Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Testing Methodology


Packard

Recommended Posts

Packard Newbie

So many people have eliminated so many foods from their diets that it is scary.

What is your food testing methodology?

I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

For example: Recently I got a bout of "unpleasantness" due to gluten ingestion. I was on pretty firm ground on everything that I ate that day. I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.

To confirm my suspicion I carefully monitored everything that I ate another day and only ate items that I was sure were gluten free, plus I had a bowl of chili. The results were convincing.

But if you eliminate something each time you get ill without re-testing you are going to end up with nothing left to eat.

I eliminated dairy in the beginning because I had no clue what was causing my problems. But there is a definitive test for dairy and that came back negative. Ice cream is now back on my menu (I need something to replace the brownies).

So what is your testing procedure? And how confident are you that your list of verboten foods is a relevant one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



4getgluten Rookie

This is tough one. Mostly I try to only add one "new" food a day, and then if I feel ill, I assume it was that food. I admit I don't very often go back and try that food again - it's just not worth it to me. Also, I don't eat out very often, so that makes it easier to know exactly what I'm eating. I find eating out to still be tricky.

As for brownies.... the Gluten-Free Pantry makes a good mix. I make them all the time and keep them in the freezer. I have even served them to my gluten eating friends, who loved them! They couldn't believe they were gluten-free.

lonewolf Collaborator
The chili is listed in Wendy's website as being gluten free,

My husband used to work at Wendy's (a long time ago, granted). He says that there's no way it's gluten free. Cross contamination issues.

Liz

tarnalberry Community Regular

You have to have completely knowledge of what you are ingesting if you're going to determine what foods to eliminate - that means bringing your own, self-packed lunch and not eating out until you've finished testing.

A more rigorous approach would be to make a menu - for a week or two, at least. eat that menu, record your symptoms along with the foods. then, when that time period is over, eat the exact same menu again, only adding in a food you want to test - only one food - recording your symptoms along with the foods. then, go back to the original menu. it's time consuming, but the life-span of the body's digestive processes isn't hours or a few days, so there's not much getting around it being time consuming.

CeliaCruz Rookie
I eat out a lot (lunches, breakfasts). When I get blindsided by some gluten it is often difficult to pin down the culprit. I could eliminate everything that I ate that day to be safe, but it would be too inclusive.

I found that cross-contamination issues throw a monkey wrench into my food testing methodology, so I stopped eating out altogether. For instance, McDonald's fries are supposed to be gluten-free but sometimes they bother me and sometimes they don't. So I had to eliminate them just to be safe. Now that everything I eat is something I've prepared myself, I can eliminate cross contamination as a consideration. If I get glutened, I can consult my food log and know that something I ate recently made me sick and it had nothing to do with random flour on a kitchen work surface or breadcrumbs in the peanut butter etc. I've learned a lot that way. It's a pain in the ass -- especially if you have a full time job -- but I'm trying to think of it as a learning experience that will pay off someday.

marciab Enthusiast

This diet sucks, BUT, I have to admit, it has helped tremendously. I no longer have the bouts of D. I don't have that constant pain in my abdomen. And I stopped being hyperactive the same day I stopped the gluten. And I didn't even know I was hyper until I stopped being hyper. Duh !! I just thought I was antsy.

I cook foods in a large quantity and freeze them, so I can just pull them from the freezer when I am hungry. Millet, buckwheat, quinoa and brown rice all freeze well. As do beans. And I keep some gluten free smoothie mixes and fruits to take with me while I am on the go. I will add plain frozen veggies to any meal. I'm still working on the gluten free bread. My motto is "If I cook it, no matter what it looks like, I will eat it". I draw the line when it comes to any burnt, though.

I keep messing up by adding little things for flavor. I saw where sometimes people who are sensitive to dairy can tolerate yogurt. SO, I added yogurt and calamata olives to some of my meals (saw this on the food channel) ... yummm... but I got cocky and added cashews too. So now, I have to go back and see which of these ingredients really nailed me. I suspect the cashews.

Oh, well ... it was fun while it lasted ...hang in there ... marcia

Carriefaith Enthusiast
I did suspect that the chili from Wendy's was the culprit because everything else I ate that day had a safe track record. The chili is listed in Wendy's website as being gluten free, but I suspect that they have different vendors for different parts of the country.
A Canadian list that I saw indicated that Wendy's chili can be contaminated.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

    2. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    3. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    4. - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748

    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...