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Does this look like DH?

jenna3

By jenna3
in Dermatitis Herpetiformis

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jenna3 Rookie
jenna3
Posted

Hi everyone and thanks in advance for any advice you can give me. And apologies for the TMI.

A little history, 38 yo female, I have had autoimmune problems since I was 12, when I developed vitiligo. Thyroid is gone from Graves Disease. Autoimmune hives which have been in remission for years, but suffered for years at a time. Anemia at times. Gallbladder gone. Just this morning I had Balloon Sinuplasty for a nasty sinus infection that has my Eustachian tubes swollen shut. Skin allergy test for things like dust, pollens, mold, animals, was negative. Been on and off antibiotics and prednisone for a month. I have had both meningitis and shingles.

I posted a year ago, I had asked my doctor to test me for Celiac as I have stomach issues. Blood work came back 'weakly positive' and my Endoscopy only found chronic gastritis. So the whole idea was dismissed by my doctors. At the time, I also had a rash on my scalp, which I thought was heat/sweat related. This week, I am finding these 'sores' on my scalp, neck, back, chest, and shoulder. Both sides of my body, but not really symmetrical in any way that I can tell. Itching is not extreme, but they are painful. My head is just throbbing, probably at least 20 sores there. Some have a white head, clear liquid when popped, then blood. Leaves a rather large hole that scabs over. 

I really can't find what else this could be. I will be making a derm appointment as soon as I can.

Gliaden, IGA value 30.1   reference shows <20.0 is negative >30.0 is positive

T Transglutamin IGA value 7.7   reference range <4.0 is negative and 4.0-10.0 is 'weak positive'

Celiac Disease Cascade value 167   reference range 61 to 356

 

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Just some more images.

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Bree J Apprentice
Bree J
Posted

I get similar sores. My scalp is also a mess, and it doesn't help that I pick at it...

I don't really have an answer for you because my testing wasn't super conclusive either, but I can definitely relate to those pictures. I get tiny ones on my hands a lot.

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