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Hey everyone, 

  I was recently diagnosed with Celiac Disease in October of 2017. Since then I have been extremely careful with what I eat and always ask the servers at restaurants if something has gluten in it. This weekend, I went out to eat and the waiter gave me a sauce with gluten in it, and he remembered after I ingested almost all of it, that it had flour in it. The next 24 hours were the most painful and excruciating hours of my life, and I would say almost as bad as my contractions when I had my daughter. I went to the ER due to intestinal/stomach cramping so bad that I was screaming in pain and couldn't move. They did all sorts of tests and ultrasounds, xrays, etc.... Because the doctor said that a gluten allergic reaction would not cause this much pain. And again just like my visits before, tests came back negative. Well it's been 4 days since then and the pain is slowly going away. I've read that people have these pains for days on end, just like me.. But has anyone found a solution? If you have, I would love to know what you've found.. Or even if you've experienced this and found something to calm the cramping, bloating, gas pains, and vommiting. I've tried gas-x, hot tea, hot baths, intestinal massages to relieve gas, peptobismal, dyciclomine, heating pad, zofran, and lots of water. Thank you in advance! And I wish you all good health!

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Celiac.com Sponsor (A8):

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They make a enzyme that can break down some of the gluten and lessen reactions, GlidenX is the one I tried this last exposure, I still had symptoms but nothing horrific and painful. Star Anise I used to use for gas, other wise it is laying down and massaging my gut hoping for a quick pass. You mentioned all the others....seems like you tried about it all....I will admit I have been tempted in the past to just down a whole bottle of laxatives and flush my guts....but I do not think that would help once the antibody wild cat reaction in your system starts.

We always say eating out is like playing russian roulette. I have stopped eating out, only a few places I would consider that are 100% dedicated now days to gluten free. Since your new have you seen the newbie 101 thread? I also have been working on and about 2-4 times a year post a updated gluten free alternative list of products.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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