Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going List Crazy!

Mieux7

Recommended Posts

Mieux7 Newbie
Mieux7
Posted

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted
Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

I agree, there are so many lists it is hard to keep track. I've checked them out, erased the foods that I don't use, which shortens the lists and eliminated a list that is more than 6 months old. I stick fairly close to companies like Kraft that I can trust and of course foods that has gluten free right on the label. And Yes, by all means ... trust your own body. I'm fortunate that if I buy something to try and it doesn't agree with me, my hubby eats it. He says he's like Mikey .. he eats everything! :lol:

I sure hope you are feeling better soon!

hez Enthusiast
hez
Posted

How long have you been gluten-free? The reason I ask is it might not be the products. My experience was that I would be eating products that were safe but still getting sick. The reason, my villi were not healed. I saw some improvement in month 5-6. However, before that I would go in and out of feeling bad. I was never able to connect with a specific food. It was just taking my body a long time to heal.

Of course products do change and it is highly possible that you have been glutened. Just thought I would throw out another possiblility.

I do hope you feel better soon.

Hez

Becky6 Enthusiast
Becky6
Posted

I have seen a few errors on a list. One was it said something was NOT gluten free and I got an email from the company saying it was gluten-free. So best to check out some stuff on your own!

angel-jd1 Community Regular
angel-jd1
Posted

I never trust something that someone else has made up. I may use a list as a reference to get me started in the right direction. However I always go ahead and call the company on my own or check their website to double check the gluten free status. People are well meaning with lists, and lists are great, but you are the only person who is responsible for your health. You have to be ontop of it.

-Jessica :rolleyes:

Anybody else had this experience? (Seems like it from browsing through posts!) I wondering how far you really can trust all those lists of gluten-free food - whatever the source (message boards, manufacturers, etc etc). I understand the cross contamination issues, hidden sources, ever-changing ingredients. But I swear I've gotten glutened from (by?) several products that're supposed to be fine. Two biggies lately have been Newman's Ranch dressing (really bad) and Sargento Parmesan/Romano grated cheese. I'm also suspicious of some of the Boar's Head meats & cheeses. TCBY frozen yogurt.

I guess the smartest thing is just to trust your own body, but it gets expensive trying things you have to throw out - and worse, it's pretty much impossible to heal if you keep getting ambushed by so called gluten-free products. (Sorry for the rant. Feeling icky today.) But thanks for any clues you can provide!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748
    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.