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How Many Of You With celiac disease Have Sleep Apena?

Judyin Philly

By Judyin Philly
in Related Issues & Disorders

Recommended Posts

Guest SusieQ
Guest SusieQ
Posted

Someone mentioned cost of the test and machine. My insurance didn't cover anything for me, and actually it has been good insurance otherwise.

They had a sleep study program here that I could have paid for, but it was more expensive then going to the philippines for the study. I am working on an island in the pacific. I stretched the trip out and made it a vacation so I could see the rice terraces too.

When I returned, I had to pay for the machine totally out of pocket. It wasn't cheap for any of it, but worth every penney in the long run.

I think it is awful that we have citizens that can't get proper medical care. Proper sleep affects everything.

I think when one reaches 62, can get help from Medicare on all of this. I hope that isn't too long for some to wait for help.

  • 3 years later...
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trixiesirisheyes Newbie
trixiesirisheyes
Posted
I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am pre-diagnosis (negative biopsy in the past), but I have a sister with celiac and another with gluten-sensitivity (negative biopsy - Enterolabs results point to gluten sensitivity), I've had baaaadddd belly probs since I was a little girl. I'm 51 and have severe osteoporosis - so bad that in the last two years, I've lost 3/4 of an inch in height. That said, I have bad sinus problems and I "forget to breathe."

I also have moderate sleep apnea, but I refuse to do CPAP. Claustrophobic...23yo son also has mild sleep apnea, and considering how my ex snored like a freight train, I wouldn't be shocked if he had it too.

Recent immunological tests show I have an IgG2 (subclass 2) deficiency and Hashimoto's thyroiditis (the beginning stages) - both parents and three of four sisters have it. IgG2 deficiency can result in a predisposition to upper and lower respiratory infections. That could possibly be contributing to breathing issues while you're sleeping, too. Might be worth checking out.

  • 1 month later...
heather201 Newbie
heather201
Posted

Hi, I am new to this forum not sure where to begin. I too have sleep Apena but do not use a mask because I had the surgery. I think it did work a little. Before, the surgery I was waking up 36 times an hour. I would not recommend the surgery because, it was the most painful thing I have ever had done. Some doctors won't even do it anymore.

I have just recently been told I have celiac's disease not sure if the to have anything to do with each other but it sure seems a lot of people have sleeping problems have celiac's disease or a gluten intolerance. I have been gluten free since jan 4th and already feel a great deal better. I have drive again something I haven't had in almost 18 years. The depression has gone and I am losing weight down 8 pounds in just 11 days. I hope to lose 72 more pounds.

  • 1 month later...
Quasior Rookie
Quasior
Posted

I don't know where the poll part is but... I was very recently diagnosed with sleep apnea. Whether directly caused by celiacs or because I am overweight so indirect cause I'm not sure... but I do have the other neuralogical probls a lot of celiacs have like mind fog, memory loss etc.

Cranberry7 Newbie
Cranberry7
Posted

HI all,

I just joined this group this morning,and the first topic that I read was this one. I hope I'm not too late to discuss this.

I also have celiac, and sleep apnea, and I never knew that there is a possibility that they are "linked," other than by the fact that I gained lots of weight over the last 15 years--while I was being diagnosed with everything else under the sun--such as fibro, chronic fatigue, IBS, Epstein Barr, lactose intolerance, etc. etc. I did find out that I have Hashimoto's (that one was true).

I use a CPAP every night, and I'm totally gluten free (except for accidents), but I'm not losing any weight.

I'd welcome any discussion or tips.

Cranberry7

  • 3 months later...
LD89 Newbie
LD89
Posted

For those suffering from sleep apnea, there is hope. I know the CPAP machine..well, sucks. But there is a special pillow designed to fit the mask or nasal pilows and help wild sleepers keep the cord in place so it doesn't get tangled.

try (Company Name Removed - They Spammed This Forum and are Banned) sleep apnea pillow by CPAP

  • 2 months later...
Guest sueward
Guest sueward
Posted

Susie

Thanks so the note...No time now to really write a long note but here are the main points-- and let's keep in touch ok.

can us the PM also or my email which i think is posted

Been gluten-free for 6 months and fibro is almost gone ---was TOTALLY Glutened by dairy from my gluten-free lasganna I made the other nite. In the am couldn't go down the stairs for 1 hr. pain in every single joint, muscle, and man was I fibro fogged..and had a board meeting

gluten-free diet and proper mask is the answer for me...keep up the gluten-free diet and think it will work for you. I've been fighting my weight for years and this 35 # weight loss has been so easy when gluten-free.

let's keep in touch..

Judy in Philly :P

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bincongo Contributor
bincongo
Posted

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

bincongo Contributor
bincongo
Posted

HI

I'm really having a problem with my nasel pillow mask. I put a post on earlier and didn't get many responces so thought i'd try this poll option. I've never done a poll before but here goes...

I'm sure since so many people are having sleep issues ( did a search and found so many posts on this)

I know i can call the company but wanted to hear from the 'real experts' as you are the users and thought so many might have some ideas.

One nite i woke up and the hose was wrapped around my neck. Found if i put a pillow under my knees it keeps me from moving around so much.

Last nite I was sent to the guest room again....UCK! Hate to keep my dh awake and he's been so supportive of the noise etc but this has been a problem for the past week.

Lost 35 #'s but thought that the pressure was only a problem if you gained weight.

I hope i hear from some of you out there with this issue of sleep apena?

I know with so many people on this board there must be alot of us out there with sleep apena

Thanks for your time

Judy

I am curious if Sleep Apnea is related to Celiac. I was diagnosed with Sleep Apnea 5 years ago and went through several masks and was never really happy with the results. I think partly because I am a women and my hair would make the masks slip off. Anyway 2 years ago my sleep doctor said I may do well with a mouth piece to wear at night. It brings your lower jaw forward. At that time my insurance would not pay for it but now it does. A dentist does all the work and it did cost me 300 dollars but it is wonderful. It is so much better than the C-Pap. I would recommend it to anyone who has Sleep Apnea and confirm that you may do well with just wearing something that pulls the jaw forward.

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