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Symptoms 4 years post-diagnosis


von

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von Apprentice

I was diagnosed celiac in 2015. I didn’t really have major digestive symptoms though I realized after going gluten free how much better I felt without it. My main symptoms were the tiredness and anxiety. Now 4 years on I am having digestive symptoms that are commonly linked with celiac..abdominal cramps, alternating constipation and loose stool, weight loss (I’ve usually been very consistent but I lost 3-4 pounds in the last 2 weeks even when eating more). Has anyone else “relapsed” in symptoms?? I’m somewhat careful in my diet in that I never “cheat” and have gluten but if I were to go out to a restaurant (not often) and was told something is gluten free but not celiac safe due to cross contamination etc. I would still eat it.


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Ennis-TX Grand Master

Those little chances with eating out are like playing russian roulette. Celiac symptoms change over time with many so you probably did not notice it before if it had happened. A single exposure can leave raised antibodies and various symptoms that can last over 6 weeks for some.  Stop eating out, and if you have to go meet others at a restaurant bring your own food if you can or choose a place that is 100% safe and perhaps dedicated gluten-free.
Another thing is to keep track of what you eat, ALWAYS read labels, even on stables. They will sometimes change recipes or go to a shared facility.
Try a whole foods only diet for a few weeks with no eating out or eating processed foods. Make stuff easy to digest. You might need to try a FODMAP diet and start a food diary also. The reason being is many of us with subsequent gluten exposures end up with new food intolerances/sensitivities and have to remove foods from our diet.

Reread the newbie 101 section and see if your overlooking anything.

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