Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im getting so unwell again...


Dannielizabeth

Recommended Posts

Dannielizabeth Rookie

I’ve gone back to being bloated CONSTANTLY like I was before I gave up gluten..
In the last 6 weeks I’ve never really not been bloated for a like noticeable length Of time as I’ve p much had gluten like 1x a week and then I’d be recovering from it then have it again accidentally just as it was going down or my period and then I’d have gluten so basically just constant bloat!!
I’ve just had my period but I’ve also been bloated and in pain after everything I eat? and my face is starting to look less bright/more tired as well which I know is signs I’m having gluten..so I’m wondering how you would try to find out if cross contamination is happening? Like how would I stop it? Also HOW do I STOP having gluten ALL the time bcos im vv clearly reversing the BIT better I was feeling and I can’t go back to how I was several months ago?
I’ve got like 3 weeks before I start my new job and I just want to feel and look better by then..
Yesterday I added baking powder to my pancakes?! I didn’t think It has gluten in!!!
It says rice flour not wheat flour in the run and doesn’t say may contain...
But I wonder whether when I’ve baked previously (I was using normal flour most recently to bake as when I got home from pgl I binned a bag of opened flour and had to get gluten-free flour) some actual flour has gotten in there? Not quite sure how or if it could gag but definitely felt horrible after the pancakes,then horribly ill and my stomach like churning in the evening as well as falling asleep for 2 hours at 5.30pm? and feeling nausea in general and I just don’t know.
I’m basically bloated now when I wake up in the mornings too. This is l much what it was like 4 months ago?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

If your a diagnosed celiac I see several flags here and would suggest reading the newbie 101 section. First off you should never use wheat flour in your kitchen or even be in a kitchen that uses it. It can be airborne for hours and if you inhale it in your nose the trapped particles will eventually run down your throat and be digested and can trigger a reaction. It also settles on everything -_-.
Some things also need to be replaced for someone on a gluten free diet IE colanders, scratched pots/pans, etc. Again covered in the newbie 101 section. https://www.celiac.com/forums/topic/91878-newbie-info-101/
A reaction can have various lasting symptoms for over 6 weeks in some individuals as it can take awhile for the antibodies to go back down.
From personal experience I use a low carb paleo diet that is pretty much keto to manage gas and bloat. But I have other AI issues, and also do it to manage them and my blood sugar.

A food diary and recording your symptoms can help you track down trigger foods for your issues and I would suggest a whole foods only diet for while so it will be easier to manage and keep track of what you eat and boost healing. It could be a new food intolerance or sensitivity also.

 

Ranchers Wife Apprentice

Also, many Celiacs don't tolerate xanthan gum well. It can cause bloating, diarrhea, gut pain.

Xanthan gum is a common ingredient in gluten free flour, and gluten free baked goods.

 

If you are getting unintentionally exposed to gluten once a week, you need some help staying clean! The Newbie section, as suggested by EnnisTX, is a good place to start.

Changing over to a diet that is mostly whole foods, unprocessed, is a great step in the right direction. Once you are stable and feeling good, you can experiment with adding things back to your diet.

Check out the Fasano diet, designed to get Celiac people who are having trouble healing, healthy and truly gluten free. It's quite restrictive, but designed to be used for just 3 or 4 months.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,159
    • Most Online (within 30 mins)
      7,748

    Laz
    Newest Member
    Laz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • trents
      A lot to think about here. Does anyone have any recommendations for third party laboratories that will do full panel celiac screens private pay in the U.S.?
    • Scott Adams
      You don't need an official diagnosis to request a gluten-free diet in either a hospital or nursing home--this can be requested by anyone. The higher costs associated with existing conditions for life insurance is a reality, and regardless of your politics, it could become a reality again for health insurance in the USA. For many this could make health insurance unaffordable, thus, everyone who is undiagnosed should understand such potential consequences before they go the official diagnostic route. As mentioned, once it's on your medical record, it won't go away.
×
×
  • Create New...