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Salted nuts


Smilewiper91

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Smilewiper91 Apprentice

Anyone know if packets of salted nuts contain gluten? Not being able to eat crisps I thought I would buy myself some salted nuts to snack on. Anyway ate them and soon after felt really bloat. They didn't say they contain gluten but neither did they say they was gluten free? I also ate earlier some tilda peri peri rice but that was marked gluten free and I ate that way before the nuts and didn't notice any bloat so kind of ruling them out. Although have been told spicy food may bloat me at first while my stomach needs time to heal? Was the only pack of peri peri rice I brought anyway rest are all brown rice gluten free.


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Ennis-TX Grand Master

Depends on who makes them, processing facilities, and packaging plants, they are naturally gluten free, get ones in the shell still wash them crack them and eat the safe insides? ....most of us get their nuts Open Original Shared Link

Smilewiper91 Apprentice

Was cheat nuts and not the type that come in a shell. It must be them as was only thing I ate yesterday that was different and the level of bloat was like no over lol. Lesson learnt, there is some snacks I can buy by a company which is all vegan. I am just gonna stock up on these for any time I fancy a snack. Healthier anyway but at the time i just fancied a snack and didnt read gluten so thought i would be okay. 

LilyR Rising Star
On 5/8/2018 at 8:36 PM, Smilewiper91 said:

Anyone know if packets of salted nuts contain gluten? Not being able to eat crisps I thought I would buy myself some salted nuts to snack on. Anyway ate them and soon after felt really bloat. They didn't say they contain gluten but neither did they say they was gluten free? I also ate earlier some tilda peri peri rice but that was marked gluten free and I ate that way before the nuts and didn't notice any bloat so kind of ruling them out. Although have been told spicy food may bloat me at first while my stomach needs time to heal? Was the only pack of peri peri rice I brought anyway rest are all brown rice gluten free.

I am so glad you brought this up, because I had not really thought about nuts, but I have been eating some.  I was eating some Blue Diamond almonds here and there, but after just checking a website article I found online, I am not sure I trust their CC issues now.  

I did just found some info on Fisher Nuts that sounds very promising:
"John B. Sanfilippo & Son, Inc. (JBSS) recognizes sources of gluten as defined by the FDA: wheat, rye, barley and their crossbred hybrids like triticale. Our facilities allergen control program, labelling program, and procedures work together to assure that product matches the label and articulates in the ingredient statement presence of gluten ingredients where appropriate. Some of our product offerings do contain gluten and are produced and packaged within the same facility. The separation, segregation, and sanitation measures that we take are verified to indicate that we appropriately manage gluten segregation. We routinely test our gluten free products to ensure that they do not contain traces of products that contain gluten." Open Original Shared Link

 

I looked at amazon to check out some of their packages, and it's weird. I saw two that actually say gluten-free on the back - one for a butter toffee nut, and one for a Summit Trail Mix. Both those say gluten-free on the packaged. (Although sadly for me, they contain soy and other things.)  But yet looking at some of their salted, roasted nuts which I would assume are gluten-free, I did not see an actual Gluten Free label on them, even though the ingredients don't have any gluten, and it does say for allergens could contain peanuts or other tree nuts.  Hmm? Oh, I just saw a bag of cashews that state Gluten Free.  Maybe it's newer packaging?

Anyone had any luck with Planters?  They make it sound like they list any allergens on their packages.

Open Original Shared Link

 

 

Ennis-TX Grand Master
28 minutes ago, LilyR said:

I am so glad you brought this up, because I had not really thought about nuts, but I have been eating some.  I was eating some Blue Diamond almonds here and there, but after just checking a website article I found online, I am not sure I trust their CC issues now.  

I did just found some info on Fisher Nuts that sounds very promising:
"John B. Sanfilippo & Son, Inc. (JBSS) recognizes sources of gluten as defined by the FDA: wheat, rye, barley and their crossbred hybrids like triticale. Our facilities allergen control program, labelling program, and procedures work together to assure that product matches the label and articulates in the ingredient statement presence of gluten ingredients where appropriate. Some of our product offerings do contain gluten and are produced and packaged within the same facility. The separation, segregation, and sanitation measures that we take are verified to indicate that we appropriately manage gluten segregation. We routinely test our gluten free products to ensure that they do not contain traces of products that contain gluten." Open Original Shared Link

 

I looked at amazon to check out some of their packages, and it's weird. I saw two that actually say gluten-free on the back - one for a butter toffee nut, and one for a Summit Trail Mix. Both those say gluten-free on the packaged. (Although sadly for me, they contain soy and other things.)  But yet looking at some of their salted, roasted nuts which I would assume are gluten-free, I did not see an actual Gluten Free label on them, even though the ingredients don't have any gluten, and it does say for allergens could contain peanuts or other tree nuts.  Hmm? Oh, I just saw a bag of cashews that state Gluten Free.  Maybe it's newer packaging?

