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Recent Activity
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- knitty kitty replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20Blood results
Have you had a DNA test to look for Celiac disease genes? If she doesn't have any celiac specific genes, look for another explanation. If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing. All first degree relatives (mother, father, siblings, children) should be genetically tested as well. Sometimes blood... -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20Blood results
That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me -
- RMJ replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20Blood results
When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. ... -
- Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms20
Blood results
So even though she was initially diagnosed with IBS, could that have been wrong and she has had coeliac all along even though the endoscopy only showed potential flattening and atrophy inD1. Plus one positive and one negative blood result.It’s so confusing for my old brain!!!! -
- NoGlutensToday posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Is Purito's Oat In Calming Gel Cream safe for celiacs?
I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face. In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,...
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By knitty kitty · Posted
Have you had a DNA test to look for Celiac disease genes? If she doesn't have any celiac specific genes, look for another explanation. If she does have Celiac genes, assume they are turned on and active Celiac disease is progressing. All first degree relatives (mother, father, siblings, children) should be genetically tested as well. Sometimes blood tests are ambiguous or false negatives if one has anemia, diabetes or thiamine deficiency. Certain medications like antihistamines and steroids can suppress the immune system and result in false negatives or ambiguous results on antibody tests. -
By Heatherisle · Posted
That was just the visual report, so need to wait for confirmation or otherwise from the results. They did take a biopsy from the upper end of the duodenum(D1). D2 looked unremarkable on the camera. Just wish we didn’t have to wait so long for the results as she’s naturally a very anxious person. But thanks so much for taking the time to answer me -
When you say the endoscopy showed potential flattening and atrophic villi, Is that the visual result and you’re still waiting for the pathology report on the biopsies? It is quite possible to have the endoscopy look ok and the biopsies show celiac damage. That happened at my last endoscopy. It is also quite possible to only have damage in some areas. Hopefully her doctor took biopsies from the areas with potential flattening and atrophy.
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By Heatherisle · Posted
So even though she was initially diagnosed with IBS, could that have been wrong and she has had coeliac all along even though the endoscopy only showed potential flattening and atrophy inD1. Plus one positive and one negative blood result.It’s so confusing for my old brain!!!! -
By NoGlutensToday · Posted
I'm trying to figure out if Oat In Calming Gel Cream from Purito is safe to use as a moisturizer on my face. In particular, I'm not sure what to think about the oat seed water. Not sure if that should be considered safe or not. The full list of ingredients on their website are: Avena Sativa (Oat) Seed Water (77%), Butylene Glycol, Glycerin, 2,3-Butanediol, 1,2-Hexanediol, Aqua/Water, Ammonium Acryloyldimethyltaurate/VP Copolymer, Squalane, Hydroxyacetophenone, Carbomer, Dipotassium Glycyrrhizate, Panthenol, Tromethamine, Ethylhexylglycerin, Inulin Lauryl Carbamate, Sodium Surfactin, Beta-Glucan
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