Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Permanent Heart Pounding


marktwo2

Recommended Posts

marktwo2 Newbie

Hi everyone,

I'm originally from the UK and currently living in Finland! - I've just found this forum today!

I suffer from a permanent heart pounding - strong enough that you can see my chest bump up and down, and the pulse in my neck is also strong enough to see visibly. It makes me feel dreadful for 99% of the time. I was wondering if anyone else has suffered from this symptom.

I haven't gone gluten free, despite having a private test done which showed intolerances to gluten, wheat, buckwheat, milk and eggs. I cut out milk and eggs with not much effect, and with all the doctors telling me I was just an anxious person, I kind of gave up hope of it being anything medical.

But I've been feeling increasingly worse over the last few months for no specific reason - I don't feel mentally worried about anything, just frustrated that I feel so dreadful.

I also have regular diarrhoea, heartbearn and indigestion and have disturbed/unrefreshing sleep. I often feel strange after eating, dry mouth/tongue, and tonight for example I had to rush to the loo minutes after drinking a cup-a-soup!

In my humble opinion all this could well point to my diet, so I think now I have to bite the bullet and go gluten-free.

Can anyone else relate to these symptoms?

Mark.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



midnightjewel40 Newbie

:o Hi there i really think you need to see a gastroiterologist ( dont think that is how you spell it but you know what i mean) tell him you symptoms and he will be able to help if you have a wheat problem then cut that out and see if it is just that but i really would get to your doctor as you need seeing let us know how you go

:rolleyes: jacque Australia

Lily Rookie

Hi Mark,

I have the heart pounding that will last for days, but it doesn't stay all the time. I haven't really figured out exactly what causes it, but am sure it is food related. I'm working on the gluten free diet right now so I'm in the process. I've found I'm extremely sensitive to caffeine through all this. Good luck,

Lily

tarnalberry Community Regular

If you've tested gluten intolerant, then I'd try the diet for a while. It's not really as hard as it sounds, after you get the hang of it. And it could make you feel a lot better!

Susan123 Rookie

I get what feels like my heart misses a beat then it speeds up and sounds like it is pounding outside my chest. I am not sure if this is the same thing but my doctor said the number 1 contributing factor to it is caffeine. He told me to cut it down to see if it made a difference. It worked for me. I drink one soda a day now and water the rest. I was getting it once a day before and now it is once every 6 months or so.

JsBaby-G Newbie

I don't have heart pounding, but I feel the pulse in my neck increase for no good reason that lasts a few minutes during this time I feel light headed and shaky! I don't wanna go to the doctor's for it, I'm only 22 and I feel like I'm falling apart!!

:(

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,609
    • Most Online (within 30 mins)
      7,748

    Gwen Gatzke
    Newest Member
    Gwen Gatzke
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • itsdunerie
      Poop head, sorry, but I accidentally posted and can't figure out how to continue my post. My long winded post was going to tell you that after I figu
    • itsdunerie
      15 years ago my best friend 'diagnosed' me as Celiac. Her little nephew had been formally diagnosed and her observations of me dealing with brain fog, stomach problems and other stuff had her convincing me to try going gluten free. Oh my heavens, within 3 days, no lie, I felt human again. Took me about a y
    • Scott Adams
      It seems like you have two choices--do a proper gluten challenge and get re-tested, or just go gluten-free because you already know that it is gluten that is causing your symptoms. In order to screen someone for celiac disease they need to be eating gluten daily, a lot of it--they usually recommend at least 2 slices of wheat bread daily for 6-8 weeks before a blood screening, and at least 2 weeks before an endoscopy (a colonoscopy is no used to diagnose celiac disease). Normally the blood panel is your first step, and if you have ANY positive results there for celiac disease the next step would be to take biopsies of your villi via an endoscopy given by a gastroenterologist.  More info on the blood tests and the gluten challenge beforehand is below: The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   Not to discourage you from a formal diagnosis, but once you are diagnosed it may lead to higher life and medical insurance rates (things will be changing quickly in the USA with the ACA starting in 2026), as well as the need to disclose it on job applications. While I do think it's best to know for sure--especially because all of your first degree relatives should also get screened for it--I also want to disclose some negative possibilities around a formal diagnosis that you may want to also consider.  
    • Wheatwacked
      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.