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Intro With Questions About My Test Results

flampton

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flampton Rookie
flampton
Posted

Hi all,

This is my first post on the site. I'm trying to figure out a few things.

First off is that I suspect I have celiac or atleast gluten sensitivity. After reading books on paleolithic nutrition about a year ago I proceeded on a relatively low gluten diet. The only gluten I got consisted of some beer and chicken wings on the weekends. I felt a lot better during this period in time, with my symptoms of depression, anxiety and IBS relieved to a certain extent, though not completely. Well I never really put two and two together until this Christmas when I began eating all the cookies and deserts that I had received as gifts. Symptoms returned with a vengeance, worse than ever before.

So even though I already know I will do better gluten free, I have decided to try and get a diagnosis. Since I had been on a low gluten load diet I actually wasn't expecting to be positive on the antibody test. Which I wasn't, or atleast not to there consideration. I only got my doc to get me a tTG IgA and total IgA. This was the only available "celiac panel" to me.

Anyways results are

tTG IgA 6.3 negative

total IgA 523 high

Well what shocked me was the really high IgA. Anyone ever have high total IgA? because all I usually read is that low IgA is common in celiacs.

I got the results today by email so I haven't had a chance to talk to my PCP. Suprisingly even with the tTG IgA being negative he already would like me to see a gastroenterologist.

Thanks for any help

Eric

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floridanative Community Regular
floridanative
Posted

Hi flampton - welcome to the board. I can only share my celiac panel results with you. Only the tTg test came back positive for Celiac and it was only a 10. For various reasons I had another panel done two months later and only the tTg was positive again - only it was now only a 7. The doc who ran that panel called to say I do not have Celiac disease. The third doc did a biopsy but told me I don't have Celiac based on my blood tests results I took in to the consult. He called me last Monday to tell me I have a classic case of Celiac Sprue. My copies of the labs just came in the mail today. Significant flattening of the villi...blah blah blah.

The only issue I see with you getting the biopsy is that if you've cut back on gluten the test may not be conclusive now. Good luck and keep us posted on your progress. Others with more to offer will post soon.

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