Anyone had any luck with Planters?  They make it sound like they list any allergens on their packages.

Open Original Shared Link

 

 

I know we have had several people complain about getting poisoned by planters and gluten.
Again Open Original Shared Link has a gluten free section....I have peanut issues so I buy my other nuts from dedicated sources most the times, like hamond black almonds, mariani for plain walnuts and pistachios, sometimes use wonderful pistachios, I found Traders Joes Brazil Nuts, macadamia nuts, pecans to be safe and nima test them after turning whole batches into butter to be sure. I started buying almonds from alddrin bros recently for their sliced is a high oil content blend making butters super smooth and more keto friendly, their roasted pieces are great for snacking...and the cheapest you fill find them in the 25lb cases.

LilyR Rising Star
8 minutes ago, Ennis_TX said:

I know we have had several people complain about getting poisoned by planters and gluten.
Again Open Original Shared Link has a gluten free section....I have peanut issues so I buy my other nuts from dedicated sources most the times, like hamond black almonds, mariani for plain walnuts and pistachios, sometimes use wonderful pistachios, I found Traders Joes Brazil Nuts, macadamia nuts, pecans to be safe and nima test them after turning whole batches into butter to be sure. I started buying almonds from alddrin bros recently for their sliced is a high oil content blend making butters super smooth and more keto friendly, their roasted pieces are great for snacking...and the cheapest you fill find them in the 25lb cases.

It is so disappointing when a company says they pay attention and list gluten, or they tell you their CC policies, but then people end up getting gluten symptoms when they eat the stuff.  Fisher states they test their products for gluten too. I'll have to check out the prices of the link you gave us compared to Fisher and such.  I don't buy nuts often because they are pricey, but to have just a small handful here and there, they do last a while.  And even if the ones in stores are cheaper, no good wasting a penny on them if they could cause symptoms.  :(  But very good to know since maybe that contributes to my bloat at times.  I tended to think it was not gluten, but some other stuff bothering me maybe. Since gluten tends to give me a bad stomach ache and I lose a few pounds.  But if it's just a tiny, tiny trace, maybe it would cause just the bloat.  So much to keep learning.  

I am happy today though. Found some marinated artichoke hearts and canned artichokes that state gluten-free right on the labels.  The brand is Pastene.  Some did not state gluten-free, but some did, including some artichoke bottoms.  It is curious that some of their products state gluten-free on the, while others don't, even though they seem very similar. Like some of the red peppers say they are gluten-free, but others don't. Some of the artichokes do, some don't.  The foggy world of gluten! 

Ennis-TX Grand Master
22 minutes ago, LilyR said:

It is so disappointing when a company says they pay attention and list gluten, or they tell you their CC policies, but then people end up getting gluten symptoms when they eat the stuff.  Fisher states they test their products for gluten too. I'll have to check out the prices of the link you gave us compared to Fisher and such.  I don't buy nuts often because they are pricey, but to have just a small handful here and there, they do last a while.  And even if the ones in stores are cheaper, no good wasting a penny on them if they could cause symptoms.  :(  But very good to know since maybe that contributes to my bloat at times.  I tended to think it was not gluten, but some other stuff bothering me maybe. Since gluten tends to give me a bad stomach ache and I lose a few pounds.  But if it's just a tiny, tiny trace, maybe it would cause just the bloat.  So much to keep learning.  

I am happy today though. Found some marinated artichoke hearts and canned artichokes that state gluten-free right on the labels.  The brand is Pastene.  Some did not state gluten-free, but some did, including some artichoke bottoms.  It is curious that some of their products state gluten-free on the, while others don't, even though they seem very similar. Like some of the red peppers say they are gluten-free, but others don't. Some of the artichokes do, some don't.  The foggy world of gluten! 

I do not use fisher due to their shared equipment statments with peanuts. I would assume they are safe for celiac but no gluten free labeling and they do seasoned blends sometimes...probably a different facility but you learn to question these (the frozen veggie companies that do sauced gluten lines on the same equipment for the plains) when you get glutened by the oddest things then call the company to learn of crazy practices.

