Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coeliac disease and foods


Lisa ferdenzi

Recommended Posts

Lisa ferdenzi Newbie

Hi im coeliac diagnosed now for five years im finding that as time has gone on i canttolerate even more foods i used to eat ruce now that makes me sick sweet potato mushroom meats cheese i about a year ago switched to lactose free milk and knew cheeses also made me sick could anyone guve me any advuce on wether or not this happens wuth thus dusease as niw i find i can only eat v plain foods thankyou any feedback on thus would be so so helpful 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome, Lisa!

You do not mention whether or not you are making a diligent effort to eat gluten free as someone who has been diagnosed with Celiac Disease. A number of recent studies have shown that most people who think they have eliminated gluten from their diets are actually practicing a lower gluten diet but still getting gluten. This is particularly true of those who still dine out. It is critical that you educate yourself thoroughly on how gluten is hidden in foods, supplements and medications. Particularly be aware of the problem with cross contamination. Foods that do not intentionally contain gluten can still get contaminated with in storage and processing facilities. It's really important to eliminate all gluten from your diet and not just cut down on it. You may feel somewhat better but even small amounts of gluten on a regular basis will interfere with healing in your gut.

Having said that, it is very common for Celiacs to develop allergies and intolerances to other foods. Celiac Disease results in a dysfunctional gut which results in a dysfunctional immune system. Allergies/intolerance to dairy products and soy are very common but it can be almost anything. 

Once celiacs go truly gluten free and have done so for awhile, some of the allergies and intolerances may disappear.

Edited by trents
Lisa ferdenzi Newbie

Hi i thanks for your reply i am very strict with my food i dont eat gluten ive done so musc research i read all the labels and only occasionaly buy strictly gluten free products that state clearly coeluac friendly all my food us home cooked and i never eat out as i dont trust. I have separate area in the frudge to store my foid and meticulously cleanwith separate washung sponges my plates i just wondered if anyine else had the same problem its things like rice certain veg fish and so in that makes me sick i hear thus disease is progressive thankyou

estherrmartin Newbie

You should eliminate all dairy and soy until you know for sure you are not intolerant to it.  You might consider an autoimmune protocol diet (very similar to a Paleo, but also eliminates all dairy, gluten, grains, legumes.)  My husband has been on this diet for over a year and is so much healthier.  Found a wonderful doctor online that we all follow and you might find very helpful:amymyersmd.com.  We are a family of 10 that are gluten intolerant so it's best to keep educating yourself so that you can get this under control.  Good luck.

Lisa ferdenzi Newbie
3 hours ago, estherrmartin said:

You should eliminate all dairy and soy until you know for sure you are not intolerant to it.  You might consider an autoimmune protocol diet (very similar to a Paleo, but also eliminates all dairy, gluten, grains, legumes.)  My husband has been on this diet for over a year and is so much healthier.  Found a wonderful doctor online that we all follow and you might find very helpful:amymyersmd.com.  We are a family of 10 that are gluten intolerant so it's best to keep educating yourself so that you can get this under control.  Good luck.

Thankyou i will look into this i will i dont eat dairy or soy hope to find some resolution

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to EndlessSummer's topic in Food Intolerance & Leaky Gut
      1

      Dizziness after eating green beans?

    2. - trents commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    3. - EndlessSummer posted a topic in Food Intolerance & Leaky Gut
      1

      Dizziness after eating green beans?

    4. - Sheila G. commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      4

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

    5. - ShariW replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,689
    • Most Online (within 30 mins)
      7,748

    EndlessSummer
    Newest Member
    EndlessSummer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
    • EndlessSummer
      I only notice recently every time I eat green beans the roof of my mouth gets slightly itchy and I get extreme dizziness.     I get shaky and sweaty and it last for an hour or two before it goes away. I’ve been allergy tested in the past for food allergens only two came back positive (both in the tree-nut family) nothing in the legumes.   (I do have a celiac disease diagnosis, the reason I was food allergy tested was because I ate a walnut and my lips swelled up)  I decided to test this out to be sure so I ate a couple of cooked green beans last night within 15 minutes I was spinning, my shirt drenched in sweat. My heart racing.   I’m not sure what this is, I do have issues with others vegetables  as my stomach doesn’t seem to tolerate them. Even when they’re cooked I just can’t digest them but they never made me as dizzy and sweaty as the green beans.    anyone else experience this?
    • ShariW
      I have found that in addition to gluten, I am sensitive to inulin/chicory root fiber. I wondered why I had gastrointestinal symptoms after drinking a Chobani yogurt drink - much like being glutened. Happened at least twice before I figured out that it was that chicory root fiber additive. I do not react to ordinary dairy, yogurt, etc.  For the holidays, I will only be baking gluten-free treats. I got rid of all gluten-containing flours, mixes and pastas in my kitchen. Much easier to avoid cross-contamination that way!
    • Scott Adams
      It's great to hear that your gluten-free journey has been going well overall, and it's smart to be a detective when a reaction occurs. Distinguishing between a gluten cross-contamination issue and a reaction to high fiber can be tricky, as symptoms can sometimes overlap. The sudden, intense, food poisoning-like hour you experienced does sound more consistent with a specific intolerance or contamination, as a high-fiber reaction typically involves more digestive discomfort like bloating or gas that lasts longer. Since the protein bar was the only new variable, it’s a strong suspect; it's worth checking if it contains ingredients like sugar alcohols (e.g., maltitol, sorbitol) or certain fibers (inulin/chicory root) that are notorious for causing acute digestive upset, even in gluten-free products. For your holiday baking, your plan is solid: bake the gluten-free items first, use entirely separate utensils and pans (not just washed), and consider color-coding tools to avoid mix-ups. Additionally, store your gluten-free flours and ingredients well away from any airborne wheat flour, which can stay in the air for hours and settle on surfaces. Keep listening to your body and introducing new packaged foods one at a time—it’s the best way to navigate and pinpoint triggers on your journey.
    • Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.