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1st. X Shopping..........


Miko

Recommended Posts

Miko Newbie

:huh: Today was the "diffrent" feeling of going " grocery shpping".

The things I looked for; the items I discoveried; The MOST I have EVER passed up"...!

I didn't realize how much Gluten there is in food. <_<

I am europen desent, and the way I eat from leaving home......." mom would NOT be proud".

I have been free of alot since Thanksgiving ( I was diagnosed), and I am Going to do THIS !!!!!

I an 40 and starting the 3rd. chapter in my life :D and I will make it count!!

TODAY IS THE BEGINNING OF A NEW YEAR AND ALSO THE BELIEVING IN MYSELF THAT I ...

>>"AM SOMEONE"<<

Thank you all for being here to adventure and explore the journy i am intering...........

HAPPY NEW DAYS AHEAD......2006 !!!!!!

Miko

.."Childern are like flowers, as they grow they become more beautiful"


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Lisa Mentor

Miko,

Where do you live?

Glad that you joined the message board, welcome.

Lisa B

Canadian Karen Community Regular

Hi Miko!

I am glad you joined the board! There's a lot of great people here who are always there for support and to answer questions.....

I am 42, but have been gluten-free for a lot longer. You are right about one thing, you are about to start a whole new phase of your life!

Welcome!

Karen

bdsmith63 Rookie

Hello Everyone!

I am 42 years old and was diagnosed with celiac disease several weeks ago and have been gluten-free for 6 days now! I am starting to feel better in ways that I didn't realize. I too am going to DO THIS and make this WORK.

I'm still having a lot of issues on WHY ME and IS THIS DIAGNOSIS accurate? I have been in excellent health, and generally health-minded about my eating and nutritional supplementation habits! I did experience hypoglycemia as a teenager and into my mid-20's, and have been able to manage sugar in my diet without much problem.

My doctor wants me to go gluten-free for about 6 weeks and then do another blood test. I had an endoscopy and blood tests that confirmed I was Celiac. I have read about so many varying degrees of the disease and guess perhaps that without hardly any symptons other than bloating, gas and some discomfort from digestion of various foods that I am at the early stages of this disease.

It's like you almost have to self-diagnose your day to day agenda. I have started a journal of everything I'm eating since going gluten-free.

I am anxious to get to know many of you on this forum, and hear of your stories about your diagnosis of celiac disease.

Happy New Year! Brian

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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