Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Crohn's Disease

ruddabega

By ruddabega
in Related Issues & Disorders

Recommended Posts

ruddabega Apprentice
ruddabega
Posted

I was just diagnosed with Crohn's Disease on top of Celiac. My GI Doc said it was rare to have both, but I was just wonddering if any one out there does have both. If so, how are you handling it? I can't tell what symptoms are coming from what. I am mostly fatigued, and have chronic stomach pain...

Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

I don't know specifically about the odds of having both Crohn's and Celiac together but I do know from my own research that in general, autoimmune diseases often come in clusters. That is to say, if you have one it is not uncommon to have at least one other. The bad thing about Crohn's is that there isn't a relatively straightforward solution like there is for Celiac disease. I assume you are on anti-inflammatory steroidal medications for the Crohn's.

ruddabega Apprentice
ruddabega
Posted
  • Author

Yes, I'm on a steroid medicine as well, which I don't really like. I'm really confused because a lot of the symptoms I've been having are both Celiac and Crohn's-esk, but neither fit either disease perfectly. I'm mostly fatigued (EXTREMELY) and have a lot of stomach pain.

Thanks

  • 3 years later...
hgall00 Newbie
hgall00
Posted

Yes, I'm on a steroid medicine as well, which I don't really like. I'm really confused because a lot of the symptoms I've been having are both Celiac and Crohn's-esk, but neither fit either disease perfectly. I'm mostly fatigued (EXTREMELY) and have a lot of stomach pain.

Thanks

Hi, I was just diagnosed with Celiac disease confirmed with blood work, followed by a colonoscopy (and an upper GI). Long story short, my doctor has had me on this gluten-free diet for the past month and I show up for my follow-up appointment to find out that not only do I have Celiac's, my terminal ileus is not normal and Crohn's disease is added to the differential. I have to have a small bowel follow through to rule out/ or in the Crohn's disease. How often does this happen? She said they usually see this (damange to the terminal ileum) in people who take alot of NSAIDS (ibuprofen), but someone my age (mid- 20's) this usually doesn't occur. I have been feeling better since I cut out gluten but do have stomach pain here and there. I just thought that I was accidently ingesting gluten and trying to be safer with what I eat... Also very tired for days following the stomach pain. Not sure why the doctor thought it was best to wait this long to tell me that Crohn's was still on the list, even though Celiac was confirmed. I thought it was one or the other, not both!

Please help fill me in!

Thanks

gfree in macomb Newbie
gfree in macomb
Posted

I was diagnosed with Crohn's in 1994 and have had 3 surgeries to remove parts of my small intestine. My Gastro doctor could not understand why I was having so much diarrhea and bloating...he kept calling me an enigma. When I switched to a new gastro doctor in 2002 I told him about my symptoms and he said I could have Celiac as well as Crohn's. The blood work came back 119 and anything over 19 is a postative for Celiac. I have been Gluten Free since March of 2002...and I am on Remicade for my Crohn's...and doing pretty well.

gfee in Macomb

NicoleAJ Enthusiast
NicoleAJ
Posted

I was diagnosed with celiac in 2004 and Crohn's in 2007, only to find out later that the Crohn's diagnosis was premature (I also had a severe reaction to the Asacol they put me on). Every time I see a new GI for the severe and regular rectal bleeding and occult bleeding in my gi tract, they assume I have Crohns, and then they get in there and the test results are abnormal but inconclusive. My doctor at Hershey medical center said that though it is rare to have patients with both celiac and Crohn's, it is possible, and she has had some cases of this (these diseases are her specialties).

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,262
    • Most Online (within 30 mins)
      7,748
    LiaTom
    Newest Member
    LiaTom
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      Kan-101

      By Scott Adams · Posted

      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
×
×
  • Create New...