawal. 

Few things to consider, read the Newbie 101 thread to make sure you decontaminated your cooking space, IE new colander, threw out scratched pans, wooden spoons, condiments in jars with crumbs, CCed spices etc. Whole unprocessed foods are your friends right now, and most processed gluten free premade foods are loaded with starches, sugars and stuff you do not want or need at this point. https://www.celiac.com/forums/topic/91878-newbie-info-101/

Second many of us have to remove dairy and oats for awhile, the enzymes to break down dairy are produced by the tips of the villi...which are damaged with celiac, oats are commonly CCed and some celiacs have the same issues wit them. Food sensitivities and intolerance issues are also common, keep a food diary record what you eat, how it is prepared and how it effects your hours later and throughout the day, change up your diet removing foods for a few days and look for patterns.

 

Jmg Mentor
  On 1/30/2018 at 6:59 PM, a91 said:

I am on the 4th day of my gluten free diet and my condition worsened compared to when I was eating gluten food.

Is this a normal thing in the beginning?

Before that I was going out 1-2 times a day, it is already the third day I am going out like 4 times a day which I don't think is normal.

Expand Quote  

If you have an issue with gluten as your dr suspects

https://www.celiac.com/forums/topic/120627-is-diagnosis-based-on-anti-endomisial-antibody-iga-and-igg-enough/?do=findComment&comment=987849

Then it's quite normal to have a rocky time when you start the gluten free diet. If you think that your body has been under attack for a long time, it has its armies ready to fight and all of a sudden the enemy disappears! It's a major change for your gut and major change in the gut tends to equal upset and discomfort.

stick it out, stay gluten free, keep a journal noting what you eat and when and how you feel. That will help you and your doctor piece this together. 

Google how to keep a food journal for more info :)

best of luck

matt

Juca Contributor

I only had occasional intestinal problems before my diagnosis, so I am not the best person to tell you if is normal for it to get worse. However, for the first few weeks, I did feel even more tired than usual (and I was already always tired and sleepy!). But suddenly, around the 3rd week, I could think clearly. Before, I would had to think for a while just to remember what I did that day. And then, out of nowhere, it was in the evening and I was fully awake and my brain running like I didn't remember it could. 

I was so happy. 

The body took a little while longer to catch up, though. I needed the iron infusions and vitamin injections to have more physical stamina and not run out of breath just by going up a street. 

 

So, hang in there. Stick to the basics (bone broth, ginger tea, some digestive enzymes, no dairy, cooked veggies and some meat..), get as much rest as you can and let us know how you are doing. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,784
    • Most Online (within 30 mins)
      7,748

    Suzanne R
    Newest Member
    Suzanne R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Waterdance
      Thank you so much for your informative reply. My GI doctor ruled out gluten celiac entirely because I didn't have skin rash. I had a histamine response to wheat and milk by scratch test by an allergist. I'm not always symptomatic but the older I get the worse it gets. I've found through trial and error that I can react to all grains. Buckwheat and corn included. I tolerate some rice but I wouldn't want to eat it every day. Potato is pretty good for me but I can't eat it every day either. I compromise with squash. I tolerate it well. The Best I feel is while fasting. When I'm in pain and discomfort it's easy to fast even long term, it helps. The problem I'm having is I'm great with my diet for 3-6 months...
    • Scott Adams
      This isn't the first potential celiac disease treatment in the pipeline that failed. There have been others...
    • Kwinkle
    • trents
      First of all, being able to return to foods that you have developed a sensitivity to in connection with celiac disease is not a given. You may or may not be able to do this with time. But the ability to do so seems to be connected with the healing of the villous lining of the small bowel which often takes 2-3 years in adults after attaining to consistently truly gluten free diet. But you will just have to test the waters. Experimentation with those foods is the only way. Realize also there are thresholds of tolerance. You may be able to consume those foods without issue but not as often and in lesser amounts than in your pre celiac days. So, start small and go slow.
    • trents
      Welcome to the forum, @Waterdance! Constipation and diarrhea are classic celiac symptoms and hemorrhoids is usually the outworking of either or both of those two problems. But I'm curious about your statement, "I probably don't fit the diagnostic criteria for a diagnosis of Celiac Disease." Perhaps your understanding of what that encompasses is outdated and deficient, as is also true of many physicians. Actually, now there are over 200 symptoms and medical conditions that have come to be associated with celiac disease and the list keeps growing.  And you use the term "gluten intolerance". What does that mean to you? Actually, gluten intolerance is a catch all...
×
×
  • Create New...