Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

hands - weird...


LookingforAnswers15

Recommended Posts

LookingforAnswers15 Enthusiast

Hi all,

Almost four years ago, I was diagnosed with Celiac. I did everything I could to avoid gluten, never cheated, but last year my tests were horrible, as bad as they were when I first found out I had celiac. I realized that some products were not safe as they claimed to be. So, I stopped eating them and if I was stressed out, I would only buy the most expensive ones from Germany since I thought that they had to fulfill certain standards. Anyhow, soon after I was diagnosed , I noticed that my ring finger, right hand, used to tremble. Now, it still trembles but I feel like my pinky is moving toward the right (maybe it is because of this that i felt that the ring finger was shaking). Also, the pinky on my left hand involuntarily just rises. I have to admit it is very freaky and terrifying. I noticed that when I eat gluten free chocolate or other sweet products, that my hands and even wrists hurt so much. So, since February 15, I have not had any gluten free products. What do you think? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

Celiac Disease causes malabsorption which results in malnutrition and vitamin and mineral deficiencies.  

Here's an article that explains how vitamin deficiencies might be the cause of your finger problems.

Open Original Shared Link

I found I felt much better after going on the AutoImmune Paleo Protocol (AIP) diet and a low histamine diet.  Others follow the Fasano diet with good results.  The AIP diet cuts out most processed foods.  Gluten free versions of processed foods often contain additives like microbial transglutaminase (called meat glue) which is used to enhance texture and flavor.  It's even used in yogurt.  But, it causes inflammation in Celiacs.  Here's an article about it.

Open Original Shared Link

You might want to discuss deficiencies with your doctor before starting supplementing on your own in order to get a base line, an accurate measurement of your nutritional status.   

Hope this helps.  

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,766
    • Most Online (within 30 mins)
      7,748

    girgade
    Newest Member
    girgade
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • stephaniekl
      She used to take supplements, but her abdominal pain is so debilitating that she hasn't been able to continue.  Her primary care team has been suggesting liquid supplements rather than pill form to help.  They just drew a lot of blood Friday and we are slowly getting all that work back.  I will definitely check into thiamine!  Thanks!
    • stephaniekl
      They have not done that yet.   We are looking at some other treatments to help. And you are correct.  The tickborne illness has been a wild ride.  Our whole family has been battling different tickborne illnesses.  Its expensive and exhausting.  
    • cristiana
      I cannot tolerate it at all - triggers burning and nausea, ditto aspirin.  Here in the UK I take Paracetamol.
    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.