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Vitamin B Shots

debmidge

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debmidge Rising Star
debmidge
Posted

Can anyone comment on this .....what's your experience with this? Do they help the depression and/or neurological symptoms? Anyone get them regularly? If yes, how often is recommended?

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Meenucat Newbie
Meenucat
Posted

I get the B12 shots once a month now (I started out getting them every 2 weeks - I'm still at 1000mg but started out at 2000mg) and it took about 2 months of 1 shot per every 2 weeks before I started getting better - I still have the exhaustion and stomach symptoms but the tingling sensations in my feet and hands has improved (I still feel the pins and needles slightly on certain days, but overall things have improved) and my balance is also a bit better...

I think that recommended dose is dependant on low your B12 is - my level was 150 and the normal level starts at 243 or something (???)...My levels have gone up to 278 now, so I'm in the low normal range finally :)

Were you diagnosed with a B12 deficiency?

wildones Apprentice
wildones
Posted

I have wondered about B12 shots also, especially for one of my boys. He had 70% + of his small intestines removed at 6 days old, including the part that absorbs B12. We were told from the very beginning that B12 shots would be a necessity for him, because of the short gut. He has been tested regularly for vitamin deficiencies and has not had problems that needed to be treated (according to the tests at least) yet. He has taken supplements his whole life and will always take multi-vitamins at least. We have all been taking royal jelly (good source of B vitamins) recently. Does there need to be a noted defficiency, in order for the B12 shots to be ordered ?

debmidge Rising Star
debmidge
Posted
  • Author

I don't think a documented need is required for B shots for this simple reason: My sister in law and mother in law, who are not celiac, at least they've never been tested and I have a suspicion that my sis in law is celiac disease, but anyway they've been getting the shot from their G.P. for about 10 years now. Their complaint is that they are tired and he gives it to them. My brother who is not celiac disease has been getting the shot for about 8 years now but that's because he has neuological symptoms (numbness in legs) and it's apparent he's deficient, but he didn't have a blood test informing him of any deficiency.

I am trying to get my celiac disease husband to get the shot and I need the support of others with celiac disease - this way when I say to him, see others with celiac disease get it and it helps them, he'll do it. He won't do it if it's just me suggesting it to him, even though his own sister gets it for less of a reason than he would.

Guest shar4
Guest shar4
Posted

Hi all,

I haven't posted in a while, but feel compelled to add my 2 cents worth. I started getting the B12 shots in December, and was getting them weekly for a while to try and boost the level. Then every other week, and now monthly. The level hasn't gone up dramatically, but I feel soooooooooooooo much better, I cannot fully comprehend how bad I was before I got the shots. That stuff is incredible. :P Plus, I only recently found out that my insurance is helping to pay for them, which is cool!!!

Guest shar4
Guest shar4
Posted

I forgot to say that I no longer have the numbness in my feet like I was having before I was diagnosed, yet another B12 bonus!!!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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