Artichokes....dear lord lol I recall playing with those years ago. I cooked one once, then served it with a tomato soup/marinara  in it....thing looked like something out of aliens or dune. Open Original Shared Link


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LilyR Rising Star
On 5/10/2018 at 3:47 PM, Ennis_TX said:

I do not use fisher due to their shared equipment statments with peanuts. I would assume they are safe for celiac but no gluten free labeling and they do seasoned blends sometimes...probably a different facility but you learn to question these (the frozen veggie companies that do sauced gluten lines on the same equipment for the plains) when you get glutened by the oddest things then call the company to learn of crazy practices.

Artichokes....dear lord lol I recall playing with those years ago. I cooked one once, then served it with a tomato soup/marinara  in it....thing looked like something out of aliens or dune. Open Original Shared Link

Fisher says they often check their gluten-free items to make sure they are gluten-free.  It's hard to trust sometimes though until you've heard other people say they used them and are fine with them.  

Artichokes are weird looking, for sure.  I only cooked whole ones once.  They were good, but I just never bothered again. But my daughter and I really like them, especially on cheese and crackers.  Not I just can't eat any crackers.  And the one time I tried some extra sharp cheese from a brand that is suppose to be gluten-free, for some reason I still got a stomach ache.  I love the marinated artichokes, but would like to try making some artichoke burgers from the canned ones.  I heard some Walmarts sell gluten-free artichoke burgers in the freezer section, but unfortunately the one in my town does not.  But it sounds good. And I need something to replace the turkey burgers I have been getting.  They have fat and cholesterol and I need to start cutting back on both.  Someone told me a store in town has portebella mushroom patties that are labeled gluten-free.  I will have to check them out and make sure there is no soy or corn and such in them too.  If not, I will try those. 

Ennis-TX Grand Master
22 minutes ago, LilyR said:

Someone told me a store in town has portebella mushroom patties that are labeled gluten-free. 

OMG I love making pizza out of the mushrooms, turn upside down remove the stem and some of the fins, preheat the oven with a cookie sheet/pizza pan in it to 400F. Put a few spoons of sauce over them or pesto, then add in some vegan cheese like miyoko mozz and other toppings and cook 15-20mins. Healthy take on bagel bites, and if you put other "supreme" pizza toppings on it.....well the mushroom blends great with it. I ate those for few weeks once when I got a huge batch of the mushrooms on sale back before I discovered Califlour foods plant based pizza crust.
You could roast them this way in the oven top with slice of vegan cheese, broil, then serve topped with standard hamburger ingredients like lettuce, tomato, ketchup, and mustard. To really bring out the "Burger" flavor drizzle with a bit of gluten free Worcestershire sauce (Lea & Perrins should be), and if you get get it, Spicely Organics Beef and Burger Seasoning. Open top portobella burger

On the whole turkey burger thing, do you have bad cholesterol? I had to start taking pectin, and eating a ton more nuts to normalize mine. Learned I am genetically predisposed to bad cholesterol nuts and pectin normalized it.....amusingly my doctor was really concerned I was eating a ton of meat and whole eggs when I was practically on a vegetarian diet with egg whites.

Side note I just cooked up the most amazing Italian goulash/pasta dish with Jennie-O Italian ground turkey, Miracle Noodle no carb Ziti Noodles and Thrive Market Marinara sauce.....3 simple ingredients for the most flavorful and easy dish. I served it up as my catered special today with paleo herb bread and lettuce wraps.

LilyR Rising Star
4 hours ago, Ennis_TX said:

OMG I love making pizza out of the mushrooms, turn upside down remove the stem and some of the fins, preheat the oven with a cookie sheet/pizza pan in it to 400F. Put a few spoons of sauce over them or pesto, then add in some vegan cheese like miyoko mozz and other toppings and cook 15-20mins. Healthy take on bagel bites, and if you put other "supreme" pizza toppings on it.....well the mushroom blends great with it. I ate those for few weeks once when I got a huge batch of the mushrooms on sale back before I discovered Califlour foods plant based pizza crust.
You could roast them this way in the oven top with slice of vegan cheese, broil, then serve topped with standard hamburger ingredients like lettuce, tomato, ketchup, and mustard. To really bring out the "Burger" flavor drizzle with a bit of gluten free Worcestershire sauce (Lea & Perrins should be), and if you get get it, Spicely Organics Beef and Burger Seasoning. Open top portobella burger

On the whole turkey burger thing, do you have bad cholesterol? I had to start taking pectin, and eating a ton more nuts to normalize mine. Learned I am genetically predisposed to bad cholesterol nuts and pectin normalized it.....amusingly my doctor was really concerned I was eating a ton of meat and whole eggs when I was practically on a vegetarian diet with egg whites.

