Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Doctor In Los Angeles


Edgar

Recommended Posts

Edgar Newbie

I've been experiencing symptoms of Glueten intolerance for the past 5years. It began after a bout of extremely strong anti-biotics for a sinus infection. It first showed up as dizziness and brain fog, then built progressively over the past 5 years to include a range of symptoms from depression, anxiety and lack of sleep to brain fog, dizziness and severe gastro problems.

It was an allergist who first suggested wheat allergies. I followed up with not one but two GI doctors in Los Angeles and Burbank. One suggested celiacs, another refused to even consider it. Niether did testing and the one who thought I was celiacs seems to have been reitred under odd circumstances (You could say I've seen three GI guys. One of this doctors partners their practice saw me when I did a return visit and insisted the diagnosis of celiacs was a mistake).

I've been kind of floundering on my own since. I'd love a recommendation for a good GI doctor in Los Angeles who has experience with celiac disease.

I've been seeing a nutritionist for help. Aside from being a great accupuncurist, I haven't really gotten much help from her. She keeps prescribing enzymes and things designed to increase acid production. These only seem to make things worse. I know I feel better when I've been able to avoid glueten for even a few days but the symptoms are getting worse so I've resolved to get aggressive about diet and treatment with the new year. Suggestions for doctors in town are sincerely appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



uclangel422 Apprentice

I live in Sherman Oaks and I see Dr. Michael Hirt, he is a general internal medicine guy and he diagnosed me.

I also work in Burbank at a hospital and for G.I. guys, Dr. Kerry Weiner is supposed to be the best.

Edgar Newbie

I'm a little dubious about Dr. Weiner. It was a partner in his practice that refused to test me and insisted there was no such thing as a food allergy.

Edgar Newbie

I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

nathela Rookie
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

I live in Los Feliz, in Los Angeles. I am also looking for a good celiac GI specialist in the area. So, if you like the new doctor, can you let me know? Thank you. I am going to research on naturepath.com... I heard it might be helpful. :)

uclangel422 Apprentice

I am so sorry that that happened to you with someone affiliated with my hospital. Thanks for telling me about that too, i will stay away from them if i ever need any GI work done.

  • 3 years later...
rpinette Newbie
I spoke with Dr. Pietzak at Children's Hospital. She referred me to Dr. Zipser in San Dimas. I set an appointment to see him in January. Thanks for the referrals.

Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nasalady Contributor
Edgar, where you happy with Dr. Pietzak? I too am looking for an LA based doctor. Thanks.

Pietzak is exclusively a pediatric doctor, as far as I know. She wouldn't even see my little girl and had her seen by a younger GI doctor (Collins) at CHLA. We do like Dr. Collins, but even though Emma's DNA test revealed HLA DQ2, she wouldn't order a biopsy because Emma's bloodwork was negative. The celiac panel is notoriously inaccurate in young children. I put Emma on the gluten free diet and her eczema disappeared and she started to gain weight.

I saw Dr. Peter Rosenberg in Pasadena. He took me seriously and is a good listener. I think he's the best GI doctor that I've seen.

The only negative I have to report is that when my husband saw him recently (my husband has DH, which I've understood from this board to be an automatic diagnosis of celiac disease), he said that he wasn't convinced that Paul had celiac and wants him to have the celiac panel run even though he's been gluten free since JANUARY. I was surprised by this, because Rosenberg seemed to be up on the latest celiac research.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.