Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Possibly DH? Celiac?


Laurenburk421

Recommended Posts

Laurenburk421 Newbie

I'm 27 and have been experiencing blister rashes since 2012 (when I first noticed) I also observed they were exacerbated during times of high stress...looking back I was most likely eating "feel good" foods during those times. It mostly appears on my shins, incredibly itched and after much research presents almost exactly like DH. 

I've done my own experiments, when i stop eating gluten, rashes go away. Reintroduce, they come back. But it comes back sporadically. Days after eating very little with a strong reaction. Or immediate with a small reaction. It's never the same. I have no digestive issues.

I have a distant cousin w Celiac and my mother has throid issues. Should I go to the dermatologist or internal medicine doctor to be diagnosed? Or should I continue to eat gluten-free with no diagnosis? Help?! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

Hi, You could try a dermatologist first.  But make sure to check around and find one who is experienced with celiac disease.  The test for DH is to take a small skin biopsy from next to a lesion, not on the lesion.  Then they check it for IgA antibodies.  For the regular (non-DH) celiac testing, they take blood samples for  antibody testing.  They call it a celiac panel.  Then they do an endoscopy to take biopsy samples of the small intestine lining.  They check those biopsies for celiac type damage.  For the regular testing a gluten challenge of eating gluten for 12 weeks for the blood tests and 2 weeks for the endoscopy is recommended.

I don't know if they recommend a similar period of eating gluten before the skin biopsy.  But I do know that people with DH sometimes don't have positive blood tests.  It seems the antibodies are in their skin instead of their blood.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,655
    • Most Online (within 30 mins)
      7,748

    Sandy Bromberg
    Newest Member
    Sandy Bromberg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.