Side note I just cooked up the most amazing Italian goulash/pasta dish with Jennie-O Italian ground turkey, Miracle Noodle no carb Ziti Noodles and Thrive Market Marinara sauce.....3 simple ingredients for the most flavorful and easy dish. I served it up as my catered special today with paleo herb bread and lettuce wraps.

That is a great idea using mushrooms for little pizza bites.  And I love worcestershire sauce. I will have to look into that beef and burger seasoning. I have not tried the miracle noodle yet.  I found a white rice noodle at a local store that has been pretty good. Your goulash sounds really good. 

I am not sure about my cholesterol. I think I really need to stop eating so much of it.  I have been eating a lot of eggs, cheese, and such since going gluten-free.  (Since getting my cholesterol checked recently, I am now starting to use more of the egg whites and not so many yolks.) I used to also use Smart Balance instead of butter, but have gone back to butter because I think I read something in Smart Balance, can't remember, maybe soy?  So I really need to just be better about what I'm eating. My triglycerides were good, but the other stuff was high.  I should look for some of those non-dairy cheese options you have mentioned.  I am guessing those are healthier than dairy cheeses? I just am not sure about the cost. Our grocery budget is tight. So I just need to cut some of those cholesterol sources I've been eating. I also have not been eating as much fiber the past year because my stomach has been so bloated, so hopefully as it gets better I can start eating more beans and veggies and such. 

For pectin, do you eat a lot of apples and pears, or do you get supplements?  I used to eat more of those too, but again, have cut back on fiber the past year with my stomach such a mess. I found a Nature Made supplement online that is suppose to help cholesterol and I emailed them to ask if there is any gluten, soy, or corn in it.  If not, I may try taking those to see if it helps any. I think it was called Cholestoff.   

Ennis-TX Grand Master
40 minutes ago, LilyR said:

That is a great idea using mushrooms for little pizza bites.  And I love worcestershire sauce. I will have to look into that beef and burger seasoning. I have not tried the miracle noodle yet.  I found a white rice noodle at a local store that has been pretty good. Your goulash sounds really good. 

I am not sure about my cholesterol. I think I really need to stop eating so much of it.  I have been eating a lot of eggs, cheese, and such since going gluten-free.  (Since getting my cholesterol checked recently, I am now starting to use more of the egg whites and not so many yolks.) I used to also use Smart Balance instead of butter, but have gone back to butter because I think I read something in Smart Balance, can't remember, maybe soy?  So I really need to just be better about what I'm eating. My triglycerides were good, but the other stuff was high.  I should look for some of those non-dairy cheese options you have mentioned.  I am guessing those are healthier than dairy cheeses? I just am not sure about the cost. Our grocery budget is tight. So I just need to cut some of those cholesterol sources I've been eating. I also have not been eating as much fiber the past year because my stomach has been so bloated, so hopefully as it gets better I can start eating more beans and veggies and such. 

For pectin, do you eat a lot of apples and pears, or do you get supplements?  I used to eat more of those too, but again, have cut back on fiber the past year with my stomach such a mess. I found a Nature Made supplement online that is suppose to help cholesterol and I emailed them to ask if there is any gluten, soy, or corn in it.  If not, I may try taking those to see if it helps any. I think it was called Cholestoff.   

Actually, I make sugar free jam with pomona universal pectin, it uses calcium water instead of sugar to set up. So I use with almond, coconut, or cashew milk, or use the calcium packet they provide, then swerve sugar replacement sweetener and extracts from lor ann or watkins to make fruit or cream cheese flavored jams without using actual fruit, sugar, or cheese lol. Also used it in vegan icecream to make it thicken up when using almond milk.
You can also use psyllum husk to lower cholesterol but try to use it in moderation, I use it in my breads I make with egg whites so it really helps level stuff out.
OH on the butter....Nutiva Makes butter flavored coconut oil, I just use a bit on toast, in baked goods, and when cooking for butter flavoring. With my lactose intolerance and whey allergy sort of a must.
If your cutting out egg yolks replace the fat and help the egg set up better, try hand blending like a tbsp of say chia meal, flax meal, or coconut flour into every 1 cup of egg whites and a few tbsp of almond milk or water to "fluff" them. Great for making them set up more like a crust in quiche. Different meals give different flavors, adding more like 2tbsp of chia/flax meal (mygerbs.com) and 2 coconut flour and blending will get you a type of batter that can be adjusted and played with for pancakes, waffles, baked egg dishes. Sometimes I just blend in avocado then top the scrambled eggs/avocado mix with salsa and eat with a coconut wrap.

Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
 

Juca Contributor

I know your body better than me surely, but you can also consider that some nuts are high in Fodmaps and that can be causing your bloating, not gluten. I had bloating and really bad abdominal pain, and it was just the Fodmaps. 

If so, you can only eat small amounts of them at a time (cashews, almonds, dried mango..). It should be only temporary. 

LilyR Rising Star
15 hours ago, Ennis_TX said:

Actually, I make sugar free jam with pomona universal pectin, it uses calcium water instead of sugar to set up. So I use with almond, coconut, or cashew milk, or use the calcium packet they provide, then swerve sugar replacement sweetener and extracts from lor ann or watkins to make fruit or cream cheese flavored jams without using actual fruit, sugar, or cheese lol. Also used it in vegan icecream to make it thicken up when using almond milk.
You can also use psyllum husk to lower cholesterol but try to use it in moderation, I use it in my breads I make with egg whites so it really helps level stuff out.
OH on the butter....Nutiva Makes butter flavored coconut oil, I just use a bit on toast, in baked goods, and when cooking for butter flavoring. With my lactose intolerance and whey allergy sort of a must.
If your cutting out egg yolks replace the fat and help the egg set up better, try hand blending like a tbsp of say chia meal, flax meal, or coconut flour into every 1 cup of egg whites and a few tbsp of almond milk or water to "fluff" them. Great for making them set up more like a crust in quiche. Different meals give different flavors, adding more like 2tbsp of chia/flax meal (mygerbs.com) and 2 coconut flour and blending will get you a type of batter that can be adjusted and played with for pancakes, waffles, baked egg dishes. Sometimes I just blend in avocado then top the scrambled eggs/avocado mix with salsa and eat with a coconut wrap.

Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
Open Original Shared Link
 

Thanks for that info and the links.  I was going to make some quiche this weekend and only use a few egg yolks and the rest all whites, so thank you for that tip to add stuff to it. I do have some coconut flour already, so will try that.  

Do you know of any brands of dairy-free yogurts that might be healthy (as in low cholesterol, low fat or at least healthy fat) but not made of soy?  I think I heard some might be made with coconut milk? But I have no idea what brands to look for.  

I am working on a grocery list and trying to add in some veggie meals and low cholesterol.  I have a few I used to make back when I could eat gluten, so just tweak a few of those. I just hope my stomach can handle all the fiber.  

  

Ennis-TX Grand Master
1 hour ago, LilyR said:

Thanks for that info and the links.  I was going to make some quiche this weekend and only use a few egg yolks and the rest all whites, so thank you for that tip to add stuff to it. I do have some coconut flour already, so will try that.  

Do you know of any brands of dairy-free yogurts that might be healthy (as in low cholesterol, low fat or at least healthy fat) but not made of soy?  I think I heard some might be made with coconut milk? But I have no idea what brands to look for.  

I am working on a grocery list and trying to add in some veggie meals and low cholesterol.  I have a few I used to make back when I could eat gluten, so just tweak a few of those. I just hope my stomach can handle all the fiber.  

  

So Delicious, silk, and almond breeze make non dairy yogurts. I used to use the So delicious til they tried using xantham gum in them and I started making my own after that. Simple process warming up a mason jar full of nut milk of choice, then dumping in 2x 50billion probiotics, cheese cloth over the top and letting them populate for like 24 hours.....just be careful with timing as it can easily go rancid. I found they love Swerve Sweetener in it, and thicken it up nice (the probiotic  bacteria)

LilyR Rising Star
22 hours ago, Ennis_TX said:

So Delicious, silk, and almond breeze make non dairy yogurts. I used to use the So delicious til they tried using xantham gum in them and I started making my own after that. Simple process warming up a mason jar full of nut milk of choice, then dumping in 2x 50billion probiotics, cheese cloth over the top and letting them populate for like 24 hours.....just be careful with timing as it can easily go rancid. I found they love Swerve Sweetener in it, and thicken it up nice (the probiotic  bacteria)

Thanks for the brand names.  I always worry about making stuff like that, as you say, timing and getting rancid or if I mess up and it goes bad. And I'm so exhausted lately, I do home cooking,but any short cuts I can get lately, I am all for that.  

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      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
    • trents
      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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