Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leaky Gut Syndrome & Gilbert's

Bonnie

Recommended Posts

Bonnie Explorer
Bonnie
Posted

Hi everyone,

Been gluten-free for 10 months now. I cannot believe how it has become second nature. I don't even have any "accidents"!

My bloating, gas, constipation etc. was getting bad again even on the gluten-free diet. I EVENTUALLY (hallelujah!) found someone to take me seriously - a Homeopath. He did a whole lot of tests - blood, platelets, liver function, all sorts of others.

I have Gilbert's Syndrome and Leaky Gut Syndrome. I'm sure most of us have leaky gut. Anyway he put me on homeopathic medicine etc.

I am taking daily :-

A good multivitamin

L-Glutamine

Digestive Enzymes

Magnesium

Flaxseed Oil

Milk Thistle

Vitamin B Co.

Herbal Constipation Remedy

I changed my diet again 4 weeks ago - limited dairy, fruit on its own, salad/vegetables and protein or salad/vegetables and carbs. No protein and carbs together. Problem is I am rice intolerant and the only carbs I can eat are fruit/veg & potatoes.

I also started exercising again 4 weeks ago.

Soooo - I am really starting to feel better. However if I eat any processed foods at all or a bit of chocolate - the bloating comes back and the constipation gets worse.

My energy levels are improving a bit too.

What I wanted to know is - am I doing everything right? Should I just carry on as I am and things will gradually improve? I know the leaky gut can take a long time to heal. Is there any other supplement I should be taking to speed things up?

The Gilbert's diagnosis was interesting. Explains the bad nausea and the yellow eyes! Perhaps also why I can't tolerate alcohol anymore. It also affects my energy levels and why I feel physically ill when under stress.

Any advice, as always, will be greatly appreciated! :lol:

Yvonne

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


megsylvan2 Apprentice
megsylvan2
Posted

Hi Yvonne,

I, too, was told I had Leaky Gut Syndrome by a holistic MD, and so far, I'm not sure how I feel about it, or how accepting I am of that as a diagnosis, especially since no testing was done (by this doctor) to arrive at that conclusion. So, I'm taking that with a grain of salt, and trying to find out if there is such a condition recognized by the medical community.

I was given a few things - Robert's formula (liquid herb formula to aid digestion), a probiotic, a very good Vitamin B, and was recommended to do a toxic cleanse by following a specific diet, which included a 1 week powdered food formula substitute from Metagenics.

I really couldn't take any of them because of the intestinal problems I was having, so I will never know if they would have done anything worthwhile. I do think the Vitamin B helped, and will continue to try to work that in.

What I've been able to discover on my own, and thanks to the Metagenics diet (which was gluten free and free of most common allergenic food), was that my problems seems to stem from food intolerances to (so far) wheat, gluten, egg, dairy, honey, and chocolate. If I eat these foods, I feel very sick and have a lot of pain. If I don't eat these foods, I can feel normal again.

I have no advice or answers, as I am also new to this whole arena. Like you, I just have a whole bunch of questions. I, too, wonder if my intestinal tract will heal, and if so, how long it will take if I stay on this path.

I feel the better route for me is to pursue testing for food allergies/intolerances (non- iGe-related allergies), and to make sure I don’t yet have Celiacs. Then, I guess I have to learn how to adapt and to live with this lifestyle.

I haven’t yet reconciled the whole holistic/homeopathic vs. allopathic medicine thing. Obviously, I’m open to holistic/homeopathic, but it seems to me that both routes go to opposite extremes, and I’m looking for something of each that would meet in the middle. That is why I chose a holistic doctor who was also an MD, but I’m afraid I have not yet found what I was seeking.

Good luck to you!

  • 2 weeks later...
Claire Collaborator
Claire
Posted
Hi Yvonne,

I, too, was told I had Leaky Gut Syndrome by a holistic MD, and so far, I'm not sure how I feel about it, or how accepting I am of that as a diagnosis, especially since no testing was done (by this doctor) to arrive at that conclusion. So, I'm taking that with a grain of salt, and trying to find out if there is such a condition recognized by the medical community.

I was given a few things - Robert's formula (liquid herb formula to aid digestion), a probiotic, a very good Vitamin B, and was recommended to do a toxic cleanse by following a specific diet, which included a 1 week powdered food formula substitute from Metagenics.

I really couldn't take any of them because of the intestinal problems I was having, so I will never know if they would have done anything worthwhile. I do think the Vitamin B helped, and will continue to try to work that in.

What I've been able to discover on my own, and thanks to the Metagenics diet (which was gluten free and free of most common allergenic food), was that my problems seems to stem from food intolerances to (so far) wheat, gluten, egg, dairy, honey, and chocolate. If I eat these foods, I feel very sick and have a lot of pain. If I don't eat these foods, I can feel normal again.

I have no advice or answers, as I am also new to this whole arena. Like you, I just have a whole bunch of questions. I, too, wonder if my intestinal tract will heal, and if so, how long it will take if I stay on this path.

I feel the better route for me is to pursue testing for food allergies/intolerances (non- iGe-related allergies), and to make sure I don’t yet have Celiacs. Then, I guess I have to learn how to adapt and to live with this lifestyle.

I haven’t yet reconciled the whole holistic/homeopathic vs. allopathic medicine thing. Obviously, I’m open to holistic/homeopathic, but it seems to me that both routes go to opposite extremes, and I’m looking for something of each that would meet in the middle. That is why I chose a holistic doctor who was also an MD, but I’m afraid I have not yet found what I was seeking.

Good luck to you!

Believe me, there is such a thing as Leaky Gut Syndrome - though it is rarely recognized by the 'medical community'. There are many techncial articles on the subject online. One clear sign of it is delayed food 'allerg' response to one or many foods. This occurs because tiny particles are able to pass through the permeable wall (otherwise called 'leaky'). If the wall wasn't leaky that could not happen.

I have been there - for far too many years.

Healing takes a couple of years - and is frequently slowed down because new reactive foods emerge.

As the diet is limited, we tend to eat too much of foods that aren't a problem Then that food becomes a problem and the options are further narrowed down. It's tough for sure. cCaire

Bonnie Explorer
Bonnie
Posted
  • Author

Hi Claire,

Yes I am coming to terms with the fact that this is going to take a long long time to come right. I am just being too impatient.

I've been a bit worried about what you mentioned about our diets being so limited we tend to eat the same things over and over, and then will probably being intolerant to those foods. Its a vicious cycle.

I think I'm on the right track though so I'll just need to learn a little patience :P and persevere!

Yvonne

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748
    Jamie B
    Newest Member
    Jamie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.