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I was Diagnosed with Celiacs in 2017 w/saliva test

zenith12
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zenith12 Enthusiast
zenith12
Posted
(edited)

My N D  doc gave me a hormone test which also tested for antibodies for celiac (2 wheat proteins).

I came up 14 out of 15!!!! My doc said i could NOT eat gluten anymore and she gave me a list what i could eat and not eat.  But i did NOT believe her since i was not having hard core symptoms at that time.  I kept on eating gluten till Nov/ 2019 till my symptoms got so bad. THEN i knew  'OMG she was right'.  She didn't tell me i had celiacs or Gluten   Intolerance,  and for awhile i thought  G  I.  NOW i know i have celiacs disease as i GET hardcore symptoms immediately and i can feel my body attacking the gluten and my intestines. And i know now if you have ANTIBODIES that does equal celiacs.    But my qst  is  does the throat scope hurt?   how do i know if i have any other BIG alergies? will gastro doc  refer me to the  allergy doc and how does that work? does it hurt? I don't want to do any thing that is invasive or hurts. How do they test you for allergies?  Also i have hardcore pituitary issue with a lot of  hypoglycemia and dizzness and when i got glutened the other day it made it worse. But i am getting better.  Does anyone have PIT issues along with  Celiacs?  I have had 50 symptoms with me eating gluten probably more. I have been glutened free since nov  21st, 2019  but i got glutened  on friday  Feb 28th, so if i hurry and go to mainstream doc to take tests will it show up?  it should . I dont want to eat gluten crackers. I think  i am just gonna narrow it down to eating only  5-9 whole  foods and that is it and   NOTHING ever processed that says gluten free. I heard other ppl are getting glutened on stuff that says gluten free.  SO far  only the wal mart chips  I  reacted!!!!   But i did not previously.  The bag does not say certified gluten free. Maybe that is the problem. Amys meals are fine.  thanks    Also  my body gave me warning signals that i ignored .If  i would have stopped eating the chips faster I think i would have  NOT got glutened .SO now i know what to look for if i ever eat processed foods again.  I get that small PAIN right in my stomach above the pelvic area.  And for me small amount of gluten  =small  stomach pain symptoms and a lot BIG.  Like when i ate  3 pieces of pumking bread on Nov 21st. lol= HUGE pains!!   

It also had extra vital wheat gluten added.  

Edited by zenith12
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Fenrir Community Regular
Fenrir
Posted

The EGD didn't hurt and I had it done twice. They sedate you so you're not really fully awake. You may have a slightly sore throat but it's not really anything notable. 

Zenith Explorer
Zenith
Posted
3 hours ago, Fenrir said:

The EGD didn't hurt and I had it done twice. They sedate you so you're not really fully awake. You may have a slightly sore throat but it's not really anything notable. 

thanks so much. I want to know if I have any damage.  I heard you can still have damage even for ppl who are NOT having symptoms,  and who have celiacs. 

Fenrir Community Regular
Fenrir
Posted

Yes, people that have celiac disease can be asymptomatic and have damage that shows up on the EGD. 

zenith12 Enthusiast
zenith12
Posted
  • Author
On 3/3/2020 at 12:17 PM, Fenrir said:

Yes, people that have celiac disease can be asymptomatic and have damage that shows up on the EGD. 

But they are a time BOMB, And they eventually one day HAVE HARDCORE symptoms like with me two years later after a test showed i can't handle gluten and i  and all those ppl ARE having symptoms but they are ignoring them and they are subtle at that time before the time bomb explodes.

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